You must first be logged in to post a new topic.
If you are not registered, please click "Create Account".
| Posted By |
Message |
| Pages: [1] 2 3 |
pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
|
ultrascreen - not happy
ok- I am freaking.... my ultrascreen is 1 out of 125 chance of a baby w/ downs. i know there are mucho false positives but i cannot handle this. nothing at all has been easy from the start....... needing insemination to low progesterone to spotting etc.
did anyone ever get a 2nd ultrascreen (like a do-over?) (maybe i had an idiot doing mine) my office uses a madonna tech come into the office. i would prefer to get a 2nd ultrascreen b4 i opt for amnio. any ideas at all?
|
Posted 7/1/08 9:43 AM  |
| |
|
Long Island Weddings
Long Island's Largest Bridal Resource |
Hofstra26
Love to Bake!
Member since 7/06 27915 total posts
Name:
|
Re: ultrascreen - not happy
They will probably have you do the Quad-Screen first before an amnio to further check for any abnormalities. Sorry you're going through that. I am sure everything will turn out okay. 
|
| Posted 7/1/08 9:45 AM |
| |
|
pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
|
Re: ultrascreen - not happy
Posted by Hofstra26
They will probably have you do the Quad-Screen first before an amnio to further check for any abnormalities. Sorry you're going through that. I am sure everything will turn out okay.
nope - he didnt mention anything about that. seems he is all for amnios.
which i am not happy about it. what is quad-screen? should i request it?
|
| Posted 7/1/08 9:47 AM |
| |
|
mirla122
Hot! Hot! Hot!
Member since 1/06 1732 total posts
Name:
Mirla
|
Re: ultrascreen - not happy
don't have any advice. just wanted to send some
|
| Posted 7/1/08 9:49 AM |
| |
|
Hofstra26
Love to Bake!
Member since 7/06 27915 total posts
Name:
|
Re: ultrascreen - not happy
Posted by pjay
Posted by Hofstra26
They will probably have you do the Quad-Screen first before an amnio to further check for any abnormalities. Sorry you're going through that. I am sure everything will turn out okay.
nope - he didnt mention anything about that. seems he is all for amnios.
which i am not happy about it. what is quad-screen? should i request it?
It was the blood test I had about 3 weeks or so after my Ultra Screen. It is suppose to give a more accurate picture of the probability of any abnormalities. I would ask the dr. about it. I'm pretty sure most of the girls on here have had it done. It may give you a better idea of what's going on and if the amnio is necessary.
|
| Posted 7/1/08 9:50 AM |
| |
|
hmm8191
My loves
Member since 3/06 2908 total posts
Name:
Heather
|
Re: ultrascreen - not happy
I had my quad screen last week at 18 weeks. I would definitely ask my doctor about that if you're concerned about the amnio.
Good Luck to you!
|
| Posted 7/1/08 9:54 AM |
| |
|
CityNYGirl
My everything!!!!!
Member since 5/05 2324 total posts
Name:
Betty
|
Re: ultrascreen - not happy
You have FM!
Also, doctors don't do any repeat blood tests or sonos, they go by the ultrascreen results.....it is then up to you if you want an amnio or not.....if you don't do the amnio, you will get the triple test (at 16weeks) and then the Level II sono....
Message edited 7/1/2008 9:57:00 AM.
|
| Posted 7/1/08 9:55 AM |
| |
|
pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
|
Re: ultrascreen - not happy
Posted by hmm8191
I had my quad screen last week at 18 weeks. I would definitely ask my doctor about that if you're concerned about the amnio.
Good Luck to you!
does ob/gyn do quad test or do u need to go somewhere else?
|
| Posted 7/1/08 9:55 AM |
| |
|
Jaredsmom
LIF Infant
Member since 6/08 239 total posts
Name:
|
Re: ultrascreen - not happy
Sorry about what you are going through. I'm in the same boat (IVF, staining...etc). My results came back as 1:66. I don't think there is a "do-over" but the next test you will do before amnio is looking for spina bifida (I believe that's the quad screen).
I actually opted for the amnio (being 37) just to make sure. I would suggest speaking over your options w/your Dr. and asking him/her to explain the quad screen in detail so you're fully informed.
In the meantime good luck. I will  for you. I'm sure all will be fine!
|
| Posted 7/1/08 9:59 AM |
| |
|
Baby2love
LIF Infant
Member since 6/08 127 total posts
Name:
|
Re: ultrascreen - not happy
Just for some perspective, my friend had the ultrasreen and it came back 1 in 10 chance Then she had the blood work and it dropped to 1 in 5
She refused the amnio since this wonderful, brave lady said she was having it anyway. Low and behold, a perfect baby girl- no abnormalities to speak of-
Try not to worry- 1 in 125 is NOT as bad as it sounds.
|
| Posted 7/1/08 10:00 AM |
| |
|
Porrruss
Nya nya nya
Member since 5/05 11618 total posts
Name:
Amy
|
Re: ultrascreen - not happy
1/125 means you have a .008 chance of having a child with chromosomal abnormalities. That's less than 1%.
The "current" national statistics of miscarriage from amnio is approximately 1/200 but varies from practice to practice. At my practice here in Baltimore, their personal stats were 1/800. Check with Madonna and find out their stats. That might help you to make a decision.
I had an amnio a few weeks ago and got a clean bill of health for my DD.
Good luck to you and whatever you decide to do.
|
| Posted 7/1/08 10:26 AM |
| |
|
Goobster
:)
Member since 5/07 27557 total posts
Name:
:)
|
Re: ultrascreen - not happy
How were the "physical measurements"?
Sometimes the blood work alone can cause a bad result and the blood work is more likely to be a false + than the physical measurements.
So what was the nuchal fold, how was that?
|
| Posted 7/1/08 10:28 AM |
| |
|
snowflake08
Love my boys!!!
Member since 8/07 5148 total posts
Name:
Laura
|
Re: ultrascreen - not happy
the stats for madonna are 1:400
no words of wisdom, just hope everything is OK
|
| Posted 7/1/08 10:30 AM |
| |
|
XcalystaX
Sooo Sleep Deprived....
Member since 7/06 2742 total posts
Name:
S
|
Re: ultrascreen - not happy
I had an Ultrascreen 2 (that is what is said on the paper) at about 16 weeks and they added those numbers in with the ones from the Ultrascreen to give me a more updated number. I am sorry you are going through this. My numbers after the Ultrascreen came back to be like 1 out of 750 or so and they told me that if it didn't reach to 1 out of 1000 that they would have me do an amnio. Luckily after the Ultrascreen 2 results my risk was lower and came back 1 out of 1250.
Also I would ask what exactly threw the Ultrascreen numbers into a riskier range. Was it the nuchal fold or the blood results. From what I have read the nuchal fold is typically a more accurate item to focus on, particularly because the follow up test is bloodwork only.
|
| Posted 7/1/08 10:31 AM |
| |
|
NinaLemon
It's a boy!!!
Member since 10/07 6453 total posts
Name:
Jeannine
|
Re: ultrascreen - not happy
I'm not sure if the Dr. will do a repeat test it is worth asking. The only thing to be aware of is the Ultrascreen has to be down in a certain time frame, my DR said it has to be done before 13w5d.
|
| Posted 7/1/08 10:37 AM |
| |
|
pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
|
Re: ultrascreen - not happy
i am getting my results faxed to me in the next couple minutes. so i will let u know. i am really having an extremely hard time w/ this. i really want another test before i opt for amnio. (becuase of all the false positives)
|
| Posted 7/1/08 10:37 AM |
| |
|
Goobster
:)
Member since 5/07 27557 total posts
Name:
:)
|
Re: ultrascreen - not happy
Posted by pjay
i am getting my results faxed to me in the next couple minutes. so i will let u know. i am really having an extremely hard time w/ this. i really want another test before i opt for amnio. (becuase of all the false positives)
I would want to know the nuchal fold thickness for sure. That I believe is way more accurate than the blood work. My dr told me that the measurements are more valid than the bloodwork.
|
| Posted 7/1/08 10:40 AM |
| |
|
NinaLemon
It's a boy!!!
Member since 10/07 6453 total posts
Name:
Jeannine
|
Re: ultrascreen - not happy
Posted by pjay
i am getting my results faxed to me in the next couple minutes. so i will let u know. i am really having an extremely hard time w/ this. i really want another test before i opt for amnio. (becuase of all the false positives)
This is what scared me about having the test in the first place, I was really more afraid of a false positive than there being anything wrong with the baby.
Good luck with the results, I hope you are able to give some more information from them
|
| Posted 7/1/08 10:45 AM |
| |
|
pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
|
Re: ultrascreen - not happy
Posted by Goobster
Posted by pjay
i am getting my results faxed to me in the next couple minutes. so i will let u know. i am really having an extremely hard time w/ this. i really want another test before i opt for amnio. (becuase of all the false positives)
I would want to know the nuchal fold thickness for sure. That I believe is way more accurate than the blood work. My dr told me that the measurements are more valid than the bloodwork.
i just received the fax.... its one page and doesnt say anything about folds... just papp-a hcg, delta.... should i call dr and ask the nuchal fold thickness?
|
| Posted 7/1/08 10:46 AM |
| |
|
Goobster
:)
Member since 5/07 27557 total posts
Name:
:)
|
Re: ultrascreen - not happy
Posted by pjay
Posted by Goobster
Posted by pjay
i am getting my results faxed to me in the next couple minutes. so i will let u know. i am really having an extremely hard time w/ this. i really want another test before i opt for amnio. (becuase of all the false positives)
I would want to know the nuchal fold thickness for sure. That I believe is way more accurate than the blood work. My dr told me that the measurements are more valid than the bloodwork.
i just received the fax.... its one page and doesnt say anything about folds... just papp-a hcg, delta.... should i call dr and ask the nuchal fold thickness?
Absolutely. Didn't they tell you when they were doing the measurements how things looked physically (in range, out of range, etc)?
For ex, my nuchal fold was 1.2
Message edited 7/1/2008 10:48:37 AM.
|
| Posted 7/1/08 10:48 AM |
| |
|
pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
|
Re: ultrascreen - not happy
Posted by Goobster
Posted by pjay
Posted by Goobster
Posted by pjay
i am getting my results faxed to me in the next couple minutes. so i will let u know. i am really having an extremely hard time w/ this. i really want another test before i opt for amnio. (becuase of all the false positives)
I would want to know the nuchal fold thickness for sure. That I believe is way more accurate than the blood work. My dr told me that the measurements are more valid than the bloodwork.
i just received the fax.... its one page and doesnt say anything about folds... just papp-a hcg, delta.... should i call dr and ask the nuchal fold thickness?
Absolutely. Didn't they tell you when they were doing the measurements how things looked physically (in range, out of range, etc)?
For ex, my nuchal fold was 1.2
yes, she acutally said all looked ok (when it was over). fluid, folds etc. so then i was surprised to get bad results yesterday...
|
| Posted 7/1/08 10:49 AM |
| |
|
Goobster
:)
Member since 5/07 27557 total posts
Name:
:)
|
Re: ultrascreen - not happy
Posted by pjay
yes, she acutally said all looked ok (when it was over). fluid, folds etc. so then i was surprised to get bad results yesterday...
Try to get the actual measurement. Blood test results can totally be false posities, more than normal measurements of physical aspects.
So the blood test is probably what is giving you those odds. Have you spoken to your dr about this yet?
Message edited 7/1/2008 10:52:35 AM.
|
| Posted 7/1/08 10:52 AM |
| |
|
CityNYGirl
My everything!!!!!
Member since 5/05 2324 total posts
Name:
Betty
|
Re: ultrascreen - not happy
Posted by Goobster
Posted by pjay
yes, she acutally said all looked ok (when it was over). fluid, folds etc. so then i was surprised to get bad results yesterday...
Try to get the actual measurement. Blood test results can totally be false posities, more than normal measurements of physical aspects.
So the blood test is probably what is giving you those odds. Have you spoken to your dr about this yet?
I agree...my baby's measurement was 0.98 which was great....our blood results were the one that gave us the false positive....I would definitely call the doctor and ask....
|
| Posted 7/1/08 10:55 AM |
| |
|
pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
|
Re: ultrascreen - not happy
Posted by Goobster
Posted by pjay
yes, she acutally said all looked ok (when it was over). fluid, folds etc. so then i was surprised to get bad results yesterday...
Try to get the actual measurement. Blood test results can totally be false posities, more than normal measurements of physical aspects.
So the blood test is probably what is giving you those odds. Have you spoken to your dr about this yet?
no - he just said i can get an amnio if i want. no in depth description at all.
|
| Posted 7/1/08 10:56 AM |
| |
|
pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
|
Re: ultrascreen - not happy
so i am gonna call him and ask him for babys measurements, folds size, etc right. he didnt tell me anything...
while i do have bloodwork, how can i tell the normal range..? also my sheet says my ultrascreen was 12 weeks when indeed it was 12 weeks 5 days. does that matter?
|
| Posted 7/1/08 11:00 AM |
| |
|
| Pages: [1] 2 3 |
