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cantwait84
LIF Infant
Member since 5/08 106 total posts
Name:
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Pre implantation genetic diagnosis and ivf
Anyone have experience with PGD? I am the carrier of a rare genetic syndrome which I unknowingly passed to my child. I am interested in having another child but my insurance does not cover PGD or IVF. I was told I can submit a letter from my dr to the insurance company to ask them to make an exception for coverage. Has anyone had experience with PGD? Or appealing to their insurance? Thanks!
Message edited 11/13/2013 5:35:06 AM.
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Posted 11/13/13 5:33 AM |
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ready2go
LIF Adult

Member since 1/08 2379 total posts
Name:
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Re: Pre implantation genetic diagnosis and ivf
I just did PGD because of 3 consecutive losses. One of them was a chromosomal disorder at 20 weeks.
My insurance would not cover it. We had to pay nearly 5K out of pocket. I didn't try appealing to insurance because I was told they would not cover it.
Good Luck!
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Posted 11/13/13 5:53 AM |
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cantwait84
LIF Infant
Member since 5/08 106 total posts
Name:
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Pre implantation genetic diagnosis and ivf
I was told it would $25,000 for the PGD and IVF. There is no way I can afford that. I'm so sad. I thought that was our answer and really thought insurance would cover something. Very disappointing.
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Posted 11/13/13 8:49 AM |
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babyfever24
LIF Adult

Member since 1/11 3340 total posts
Name:
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Re: Pre implantation genetic diagnosis and ivf
Posted by cantwait84
I was told it would $25,000 for the PGD and IVF. There is no way I can afford that. I'm so sad. I thought that was our answer and really thought insurance would cover something. Very disappointing.
Where did you get the quote? You can try to get your meds donated which will alleve a huge amount of that cost. Unfortunately PGD is 5k no matter where you go, but since you have this genetic disorder I would definitely try and fight your insurance company on this one. Good luck!
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Posted 11/13/13 9:01 AM |
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KMCGK
Gotta have faith

Member since 7/09 2176 total posts
Name: Keep the Faith
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Re: Pre implantation genetic diagnosis and ivf
I would definitely fight your insurance company. For the past four years I've needed a certain medication/treatment which was always denied so I had to pay for it out of pocket including a nurse to administer it. Well, it was finally just covered. Keep fighting and keep records of whoand when you speak to who! You definitely need to have your Dr. On your side as well.
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Posted 11/13/13 11:38 AM |
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cantwait84
LIF Infant
Member since 5/08 106 total posts
Name:
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Pre implantation genetic diagnosis and ivf
I got he quote from the north shore IVF place, not sure of the name. How do you get donated meds?
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Posted 11/13/13 2:36 PM |
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Michelle1110
My family is complete
Member since 1/12 2338 total posts
Name:
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Re: Pre implantation genetic diagnosis and ivf
North shore quoted me 5500 more than LI Ivf. Shop around unfortunately.
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Posted 11/13/13 4:14 PM |
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cantwait84
LIF Infant
Member since 5/08 106 total posts
Name:
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Pre implantation genetic diagnosis and ivf
I would prefer to stay with north shore bc that is where my geneticist is.
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Posted 11/14/13 10:26 AM |
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