LIFamilies.com - Long Island, NY


RSS
Articles Business Directory Blog Real Estate Community Forum Shop My Family Contests

Log In Chat Index Search Rules Lingo Create Account

Quick navigation:   

Question about Autoimmune Issues and IF

Posted By Message

munchkinfacemama
LOVE

Member since 11/07

15800 total posts

Name:
Michelle

Question about Autoimmune Issues and IF

Hi, my name is Michelle and DH and I have been TTC for 8 months now. We had a chemical in January and an anovulatory last month.

My real issue is that I was diagnosed over 10 years ago with Rheumatoid Arthritis. I am classified as moderate to severe. Currently, I cannot take any medications as they are unsafe for pregnancy, so I am active right now. I also had a lupus panel and a new ANA drawn, which we are awaiting the results of.

So here is my question, and I apologize if it is confusing. I know that there is some correlation between autoimmune diseases and IF. I also read that there may be problems if one has an ANA titer over 1:40. Mine is above 1:40 and my b/w from my rheumatologist shows that my disease is active and I am inflammed. My SED rate is also high-29. We are trying to decide whether we should start consulting with an RE, because I am concerned about whether I am producing killer cells that could stop me from conceiving. Has anyone else experienced this or have this type of problem? If so, what should I expect with an RE?

Thank you so much in advance and Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon to all!

Posted 6/9/09 5:02 PM
 
Long Island Weddings
Long Island's Largest Bridal Resource

MaMaTeenie
Party of 5

Member since 4/08

6489 total posts

Name:
Mommy

Re: Question about Autoimmune Issues and IF

I don't know much about RA or other things you mentioned but I was diagnosed with activated natural killer cells. This appears to be one of the 4 or 5 things going on with me that seems to be responsible for my 2 early losses. I take prednisone at different doses through out my cycle and will also do intralipid transfusions once I am pg. It was recommended that I do them now, but they are costly and plenty of people have been treated with prednisone alone so I will hold off until I am actually pg. Not sure if any of this has helped, but feel free to ask if there is something else I haven't covered. Oxoxoxo

Posted 6/9/09 5:57 PM
 

munchkinfacemama
LOVE

Member since 11/07

15800 total posts

Name:
Michelle

Re: Question about Autoimmune Issues and IF

Posted by MaMaTeenie

I don't know much about RA or other things you mentioned but I was diagnosed with activated natural killer cells. This appears to be one of the 4 or 5 things going on with me that seems to be responsible for my 2 early losses. I take prednisone at different doses through out my cycle and will also do intralipid transfusions once I am pg. It was recommended that I do them now, but they are costly and plenty of people have been treated with prednisone alone so I will hold off until I am actually pg. Not sure if any of this has helped, but feel free to ask if there is something else I haven't covered. Oxoxoxo



Thanks so much Christine! I will bring this up to the doctor! I am on a steady dose of prednisone right now.

Posted 6/9/09 6:41 PM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: Question about Autoimmune Issues and IF

My ANA was 1:320 before I got PG via IVF. I do not have RA. I saw Dr Kwak-Kim in Chicago who worked under Dr Beer who is really the pioneer of studying pregnancy and immune issues. She worked in concert with my IVF clinic and I was on prednisone until 18 weeks and Vit E for my whole pregnancy plus lovenox. She recommended that I do IVIG but I could not afford it since I had to pay for IVF out of pocket. My babies were born healthy and a little early as I had developed preeclampsia. They are 6 months old now and doing great.

A close 2nd in the area would be SIRM(Sher Institute for Repro Med) Dr Braverman is the Dr on LI for that practice. I would suggest you see one of their RE's

Posted 6/9/09 11:20 PM
 

munchkinfacemama
LOVE

Member since 11/07

15800 total posts

Name:
Michelle

Re: Question about Autoimmune Issues and IF

Posted by DRMom

My ANA was 1:320 before I got PG via IVF. I do not have RA. I saw Dr Kwak-Kim in Chicago who worked under Dr Beer who is really the pioneer of studying pregnancy and immune issues. She worked in concert with my IVF clinic and I was on prednisone until 18 weeks and Vit E for my whole pregnancy plus lovenox. She recommended that I do IVIG but I could not afford it since I had to pay for IVF out of pocket. My babies were born healthy and a little early as I had developed preeclampsia. They are 6 months old now and doing great.

A close 2nd in the area would be SIRM(Sher Institute for Repro Med) Dr Braverman is the Dr on LI for that practice. I would suggest you see one of their RE's



Thank you! Unfortunately I am in South Florida now-when I was in NY I was planning on seeing Dr. Braverman. Is there a way to find an RE around here that maybe works under Dr. Beer, who as you said was the pioneer of the nexus between immune issues and pregnancy.

Posted 6/9/09 11:29 PM
 

Phoebee
LIF Adult

Member since 11/06

1623 total posts

Name:
Michelle

Re: Question about Autoimmune Issues and IF

I have autoimmune issues as well.
I switched Dr.'s after a year of trying/ 6 months w/ a different RE.

Dr. Braverman was the only one who did all this bloodwork on me and found the root of my issues.

He is wonderful and will answer e-mails. Perhaps you can write him what you told us, and see if he can't recommend a Dr. in Florida. (you never know who knows who in the medical field)

Best of luck to you!!! Chat Icon Chat Icon Chat Icon

Posted 6/10/09 9:50 PM
 

munchkinfacemama
LOVE

Member since 11/07

15800 total posts

Name:
Michelle

Re: Question about Autoimmune Issues and IF

Posted by Phoebee

I have autoimmune issues as well.
I switched Dr.'s after a year of trying/ 6 months w/ a different RE.

Dr. Braverman was the only one who did all this bloodwork on me and found the root of my issues.

He is wonderful and will answer e-mails. Perhaps you can write him what you told us, and see if he can't recommend a Dr. in Florida. (you never know who knows who in the medical field)

Best of luck to you!!! Chat Icon Chat Icon Chat Icon



Thank you so much-that is a great idea, especially since I know so many of his patients! Chat Icon

Posted 6/11/09 2:22 PM
 
 

Potentially Related Topics:

Topic Posted By Started Replies Forum
The weirdest, most bizarre, most unbelievable story I've decided to share with all of you. And a question. joenick 6/9/09 84 Families Helping Families ™
thinking about ordering this as wall decor for the baby's room FIXED with more pics and a question Ophelia 6/9/09 13 Pregnancy
Toy Storage Question - Any safety issues with wire cubes? Calla 6/5/08 0 Parenting
a new/different question about weight issues in a marriage MarathonKnitter 11/3/07 7 Families Helping Families ™
Question for new moms and stomach issues... babyElaina 4/19/07 5 Parenting
Since I have stomach issues (coffee related question) conigs25 10/4/06 12 Families Helping Families ™
 
Quick navigation:   
Currently 82161 users on the LIFamilies.com Chat
New Businesses
1 More Rep
Carleton Hall of East Islip
J&A Building Services
LaraMae Health Coaching
Sonic Wellness
Julbaby Photography LLC
Ideal Uniforms
Teresa Geraghty Photography
Camelot Dream Homes
Long Island Wedding Boutique
MB Febus- Rodan & Fields
Camp Harbor
Market America-Shop.com
ACM Basement Waterproofing
Travel Tom

      Follow LIWeddings on Facebook

      Follow LIFamilies on Twitter
Long Island Bridal Shows