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Mini photo shoot for my sons charity!
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staceyd
LIF Adult
Member since 8/08 2052 total posts
Name:
stacey
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Mini photo shoot for my sons charity!
I hope you dance photography is having a lemonade stand photo shoot to benefit Jackson's Warriors and the Children's Tumor Foudation. He has neurofibromatosis and together with the CTF we are working to organize and host fundraisers to help fund a cure! If ou don't know anything about Neurofibromatosis, it's a genetic disorder that causes tumors to grow under and on the skin, on nerves, and can be mild or severe. There is no way to predict the severity of a case, leaving the future of these children unknown. Jackson has NF type 1 and has many cafe au lait spots and a plexiforma in his back (group of tumors) he was diagnosed at 3 months and had already endured countless doctor visits, brain and spine MRIs, and has low muscle tone and working with pt... He truly is a warrior, who in just 6 weeks of pt has finally started sitting up and crawling on his own at 13 months.... The least I can do is be his warrior in the fight agains NF
I will add photo in a bit... I can't do it from my iPhone...
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Posted 6/21/12 6:22 AM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
BabyFever
LIF Adult
Member since 8/06 1050 total posts
Name:
XXXXXXXXXX
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Re: Mini photo shoot for my sons charity!
When is it?
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| Posted 6/21/12 6:38 AM |
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Domino
Always My Miracle
Member since 9/05 9924 total posts
Name:
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Re: Mini photo shoot for my sons charity!
Where is it?
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| Posted 6/21/12 7:49 AM |
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Finally1108
My two boys
Member since 12/08 3541 total posts
Name:
Angela
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Re: Mini photo shoot for my sons charity!
Hey Stacey!
So happy to hear that Jackson is doing well! Please post that charity info, I would love to come by!!
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| Posted 6/21/12 9:46 AM |
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staceyd
LIF Adult
Member since 8/08 2052 total posts
Name:
stacey
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Re: Mini photo shoot for my sons charity!
I'm an idiot... August 3,4, an 5....
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| Posted 6/21/12 9:51 AM |
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