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pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
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Hypospadias
I am besides myself... Yesterday, i was told that our son (its a son from amnio report) hasnt developed a penis... then today, i was told he has Hypospadias and the penis is bent & curved upward. Now, i see alot of these posts were mild cases so I guess the penis was always spotted on sono, and at 20 weeks our sons cannot be seen unless there is a 3d sliced sono b/c of his upward bend.
I am seeing dr palmer tomorrow w/ my sono images so fingers crossed that all goes well. If u or anyone u know has been or is in a similiar situation please please please help me she some light on this. Thank you
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Posted 8/21/08 7:46 PM  |
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Long Island Weddings
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lovemy2boys
LIF Adult
Member since 10/07 3915 total posts
Name:
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Re: Hypospadias
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| Posted 8/21/08 9:00 PM |
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ReiRei13
Life is Good!!
Member since 1/08 6460 total posts
Name:
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Re: Hypospadias
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| Posted 8/21/08 9:04 PM |
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SL1
LIF Infant
Member since 1/08 86 total posts
Name:
Stephanie
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Re: Hypospadias
I am sorry I cannot shed any light on this, but will be thinking of you tomorrow. Good luck.
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| Posted 8/21/08 9:19 PM |
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Dani520
LIF Adolescent
Member since 9/06 805 total posts
Name:
Danielle
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Re: Hypospadias
My son has hypospadias and although hiis wasn't caught until after birth I just want you to now that Dr. Plamer and his group are AMAZING!!!!
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| Posted 8/21/08 10:06 PM |
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SkyzTheLimit
Bring on summer!!!
Member since 3/06 2483 total posts
Name:
Jamie
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Re: Hypospadias
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| Posted 8/21/08 10:28 PM |
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Blissful
Ultimate Expression of LOVE
Member since 6/08 4985 total posts
Name:
Maria
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Re: Hypospadias
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| Posted 8/21/08 10:31 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: Hypospadias
OK...this is what little I know on the subject but it might help you find some answers...
The condition, I believe, you are describing is Chordee which is associated to hypospadias.
From my understanding, while it's a little bit more involved than the mild cases of hypospadias that you are reading about on LIF, it is a condition that is correctable.
Exactly what degree of of chordee and hypospadias probably wont be known until the baby is born.
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| Posted 8/21/08 10:58 PM |
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Goobster
:)
Member since 5/07 27557 total posts
Name:
:)
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Re: Hypospadias
Oh Pjay, you just can't get a break. 
I have a friend whose son had hypospadius. It was corrected with surgery which went well, all is fine. I don't know much of the condition you speak of though. I did just look it up online and it says it can be corrected with surgery.
Did they notice this during your level 2? Did the techs know off the bat from the image that something is wrong?
I will all goes well at your visit tomorrow. Sounds like you are meeting with a great dr. Please keep us posted!
Message edited 8/22/2008 8:41:15 AM.
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| Posted 8/22/08 12:03 AM |
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juju
Welcome to the World!
Member since 5/05 6747 total posts
Name:
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Re: Hypospadias
 Ill be thinking and praying for you tomorrow!
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| Posted 8/22/08 2:44 AM |
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pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
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Re: Hypospadias
Thanks girls- this is def the 1st and last preg i will ever have. before day 1 of this preg it has sucked. and i keep saying it will all be worth it.. hopefully i can still stand by that.
can u imagine the radiologist telling u we dont see his boy parts and are u sure the amnio said it is a boy? no u cant. it was insane, he told me i have 3 weeks to make a decision if i want to terminate the pregnancy or not... what??!!!! then the genetic counselor jerk offs were under the impression that there is no penis and explaining all the reasons why this happens... mental retardation, adrenal system not working, i can go on and i on... i stopped them and said well is there a way to fix this or not, i dont care about the causes.. and they said no.... just imagine having to call my hubby up and tell him his son has no penis.... HELL i tell ya.
well i spoke to the smartest guy i know in this wonderful world of human reproduction, dr hershlag (not sure if any of u know him) he wanted me to see a specialist at NYU who is the leader in his field of prenatal radiology.
he did phenomenal 3d cross section images of the genatalia and showed me the scrotum (yes a boy part) and the penis folded upward and bent. (another boy part) not they way it should be portrayed but it is there and that is all we care about. usually the little pee hole is in the wrong spot so the extra part of the unused penis is flapped over (the urethra stops somewhere closer to the scrotum) instead of all the way to the tip. imagine your pinky bone stopping close to your palm (then there would be nothing but flappy skin to the rest of ur pinky) anyway, at least there is something there that a pediatric urologist will hopefully be able to reconstruct. i really hope i didnt get false hope yesterday. but hey its better then the prognosis of having to decide to terminate or not right at this moment.......
sorry to vent, i just had to gather my thoughts and u guys were the luck ones that get to read it!! thanks for listening
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| Posted 8/22/08 9:07 AM |
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twinkletoes807
Mommy's Girls! ♥
Member since 11/07 10116 total posts
Name:
Gabi
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Re: Hypospadias
ETA: I am so happy that you had a specialist to talk to that has shed more light on your baby boy's situation. I pray that the condition is not severe and that it can be corrected with surgery!!
Message edited 8/22/2008 9:21:12 AM.
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| Posted 8/22/08 9:17 AM |
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Goobster
:)
Member since 5/07 27557 total posts
Name:
:)
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Re: Hypospadias
Pjay, I know you have had too many rough patches in this pg. It makes me so upset for you.
I can't imagine being told what you were told. I just can't. I really think you will get answers today, and that it can be corrected surgically. I read about online after reading your post and although the surgery is a bit more entailed than hypospadius surgery, it is a successful surgery.
Message edited 8/22/2008 9:38:35 AM.
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| Posted 8/22/08 9:24 AM |
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headoverheels
s'il vous plaît
Member since 6/07 42079 total posts
Name:
LB
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Re: Hypospadias
pjay i am SO mad for you!! imaigne them telling you that you needed to consider terminating this pregnancy... and then it turns out that this can be surgically corrected!!
you have all the hugs in the world from me
i am so sorry you have to deal with all this!
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| Posted 8/22/08 9:50 AM |
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Jacksmommy
My love muffin!
Member since 1/07 5819 total posts
Name:
Liz
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Re: Hypospadias
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| Posted 8/22/08 9:54 AM |
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pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
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Re: Hypospadias
if this all works out today and doc feels it can be corrected surgically once baby is born, i am DONE w/ any other tests. NOTHING, no glucose test or anything.
i dont and cant handle anything esle.
thats it!
maybe another sono w/ the NYU doc...... thats it!
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| Posted 8/22/08 10:00 AM |
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1stimemom
Love my boys
Member since 2/08 8766 total posts
Name:
Mrs Dee
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Re: Hypospadias
I'm at least glad you got to deal with a dr that knows what to do in the situation now. Many and for you and your son
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| Posted 8/22/08 10:01 AM |
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jinglemommy
I <3 my boys!
Member since 12/06 1389 total posts
Name:
Kelly
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Re: Hypospadias
My son was born with chordee and hypospadius. Dr. Palmer is our doctor and he is amazing. DS has had two surgeries to repair it...it was quite severe. He is now perfect! FM me for any questions...good luck!
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| Posted 8/22/08 10:46 PM |
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MrsPornStar
Partners in crime
Member since 10/05 14656 total posts
Name:
Mama
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Re: Hypospadias
Sending you lots of prayers.
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| Posted 8/22/08 11:06 PM |
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wannabemom
look who's freshly baked!
Member since 12/07 7364 total posts
Name:
aka marriedinportjeff
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Re: Hypospadias
I'm so sorry you're going through this 
It's unfortunate that so many Dr's speak before thinking and present themselves as if they are authoritative, yet they truly don't know the situation well at all. This is my constant complaint about physicians today.
I'm so glad you finally found a genuine expert and got some real information.
I know in my heart that your little boy will be just fine after surgery
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| Posted 8/22/08 11:22 PM |
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babyonthebrain
Brotherly Love!
Member since 1/08 6209 total posts
Name:
Rafaela
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Re: Hypospadias
Posted by wannabemom
I'm so sorry you're going through this
It's unfortunate that so many Dr's speak before thinking and present themselves as if they are authoritative, yet they truly don't know the situation well at all. This is my constant complaint about physicians today.
I'm so glad you finally found a genuine expert and got some real information.
I know in my heart that your little boy will be just fine after surgery
I couldn't have said it better!!!!!!! I agree 200% Dr.'s now a days can be such aholes!!!!! Pjay I'm glad you got some real answers!!
XOXOXO
BOTB
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| Posted 8/23/08 1:30 AM |
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pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
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Re: Hypospadias
Posted by hbugal
OK...this is what little I know on the subject but it might help you find some answers...
The condition, I believe, you are describing is Chordee which is associated to hypospadias.
From my understanding, while it's a little bit more involved than the mild cases of hypospadias that you are reading about on LIF, it is a condition that is correctable.
Exactly what degree of of chordee and hypospadias probably wont be known until the baby is born.
BINGO, exactly what doc dr. palmer said.
cordee w/ or w/out hypospadius. thank you for your response.
i am so grateful to have my lifamilies.com family. thanks for all your support. obviously it is hard to tell anything 100% from sonogram but at least i have some hope now.
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| Posted 8/23/08 9:13 AM |
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pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
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Re: Hypospadias
Posted by headoverheels
pjay i am SO mad for you!! imaigne them telling you that you needed to consider terminating this pregnancy... and then it turns out that this can be surgically corrected!!
you have all the hugs in the world from me
i am so sorry you have to deal with all this!
thanks for being mad for me! at least i am not alone. it will be corrected and i will never allow those jerks from NSUH manhasset radiology to touch me or my baby AGAIN.
hey, oneof my biggest fears at delivery is getting babies mixed up.... i can put that thought to rest... awwww my little boy........
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| Posted 8/23/08 9:17 AM |
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pjay
YAY! I CAN WRITE HERE....
Member since 5/07 1551 total posts
Name:
PJAY
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Re: Hypospadias
Posted by jinglemommy
My son was born with chordee and hypospadius. Dr. Palmer is our doctor and he is amazing. DS has had two surgeries to repair it...it was quite severe. He is now perfect! FM me for any questions...good luck!
i keep reading your post over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over and over etc. again. thank you
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| Posted 8/23/08 9:19 AM |
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nickipa
love my boys!
Member since 4/06 5648 total posts
Name:
Nicki
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Re: Hypospadias
My DS was also born with chordee, he had his surgery at 6 months old (a few weeks ago) and did fine---the urologist assured me everything will "work" properly! Many hugs to you, I know you have been thru a lot!! I remember talking to you about the whole papA thing too---FM me for any questions, we are in NJ so I can't really recommend our ped urologist, but if I can be of any help please let me know
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| Posted 8/23/08 11:10 AM |
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