DH's mother, aunt, grandfather, and great grandmother all had the gene resulting in cancer so he is eligible and would like to be gene tested. However, I have experience working with the Huntington's Disease population and have seen insurance discrimination take place when people test positive for the gene. Now, breast cancer has practically no stigma compared to HD, and I know the GINA laws and Obama's healthcare plan both say that you can't be denied insurance because of a pre-existing medical condition. But should this law ever change, mixed with the fact that these don't cover long-term care and life insurance make me wonder about the consequences that might happen if DH tests positive.

Would any of our insurance skyrocket? Would we have issues with any other kind of insurance, or how about our future children? Would insurance companies let us do this anonymously or would we have to pay out of pocket to do that? Has anyone experienced any insurance discrimination because of a positive test result? I'm wondering if anyone has gone through this progress before and have any advice.

Thanks in advance.