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**3rd update 6/11- had our level II done today, please say some prayers for us

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beanie571
:-P

Member since 5/07

2509 total posts

Name:

Re: had our level II done today, please say some prayers for us

Many positive thoughts and prayers headed your way! I'm so sorry you have to go through this!

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Posted 6/5/12 8:36 PM
 
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cateyemm
Twins!

Member since 7/10

8027 total posts

Name:

Re: had our level II done today, please say some prayers for us

Many prayers for you!

Posted 6/5/12 8:43 PM
 

Cacarina
Two girls!

Member since 12/09

2971 total posts

Name:
Cari

Re: had our level II done today, please say some prayers for us

So sorry you are going through this. Keeping you and your bean in my thoughts and prayers and hope you get good news after the amnio!!!!! Chat Icon Chat Icon

Posted 6/5/12 8:43 PM
 

MaMaTeenie
Party of 5

Member since 4/08

6489 total posts

Name:
Mommy

Re: had our level II done today, please say some prayers for us

I am so sorry you are going through this. We had the same thing happen except this baby only has 1 kidney and had cysts on his brain. It was an emotional roller coaster, but the results came in quickly and really put my mind at ease about any chromosomal issues. The amnio was really notbad at all. If you have any questions please feel free to FM me.

I feel like the Dr's really freake me out and without much reason because the cysts are very common and a missing kidney is not a marker for any thing chromosomal.

Try to just take it one day at a time and think positive. Something in my gut just told me our baby was going to be fine and he is. He can and will live a long and happy life with just one kidney as can yours without a gall bladder. I hope you get good news at the cardiologist as well Chat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat Icon

Posted 6/5/12 8:44 PM
 

TiggerBounce
The Prince & Princess

Member since 7/05

4939 total posts

Name:
J

Re: had our level II done today, please say some prayers for us

Many many thoughts and prayers to you, DH and LO!!!
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Posted 6/5/12 8:51 PM
 

MrsKelly
just hangin' around...

Member since 11/06

6305 total posts

Name:
Krista

Re: had our level II done today, please say some prayers for us

Oh helen, im sooo sorry you're going through this. You will be in my thoughts and your LO in my prayers.Chat Icon Chat Icon Chat Icon for good results.Chat Icon
ps - what a cute, crystal clear sono pic

Posted 6/5/12 8:54 PM
 

HelenZ
So worth the wait :)

Member since 10/07

2862 total posts

Name:
Helen

Re: had our level II done today, please say some prayers for us

Posted by FergieK

Sorry you Are going thru this but For my my first level 2 sono they told me heart was too far to the right and possible tear in the diaphragm. I went for a second opinion. LO is ok. I hope you get the same news tomorrow Chat Icon



Thank you so much for your input! Who did you get the 2nd opinion from? A pediatric cardiologist? Or a different sonogram facility/OB's office?

Posted 6/5/12 9:41 PM
 

HelenZ
So worth the wait :)

Member since 10/07

2862 total posts

Name:
Helen

Re: had our level II done today, please say some prayers for us

Posted by missfabulous

Sending you lots of prayers for your LO Chat Icon Chat Icon Chat Icon

For what its worth, my sister was born with her aorta on the wrong side and she's now sixteen years old and very healthy.

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This is so comforting to hear! Did your sister have to have surgery as soon as she was born? I'm guessing they knew about the aorta issue beforehand and were ready for it when your mom went into labor? (or did they do a c-section so everything was planned?). I know I'm getting ahead of myself before I see the pediatric cardiologist, but I have a lot of "what if" scenarios in my head right now! Happy to hear your sister is very healthy!! Chat Icon

Posted 6/5/12 9:44 PM
 

HelenZ
So worth the wait :)

Member since 10/07

2862 total posts

Name:
Helen

Re: had our level II done today, please say some prayers for us

Posted by Lillies

At my level II, we were told DS had enlarged areas of the brain with fluid and possible downs/brain problems.. we went to a high risk sonographer for better measurements the following week and nothing was wrong at all. I almost had a heart attack waiting those 7 days. I know how it must feel. Prayers for you guys and try and hang in there Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon



OMG 7 days would be an eternity right now!! I'm assuming you opted out of having an amnio and waited on having the high risk sonogram instead? I'm nervous about the amnio but my doctor strongly suggests it, wondering if I should wait until after having the echocardiogram to have the amnio done though......

Posted 6/5/12 9:47 PM
 

AngnShaun
Sisters

Member since 1/10

21015 total posts

Name:
Ang

Re: had our level II done today, please say some prayers for us

I am so so sorry. Friends of mine were told at their Level 2 that their daughter would not live because of a heart defect. Shes almost 3 months old.

I believe they went to Columbia also, and they flew out to California to see a specialist. She was actually born in California and had surgery when she was a few days old. She will have another surgery this month. ETA: you can read everything here Doria Family




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Message edited 6/5/2012 10:01:28 PM.

Posted 6/5/12 9:51 PM
 

worrywort
LIF Infant

Member since 2/12

161 total posts

Name:
meghan

Re: had our level II done today, please say some prayers for us

You and your bean are in my thoughts and prayers Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 6/5/12 9:53 PM
 

Samira0407
Love being a Mom

Member since 6/08

4030 total posts

Name:

Re: had our level II done today, please say some prayers for us

Oh no i'm so sorry you're going through this!! Praying for your baby and his/her health. Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 6/5/12 9:57 PM
 

HelenZ
So worth the wait :)

Member since 10/07

2862 total posts

Name:
Helen

Re: had our level II done today, please say some prayers for us

Posted by MaMaTeenie

I am so sorry you are going through this. We had the same thing happen except this baby only has 1 kidney and had cysts on his brain. It was an emotional roller coaster, but the results came in quickly and really put my mind at ease about any chromosomal issues. The amnio was really notbad at all. If you have any questions please feel free to FM me.

I feel like the Dr's really freake me out and without much reason because the cysts are very common and a missing kidney is not a marker for any thing chromosomal.

Try to just take it one day at a time and think positive. Something in my gut just told me our baby was going to be fine and he is. He can and will live a long and happy life with just one kidney as can yours without a gall bladder. I hope you get good news at the cardiologist as well Chat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat IconChat Icon Chat Icon



Thank you SO much for your reassuring words!! I feel like my doctor is freaking me out too, but I guess b/c she has not seemed like an alarmist up until now I'm taking it more seriously. Glad to hear that the amnio wasn't that bad, I almost feel more nervous about having that done than I do about the fetal cardiogram!

Posted 6/5/12 10:11 PM
 

HelenZ
So worth the wait :)

Member since 10/07

2862 total posts

Name:
Helen

Re: had our level II done today, please say some prayers for us

Posted by AngnShaun

I am so so sorry. Friends of mine were told at their Level 2 that their daughter would not live because of a heart defect. Shes almost 3 months old.

I believe they went to Columbia also, and they flew out to California to see a specialist. She was actually born in California and had surgery when she was a few days old. She will have another surgery this month. ETA: you can read everything here Doria Family


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Thank you for sharing this! I think I will read it tomorrow after we have more information, I am so nervous to read too much tonight and get myself all worked up.....thank god your friend's daughter is okay!!!

Posted 6/5/12 10:14 PM
 

YourMama
LIF Adult

Member since 4/11

913 total posts

Name:
YourMama

Re: had our level II done today, please say some prayers for us

Chat Icon Chat Icon Chat Icon for you and your LO Helen! Please update us when you have more answers Chat Icon

Posted 6/5/12 10:29 PM
 

FergieK
Loving my girls

Member since 7/09

2533 total posts

Name:
Fergie

Re: had our level II done today, please say some prayers for us

Posted by HelenZ

Posted by FergieK

Sorry you Are going thru this but For my my first level 2 sono they told me heart was too far to the right and possible tear in the diaphragm. I went for a second opinion. LO is ok. I hope you get the same news tomorrow Chat Icon



Thank you so much for your input! Who did you get the 2nd opinion from? A pediatric cardiologist? Or a different sonogram facility/OB's office?



I went to LIJ ante partum and saw dr Nanda who did a complete check and showed me heart was ok in position and the diaphragm. I think head a neonatologist. I think some drs and techs desensitize your issues that's why although I was upset I needed someone else to confirm it.

Good luck tomorrow.
.

Posted 6/5/12 10:37 PM
 

Mrs213
????????

Member since 2/09

18986 total posts

Name:

Re: had our level II done today, please say some prayers for us

Praying that everything goes wellChat Icon Chat Icon Chat Icon Chat Icon

Posted 6/5/12 10:47 PM
 

jus183
LIF Adolescent

Member since 5/12

499 total posts

Name:

Re: had our level II done today, please say some prayers for us

I am so sorry you are going through this...I will be praying for you!Chat Icon

Posted 6/5/12 11:16 PM
 

bringonthebaby
Twins!

Member since 11/10

2334 total posts

Name:

Re: had our level II done today, please say some prayers for us

Lots of Chat Icon Chat Icon Chat Icon that all is ok!

Posted 6/5/12 11:20 PM
 

CunningOne
***

Member since 5/05

26975 total posts

Name:

Re: had our level II done today, please say some prayers for us

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Posted 6/5/12 11:30 PM
 

Tinyswife
My family is complete

Member since 4/07

1819 total posts

Name:
Cathleen

Re: had our level II done today, please say some prayers for us

I am so sorry to here this....I had a friend whos son had the same problem with the heart and also went to Columbia. They ended up doing surgery a few days after birth and now is a perfectly healthy 11 year old. I know its hard news no matter what I could never imagine. I just hope that a amazing story may sit in the back of your head and help a tiny bit. Chat Icon Chat Icon Chat Icon Chat Icon

Posted 6/6/12 12:29 AM
 

HelenZ
So worth the wait :)

Member since 10/07

2862 total posts

Name:
Helen

Re: had our level II done today, please say some prayers for us

Posted by Tinyswife

I am so sorry to here this....I had a friend whos son had the same problem with the heart and also went to Columbia. They ended up doing surgery a few days after birth and now is a perfectly healthy 11 year old. I know its hard news no matter what I could never imagine. I just hope that a amazing story may sit in the back of your head and help a tiny bit. Chat Icon Chat Icon Chat Icon Chat Icon



Thank you for sharing this.....do you know if your friend delivered at Columbia as well? Or did she deliver elsewhere and the baby was transferred to Columbia for surgery? Thank you for the uplifting story! This definitely puts the question out of mind that Columbia is the right place to go (we had a choice of LIJ or Columbia for the echocardiogram today, but my doc was pushing Columbia).

Posted 6/6/12 6:32 AM
 

missfabulous
#mommyneedswine

Member since 6/09

10031 total posts

Name:
Colleen

Re: had our level II done today, please say some prayers for us

Posted by HelenZ

Posted by missfabulous

Sending you lots of prayers for your LO Chat Icon Chat Icon Chat Icon

For what its worth, my sister was born with her aorta on the wrong side and she's now sixteen years old and very healthy.

Chat Icon Chat Icon Chat Icon Chat Icon



This is so comforting to hear! Did your sister have to have surgery as soon as she was born? I'm guessing they knew about the aorta issue beforehand and were ready for it when your mom went into labor? (or did they do a c-section so everything was planned?). I know I'm getting ahead of myself before I see the pediatric cardiologist, but I have a lot of "what if" scenarios in my head right now! Happy to hear your sister is very healthy!! Chat Icon



My sister was born with hole in her heart along with her aorta on the wrong side. The drs. knew about it. My mom had a c-section. She didn't have open heart surgery until she was 3 months old- she had 3 surgerys and spent about 1 month in ICU. She's also had a pacemaker put in at 3 months which she has still. I'm praying that your doctor is wrong, but if you do need any pediatric cardiologists, my mom went to some of the best (pretty much all located in NYC). I'm praying this is not the case for you but just remember they have some amazing doctors out there. Chat Icon Chat Icon Chat Icon Chat Icon But before you think about that- PLEASE let this doctor be 100% wrong Chat Icon Chat Icon Chat Icon

Posted 6/6/12 7:20 AM
 

IAMMRSBROWN
3 under 2!!!

Member since 10/10

2476 total posts

Name:
Carey

Re: had our level II done today, please say some prayers for us

Good luck with everything, Im sorry you are going through this. Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 6/6/12 7:33 AM
 

springsandra
Baby girl has a baby brother!

Member since 11/09

7155 total posts

Name:
Sandra

Re: had our level II done today, please say some prayers for us

Oh Helen I'm so sorry you're going through this. I hope they can ease your mind and everything is perfect with your little one!

Posted 6/6/12 8:23 AM
 
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