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kiwi86
LIF Adolescent

Member since 5/10 531 total posts
Name:
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GHI mommies
Does anyone know of a pediatric physical therapist who takes GHI. DD has torticollis.
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Posted 9/15/13 8:41 PM |
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ny55angel
car seat tech & geek :-)

Member since 2/06 4346 total posts
Name: P
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GHI mommies
We have GHI through NYC (DH works for sanitation) and DS saw Kelly Settanni at Bellmore Physical therapy she was great with DS. We went for about 2 months and she said it was no longer needed. (DS had such a minor case he would not have qualified for services through EI)
Message edited 9/15/2013 9:10:42 PM.
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Posted 9/15/13 9:07 PM |
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PregowithTwins
My boys turned 8

Member since 5/11 2451 total posts
Name:
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GHI mommies
Call Early Intervention for an evalution. We started with my twins both having torticollis. They started with EI at 3 months. It turns out that this effects all muscles going thru body depending on which way head is favoring. She/he could need therapy 1 or more times week. My twins needed 2x week each. That could be costly copays if you have to go out of pocket...try them first.
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Posted 9/15/13 9:38 PM |
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kiwi86
LIF Adolescent

Member since 5/10 531 total posts
Name:
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Re: GHI mommies
DS's torticollis was a lot worse than DD, so I'm sure she won't qualify for EI because he didn't. We have Evaluation this week.
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Posted 9/15/13 9:43 PM |
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kiwi86
LIF Adolescent

Member since 5/10 531 total posts
Name:
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Re: GHI mommies
Posted by ny55angel
We have GHI through NYC (DH works for sanitation) and DS saw Kelly Settanni at Bellmore Physical therapy she was great with DS. We went for about 2 months and she said it was no longer needed. (DS had such a minor case he would not have qualified for services through EI)
Do they come to the house, or do you have to goI there?
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Posted 9/15/13 9:44 PM |
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PregowithTwins
My boys turned 8

Member since 5/11 2451 total posts
Name:
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GHI mommies
Keep an eye on the head shape. Many times torticollis is connected with placiocephaly. One of my twins wore helment for 8 weeks for misshapped head
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Posted 9/15/13 10:41 PM |
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ny55angel
car seat tech & geek :-)

Member since 2/06 4346 total posts
Name: P
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Re: GHI mommies
Posted by kiwi86
Posted by ny55angel
We have GHI through NYC (DH works for sanitation) and DS saw Kelly Settanni at Bellmore Physical therapy she was great with DS. We went for about 2 months and she said it was no longer needed. (DS had such a minor case he would not have qualified for services through EI)
Do they come to the house, or do you have to goI there?
We went to her, but I live close by.
I went to her first because I didn't want to have to wait for the EI process if it was clear that he wouldn't qualify. I toldher right off the bat that if she felt he would qualify then that's what I was going to do. She gave him an initial evaluation and said that it was so minor that he definitely wouldn't have qualified.
We went 2x a week for 2 weeks. Then 1x a week for 3 weeks. Then we did 1x every other week for 2 visits and he was "discharged" I was very diligent about doing the stretches and exercises at home with him and she said that made all the difference.
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Posted 9/16/13 1:27 AM |
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01ellie
LIF Adult

Member since 9/10 2245 total posts
Name:
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Re: GHI mommies
one of my girls has torticollis. We bring her to a PT in Bayside. (right across from Bay Terrace Mall) if that is close to you FM i'll give you her number. i have GHI and had a hard time finding a PT that took my insurance.
We have been taking her to PT once a week since she was about 4 months old. She is now 10 months.
I found that the torticollis has delayed my daughter with other milestones. because she hated tummy time (cause it was hard to lift her head straight) she did not learn to roll over as quickly as her sister. now she rolls over with ease and sits up but she doesnt crawl.
so definitely start ASAP
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Posted 9/16/13 11:15 AM |
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8ternity
<3

Member since 11/08 10586 total posts
Name: Formally NYPD-Wife
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Re: GHI mommies
We have GHI and my DD had Tortocollis 2 years ago and we went to Metro Physical Therapy in Manhassat. They were fantastic.
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Posted 9/16/13 11:30 AM |
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Smileyd17
kids

Member since 5/05 20997 total posts
Name: Mommy
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Re: GHI mommies
Bethpage Physical Therapy on Hempstead Tpke. she is only there two days a week.
We then qualified for EI since he also then suffered plagio. He had severe torticolis.
EI will come to your house. Depending on severity- you can get 2x a week.
It was the best thing that I seeked out EI.
At 3yrs old, you would never know that he has this issue.
Message edited 9/16/2013 12:06:42 PM.
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Posted 9/16/13 12:04 PM |
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gina409
TWINS!

Member since 12/09 27635 total posts
Name: g
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Re: GHI mommies
Dh is also Dsny and my ds also had torticollis
We weren't through EI. Everything is covered and whole thing took about 3 weeks from start to finish,
Fm me if u have any questions!
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Posted 9/16/13 1:21 PM |
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kiwi86
LIF Adolescent

Member since 5/10 531 total posts
Name:
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Re: GHI mommies
Posted by PregowithTwins
Keep an eye on the head shape. Many times torticollis is connected with placiocephaly. One of my twins wore helment for 8 weeks for misshapped head
We also have an appt with a neurologist to see if she needs a helmet. Did GHI cover the helmet?
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Posted 9/16/13 3:59 PM |
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Smileyd17
kids

Member since 5/05 20997 total posts
Name: Mommy
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Re: GHI mommies
Posted by kiwi86
Posted by PregowithTwins
Keep an eye on the head shape. Many times torticollis is connected with placiocephaly. One of my twins wore helment for 8 weeks for misshapped head
We also have an appt with a neurologist to see if she needs a helmet. Did GHI cover the helmet?
yes. they covered all. at least for me they did.
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Posted 9/16/13 4:43 PM |
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