Raising awareness to this disorder my daughter has..

if some of you remember i posted a story about ..My daughters story and struggle" ( i had to change my screen name since then though) but heres a video that explains it all ....thanks for looking
video

Message edited 5/1/2010 12:26:35 PM.

Re: Raising awareness to this disorder my daughter has..

That was just heartbreaking and so well done!

Re: Raising awareness to this disorder my daughter has..

Re: Raising awareness to this disorder my daughter has..

Stay strong!!!

Spreading awareness of rare disorders is SO important. My daughter has a rare disorder- luckily extremely mild- but I still use that as a chance to let people know it exists.

Message edited 5/1/2010 2:20:05 PM.

Re: Raising awareness to this disorder my daughter has..

Posted by TaraGotHutched

Stay strong!!!

Spreading awareness of rare disorders is SO important. My daughter has a rare disorder- luckily extremely mild- but I still use that as a chance to let people know it exists.

Re: Raising awareness to this disorder my daughter has..

aww those poor babies