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Who wants to march with us
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pharmcat2000
Mom of 2 + 1
Member since 10/05 7395 total posts
Name:
Catherine
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Who wants to march with us
My family has been invited (including all friends and family) to march in the Rockville Center St. Patrick's Day parade. We will be representing the Angelman Syndrome Foundation. The RVC parade committee has chosen the ASF as one of the organizations to donate money to this year. Angelman Syndrome is a disorder that causes people to have no speech, developmental disabilities, difficulty walking, and seizures. Despite all of the bad that comes along with it, most of those afflicted with it are almost always happy and smiling. And they are so close to being able to cure it (they've found a drug that completely reverses the disorder in the mouse)! So come on out and support all of our Long Island "Angels".
Here is my little "Angel" on St. Patrick's day a few years ago, along with her older sister:
And here she is now, at 4
And here is a link to the Angelman Syndrome Foundation if you're interested in reading more about it:
Angelman Syndrome Foundation
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Posted 2/28/14 5:12 AM  |
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MissJones
I need a nap!
Member since 5/05 22148 total posts
Name:
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Who wants to march with us
Our friends organize the march at eisenshauer (sp) park. I will pass this on to them.
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| Posted 2/28/14 6:10 AM |
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pharmcat2000
Mom of 2 + 1
Member since 10/05 7395 total posts
Name:
Catherine
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Re: Who wants to march with us
Posted by MissJones
Our friends organize the march at eisenshauer (sp) park. I will pass this on to them.
Great, thanks. They're probably already marching with us, but definately touch base with them!
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| Posted 2/28/14 6:29 AM |
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NewLeaf2012
LIF Adult
Member since 1/11 2741 total posts
Name:
....
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Re: Who wants to march with us
My son and I would love to march with you. I remember talking to you when she was a baby... She is all grown up now!!!!
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| Posted 2/28/14 11:59 AM |
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ShhhTTCin11
3 under 3?!
Member since 5/11 2229 total posts
Name:
Coleen
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Who wants to march with us
I can't march, because I'm on bedrest, but wanted to say that your daughters are beautiful! I hope you have a great turnout!!
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| Posted 2/28/14 12:42 PM |
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pharmcat2000
Mom of 2 + 1
Member since 10/05 7395 total posts
Name:
Catherine
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Re: Who wants to march with us
Posted by ShhhTTCin11
I can't march, because I'm on bedrest, but wanted to say that your daughters are beautiful! I hope you have a great turnout!!
Thank you. I hope you're feeling well. Cook that baby!
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| Posted 3/6/14 6:20 AM |
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