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Got bad news today **Update**
I just got some bad news. My ob called me and said that the baby has a calcification on his/her heart which is also a soft marker for Down syndrome. He told me that because its the only marker and my ultrascreen results came back normal that I shouldn't worry and that it would probably disappear by the time the baby is born. I'm so upset and of course can't stop worrying. I'm meeting with a genetic counselor on Monday. Has this ever happened to anyone and the baby turned out to be just fine?
Update:
We met with the genetic counselor today and she really helped to put her minds at ease. She told us that the odds of this child having Down syndrome are 1/46,000. She offered us many tests including an amnio and a few different blood tests that we declined because we feel confident in the numbers. Thank you for sharing your positive stories and for the prayers and good vibes!
Message edited 5/6/2013 5:48:22 PM.
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Posted 5/1/13 7:49 PM  |
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Long Island Weddings
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luvmyReese
Hello Kitty
Member since 1/08 7542 total posts
Name:
Catt
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Re: Got bad news today
No advice just wanted to give you 
I hope it all works out to be nothing. Good Luck.
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| Posted 5/1/13 8:12 PM |
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MarsB
LIF Adult
Member since 11/10 1456 total posts
Name:
Martha
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Got bad news today
I had that in addition to a 2nd soft marker, but my blood results did not indicate a high risk, so after meeting with the genetic counselor twice we decided not to move fwd with add'l testing (Maternity21, amnio, etc). I've had sonos every 4 wks since and at 21 wks both soft markers were gone.
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| Posted 5/1/13 8:15 PM |
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Re: Got bad news today
Posted by MarsB
I had that in addition to a 2nd soft marker, but my blood results did not indicate a high risk, so after meeting with the genetic counselor twice we decided not to move fwd with add'l testing (Maternity21, amnio, etc). I've had sonos every 4 wks since and at 21 wks both soft markers were gone.
Thank you. They found this at my anatomy scan yesterday and I'll have another sono at 28 weeks to see if it is gone. Praying it is. It sucks worrying.
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| Posted 5/1/13 8:21 PM |
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Re: Got bad news today
Posted by luvmyReese
No advice just wanted to give you
I hope it all works out to be nothing. Good Luck.
Thank you
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| Posted 5/1/13 8:21 PM |
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MrsP6311
LIF Toddler
Member since 6/11 494 total posts
Name:
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Re: Got bad news today
I went through a scare last week myself.
We had out NT scan and combined with the blood work it put us at a risk of 1/11 for Down's. I had a CVS done and was negative for Down's.
We still have to get an echocardiogram done at 18 weeks.
I do believe soft markers are fairly common.
Words of advice, the genetics counselor will probably scary the ever living ___out of you. They will most likely offer you an amnio or maternit21 testing at this point. Maternit21 takes about 10 days to come back (sometimes up to 2 weeks). They will also tell you about all the other tests you can have in addition to the amnio such as microarray on the sample obtained from the amnio.
Make a list of questions to bring with you. and stay off GOOGLE! it's the devil! I found a lot of suppport on this board when I was going through what we went through last week and it truly helped get me through the stress of deciding what to do and waiting.
 that all turns out well.
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| Posted 5/1/13 8:43 PM |
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StarsStripes
LIF Adult
Member since 12/12 1192 total posts
Name:
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Got bad news today
Same thing happened to me with my first, my ob wasn't even worried because everything else was completely normal. Good luck.
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| Posted 5/1/13 8:44 PM |
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IVFmiracle
Complete
Member since 12/12 4088 total posts
Name:
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Re: Got bad news today
A lot of women write about soft markers which end up disappearing with time.
I am sure yours will too. Although it is natural to worry, if your dr says they will probably disappear, they probably will!
Message edited 5/1/2013 10:47:41 PM.
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| Posted 5/1/13 10:47 PM |
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StaceyWill
It's a girl!!!
Member since 6/10 21539 total posts
Name:
Stacey
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Got bad news today
My DD had the same thing. I met with a genetic counselor too. It was nerve wracking, but everything turned out fine. Just like it will with your LO. Hugs to you!!
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| Posted 5/1/13 11:01 PM |
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APT910
Let It Be
Member since 2/11 5021 total posts
Name:
Ashley
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Re: Got bad news today
So sorry to hear this. I hope it turns out to be nothing!
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| Posted 5/2/13 9:09 AM |
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ohbaby08
Winter is Coming
Member since 10/07 1718 total posts
Name:
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Re: Got bad news today
Is it an echogenic cardiac focus (white spot on the heart)? If so, my son had the same thing at our 20 week scan and I was also told not to worry since it was the only marker. By 30 weeks, it was gone and he is now a perfectly healthy 4.5 yr old. I know it is easier said than done, but please try not to worry too much about it. Everything is most likely fine!
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| Posted 5/2/13 9:15 AM |
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GlowSuarez
Baby Marz is here!
Member since 12/10 1494 total posts
Name:
G
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Re: Got bad news today
soo sorry but I hope it turns out to be ok!
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| Posted 5/2/13 9:23 AM |
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asecretmommytobe09
My little pumpkin is here!!!!
Member since 10/08 3369 total posts
Name:
Katie
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Re: Got bad news today
so sorry you have to deal with this. im sure everything will be fine.
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| Posted 5/2/13 9:24 AM |
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Re: Got bad news today
Posted by ohbaby08
Is it an echogenic cardiac focus (white spot on the heart)? If so, my son had the same thing at our 20 week scan and I was also told not to worry since it was the only marker. By 30 weeks, it was gone and he is now a perfectly healthy 4.5 yr old. I know it is easier said than done, but please try not to worry too much about it. Everything is most likely fine!
Thank you for sharing your story and yes that's what he said it was.
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| Posted 5/2/13 9:28 AM |
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Hoping4Baby11
Live life to the fullest!,
Member since 1/11 2140 total posts
Name:
Jenn
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Re: Got bad news today
I hope everything works ok for you!!! Keep us posted!!!!
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| Posted 5/2/13 9:28 AM |
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ItsaJoya19
my cup runneth over
Member since 1/10 2949 total posts
Name:
E
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Re: Got bad news today
No advice but just wanted to send and that everything turns out fine.
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| Posted 5/2/13 9:29 AM |
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Re: Got bad news today
Thanks everyone
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| Posted 5/2/13 9:36 AM |
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Maybe-Baybe
My Sunshine
Member since 7/12 3415 total posts
Name:
My only Sunshine
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Re: Got bad news today
I hope everything turns out ok!
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| Posted 5/2/13 10:24 AM |
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AngnShaun
Sisters
Member since 1/10 21015 total posts
Name:
Ang
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Re: Got bad news today
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| Posted 5/2/13 10:28 AM |
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AScottWolf
I <3 our squish!
Member since 11/10 2237 total posts
Name:
Adriana
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Re: Got bad news today
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| Posted 5/2/13 11:34 AM |
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mama2charlotte
LIF Adult
Member since 7/12 1014 total posts
Name:
Kimberly
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Re: Got bad news today
Posted by ohbaby08
Is it an echogenic cardiac focus (white spot on the heart)? If so, my son had the same thing at our 20 week scan and I was also told not to worry since it was the only marker. By 30 weeks, it was gone and he is now a perfectly healthy 4.5 yr old. I know it is easier said than done, but please try not to worry too much about it. Everything is most likely fine!
Exact same thing here with my 3 year old daughter. I was extremely stressed out by the news, but everything turned out just fine! Good luck. I'm sure everything is fine. I feel like sometimes technology makes things worse.
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| Posted 5/2/13 8:55 PM |
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luckybug78
LIF Infant
Member since 7/08 246 total posts
Name:
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Re: Got bad news today
Posted by ohbaby08
Is it an echogenic cardiac focus (white spot on the heart)? If so, my son had the same thing at our 20 week scan and I was also told not to worry since it was the only marker. By 30 weeks, it was gone and he is now a perfectly healthy 4.5 yr old. I know it is easier said than done, but please try not to worry too much about it. Everything is most likely fine!
this is my story exactly!! My boy is 5 though! Everything is probably fine 
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| Posted 5/2/13 9:28 PM |
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forevercloud
LIF Toddler
Member since 11/11 393 total posts
Name:
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Re: Got bad news today
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| Posted 5/3/13 11:02 AM |
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lulugrrl
My 3 Blessings
Member since 3/06 6551 total posts
Name:
L
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Re: Got bad news today
I had this problem with one of my twins. We had fetal echos done and maternity 21 test..for other reasons than just this one soft marker..but everything was fine. Baby girl is 3 months now, and no problems.
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| Posted 5/3/13 4:15 PM |
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Re: Got bad news today
I'm sure everything will be just fine. We'll all think good thoughts for you!!
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| Posted 5/3/13 6:30 PM |
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