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Update.2 final update....Please help me cope i dont know what to do
I am beside myself...I am waiting for test results to come back on my 6 week old baby regarding her having Spinal Muscular Atrophy SMA....the number 1 killer in babies under 2, it is rare but my DH and I are both carriers for the disease so she is at risk, and has been showing symptoms (weak muscel tone) I am praying for a miracle!!!!!!!!!!!! But my heart is aching so much at the thought of losing her I really dont know how to deal with this......thank you for listening and please pray hard for my baby girl
Update....Thank you all so much for your prayers, we will have the test results by the end of this week, so i will update more then.......praying so hard that it is negative!!!!!!!!!!!!!
Update 2 ...My baby has it...I want to die right now...thankyou for your prayers
Message edited 4/20/2009 2:24:06 PM.
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Posted 4/14/09 6:37 PM  |
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Long Island Weddings
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InShock
life is good
Member since 10/06 9258 total posts
Name:
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Re: Please help me cope i dont know what to do
I can't imagine the torture you're enduring. I PRAY that your DD doesn't have this horrible sounding SMA disease. 
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| Posted 4/14/09 6:40 PM |
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Tracey
***********
Member since 5/05 6297 total posts
Name:
Tracey - brideinapril
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Re: Please help me cope i dont know what to do
omg - my heart is just breaking for you and what you must be going thru - i can't even fathom thought - i will keep you and your baby girl in my thoughts and prayers.
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| Posted 4/14/09 6:42 PM |
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mcd01
Life is good : )
Member since 3/09 1932 total posts
Name:
Melissa
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Re: Please help me cope i dont know what to do
my heart goes out to you and your dh, I can not even imagine the pain you are both enduring, I am so sorry. your dd is in my prayers, I will continue to pray for her, and for you and your dh,
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| Posted 4/14/09 7:08 PM |
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Irishlass
LIF Adult
Member since 5/05 2961 total posts
Name:
Lisa
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Re: Please help me cope i dont know what to do
OMG your DD is in my thoughts.
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| Posted 4/14/09 7:20 PM |
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Porrruss
Nya nya nya
Member since 5/05 11618 total posts
Name:
Amy
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Re: Please help me cope i dont know what to do
Many, MANY prayers to you and your DD.
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| Posted 4/14/09 7:22 PM |
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JennyPenny
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Member since 1/08 12702 total posts
Name:
Jen
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Re: Please help me cope i dont know what to do
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| Posted 4/14/09 7:24 PM |
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codybear
Our Family is Complete!
Member since 11/06 2064 total posts
Name:
Christine
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Re: Please help me cope i dont know what to do
Many prayers for you and DD.
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| Posted 4/14/09 7:43 PM |
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Dani922
Here's to new beginnings
Member since 10/07 7260 total posts
Name:
Danielle
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Re: Please help me cope i dont know what to do
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| Posted 4/14/09 7:48 PM |
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lbelle821
Arghhhhh
Member since 2/06 5285 total posts
Name:
Lisa
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Re: Please help me cope i dont know what to do
so many many prayers coming your way
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| Posted 4/14/09 8:26 PM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: Please help me cope i dont know what to do
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| Posted 4/14/09 8:30 PM |
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chrisnjoe8108
He's 1!
Member since 8/08 5649 total posts
Name:
Chris
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Re: Please help me cope i dont know what to do
Many prayers coming your way
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| Posted 4/14/09 8:47 PM |
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babymakes3
Almost there!
Member since 7/06 7376 total posts
Name:
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Re: Please help me cope i dont know what to do
Lot of prayers for you and your baby! I hope all turns out well!
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| Posted 4/14/09 9:50 PM |
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Jazzyt
My Girl!!!
Member since 8/07 2977 total posts
Name:
Giselle
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Re: Please help me cope i dont know what to do
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| Posted 4/14/09 10:03 PM |
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DmarieK
My loves!!
Member since 1/06 9203 total posts
Name:
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Re: Please help me cope i dont know what to do
I will be praying for good results!!
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| Posted 4/14/09 11:06 PM |
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JodiBabe
Married for 9 yrs!!!!!!
Member since 5/05 6672 total posts
Name:
Jodi
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Re: Please help me cope i dont know what to do
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| Posted 4/14/09 11:28 PM |
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Katie111806
Team Pink!
Member since 12/06 5349 total posts
Name:
Katie
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Re: Please help me cope i dont know what to do
when will you get the results?
Keeping you and your family in my thoughts and prayers
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| Posted 4/15/09 1:22 AM |
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DayDay
Livin' the Good Life....
Member since 9/06 5939 total posts
Name:
Dayna
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Re: Please help me cope i dont know what to do
Many prayers for your family..
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| Posted 4/15/09 8:51 AM |
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SweetCin
My green-eyed boy
Member since 5/05 13499 total posts
Name:
Cin
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Re: Please help me cope i dont know what to do
for good results.
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| Posted 4/15/09 8:56 AM |
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lullabella
LIF Adult
Member since 5/05 2246 total posts
Name:
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Re: Please help me cope i dont know what to do
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| Posted 4/15/09 9:01 AM |
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Re: Please help me cope i dont know what to do
Many prayers
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| Posted 4/15/09 9:06 AM |
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pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
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Re: Please help me cope i dont know what to do
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| Posted 4/15/09 9:07 AM |
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nicrae
He's here!
Member since 12/06 9289 total posts
Name:
Mommy
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Re: Please help me cope i dont know what to do
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| Posted 4/15/09 9:48 AM |
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Re: Please help me cope i dont know what to do
a million prayers for your sweet baby girl --- i cant even imagine what you are feeling right now!
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| Posted 4/15/09 9:48 AM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: Please help me cope i dont know what to do
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| Posted 4/15/09 9:48 AM |
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