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Shoppie
LIF Adolescent
Member since 8/05 774 total posts
Name:
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I really need support
So I went last week for the follow up sono to my failed AFP (which came back postive for Spina Bfifda) and we got a great pic of the spine and were sorta relieved. Even the tech said looks good to me. Well, the doctor had a chance to intrepret the results and called me just now and said "no spina bfida, but we saw a soft marker on the spine that could indicate down's syndrome" What the heck!! Downs' came back negative in the AFP and now its a marker. even my doctor was stumpped. I'm at a loss!! so now I have to go for an amnio on thurs. and won't hear results for 2 weeks. please tell me how does one live for 2 weeks awaiting results like that?!!!!!!!!!
I want to completely shut down. and then have to wait for THAT call!!
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Posted 4/17/06 2:56 PM  |
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Kathy116
Hey baby!
Member since 6/05 1855 total posts
Name:
me
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Re: I really need support
Let me just say I'm so sorry you are going through this 
I didn't have an amnio, but my friends all said the same thing...they were on pins and needles for two weeks waiting for the results.
I hope these next two weeks fly by.
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| Posted 4/17/06 2:58 PM |
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justme1
Proud SAHM
Member since 5/05 1955 total posts
Name:
Jodi
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Re: I really need support
gosh, I am so sorry you have to go through that stress.
I dont understand how the test would come up negative if there was something wrong. I know there are lots of false postives but I havent really heard of false negatives being an issue.
Try not to get all worked up.. it sounds like your doctor is just trying to be overly precatious..
hang in there..
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| Posted 4/17/06 2:59 PM |
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Janice
Sweet Jessie Quinn
Member since 5/05 27567 total posts
Name:
Janice
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Re: I really need support
 So sorry you are going through this.....I have no answers but will pray that these 2 weeks fly by and end with great results.
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| Posted 4/17/06 2:59 PM |
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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Re: I really need support
I am sorry you are going through this.
Please keep in mind that the AFP and Amnio can both have false positives. I personally know of four couples that this happened to and thier children are all healthy and thriving. Stay postive and remember that none of these tests are 100%.
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| Posted 4/17/06 3:01 PM |
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doggielover
LIF Toddler
Member since 9/05 391 total posts
Name:
Stacey
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Re: I really need support
I am so sorry you have to go through this. I hope these next two weeks fly by. I will be thinking about you
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| Posted 4/17/06 3:03 PM |
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preciouslove
I love my DS!!!
Member since 5/05 9340 total posts
Name:
Blank
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Re: I really need support
I sent you an FM on the 13th about Amnios and my experience did you read it?
I can re-send if you need me to
Message edited 4/17/2006 3:06:44 PM.
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| Posted 4/17/06 3:06 PM |
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Stacey1403
Where it all began....
Member since 5/05 24065 total posts
Name:
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Re: I really need support
I had an amnio and will have another one with this pregnancy. It is so hard to wait but we will be here for you
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| Posted 4/17/06 3:08 PM |
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2kids2cats
My babies
Member since 6/05 5229 total posts
Name:
f
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Re: I really need support
What everyone wrote above is so true, that most of the time they are wrong. I'm praying for you and your little one.
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| Posted 4/17/06 3:15 PM |
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pmpkn087
Life is good...
Member since 9/05 18504 total posts
Name:
Stephanie
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Re: I really need support
Everything will be OK. My friend refused the amnio and her protein levels were high. She went through basically 6 months of wondering if her baby had downs (she was not going to abort if the amnio came back that the baby did have downs, so she didn't want to take the risk).
Well, she had her baby today and he is perfectly healthy. No downs!
So, just because they see something that MIGHT be or COULD be, doesn't mean that it WILL be.
Good Luck
Message edited 4/17/2006 3:20:14 PM.
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| Posted 4/17/06 3:18 PM |
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preciouslove
I love my DS!!!
Member since 5/05 9340 total posts
Name:
Blank
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Re: I really need support
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| Posted 4/17/06 3:21 PM |
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Re: I really need support
Try to stay positive (as hard as that may seem right now). It is VERY possible that you got false positives.
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| Posted 4/17/06 3:27 PM |
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ana6178
Praying for a miracle!
Member since 5/05 1536 total posts
Name:
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Re: I really need support
From what I have read false positives are very common. This happened to my co-worker- same exact thing.... she was a wreck everything turned out fine. Try not to worry- this is one of those things that are out of your control. I am really sorry you are going through this. We are all here for you!
ETA: for spelling. 
Message edited 4/17/2006 3:30:46 PM.
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| Posted 4/17/06 3:30 PM |
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-Lisa-
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Member since 5/05 6530 total posts
Name:
Lisa
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Re: I really need support
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| Posted 4/17/06 3:33 PM |
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tiki03
*************
Member since 9/05 8660 total posts
Name:
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Re: I really need support
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| Posted 4/17/06 3:33 PM |
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monkeybride
My Everything
Member since 5/05 20541 total posts
Name:
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Re: I really need support
What I have heard about these "soft markers" is that 9 times out of 10 they are nothing. They end up resolving themselves and babies are born 100% healthy. We just have much more advanced technology these days that picks up things they never used to be able to see.
My friend had chosen no AFP test but several soft markers showed up on her ultrasound so she worried for a lot of her pregnancy (even after a sono where they had been resolved). Her baby was born totally fine.
I'll bet your little one is doing just fine in there. I would be a nervous wreck too so I won't tell you to relax or anything. Just try to have faith that you have a healthy baby growing in there.
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| Posted 4/17/06 3:48 PM |
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ARIELSMOM
Love my Babes
Member since 8/05 5889 total posts
Name:
MEREDITH
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Re: I really need support
Im praying that everything works out good.
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| Posted 4/17/06 4:00 PM |
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jersee3380
He's here!!
Member since 5/05 1372 total posts
Name:
caroline
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Re: I really need support
sorry you have to go through this. i know it's easy to say 'stay calm' but try to rest and think positive, you and the baby don't need the extra stress. everything is fine. keep us posted
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| Posted 4/17/06 4:02 PM |
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WoodIAm
My Boys!
Member since 5/05 5498 total posts
Name:
JoAnne
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Re: I really need support
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| Posted 4/17/06 4:12 PM |
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anon
where's winter?
Member since 11/05 2209 total posts
Name:
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Re: I really need support
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| Posted 4/17/06 4:17 PM |
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Shoppie
LIF Adolescent
Member since 8/05 774 total posts
Name:
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Re: I really need support
thank you all!!!!! I'm going to do my best to be positive for my bean
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| Posted 4/17/06 4:19 PM |
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Moehick
Ready for the sun!
Member since 5/05 30339 total posts
Name:
Properly perfect™
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Re: I really need support
Just want to send you some and for strength to get through 2 weeks
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| Posted 4/17/06 5:50 PM |
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Charly
LOVE!
Member since 5/05 12578 total posts
Name:
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Re: I really need support
Sorry you have to deal with this Prayers for good results and that the next 2 weeks fly by
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| Posted 4/17/06 6:17 PM |
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Tanaholic
My Big Boy!
Member since 10/05 2383 total posts
Name:
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Re: I really need support
So sorry you are going through this!
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| Posted 4/17/06 6:51 PM |
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MrsJ
I love my Katie Bug
Member since 5/05 11357 total posts
Name:
Kathy
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Re: I really need support
Im really sorry you are still going through this. All I can say is that the false results are very high with this screening...and that to keep that in mind, the AFP is ONLY a screening....it's NOT a diagnostic test and if you have a negative results it only means that the doctor should do follow up testing to rule things out.
I will for you that everything is OK
Message edited 4/17/2006 9:31:41 PM.
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| Posted 4/17/06 7:00 PM |
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