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Blu-ize
Plan B is Now Plan A
Member since 7/05 32475 total posts
Name:
Susan
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Freddy update
It's becoming increasingly hard for mom and dad to manage him. He doesn't want to do anything. The therapists and social worke think that maybe we should start considering placing him somewhere.
We have to talk to the doctor when he gets back from vacation and give this some serious thought.
he spends his whole day in bed, won't shower won't do anything. he is not aware of his deficits and won't wear the prosthesis.
He made so much progress but now, we may have to let the professionals decide.
This is heartbreaking.
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Posted 11/19/07 3:04 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
headoverheels
s'il vous plaît
Member since 6/07 42079 total posts
Name:
LB
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Re: Freddy update
i have no words of advice, just some  i hope it gets easier!
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| Posted 11/19/07 3:05 PM |
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LisaW
Time for me to FLY!
Member since 5/05 13199 total posts
Name:
Did I ever tell you that I hate people?
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Re: Freddy update
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| Posted 11/19/07 3:06 PM |
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MeeshkaMich
LL=Yum
Member since 2/06 5616 total posts
Name:
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Re: Freddy update
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| Posted 11/19/07 3:06 PM |
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MrsPJB2007
MBA at your service!
Member since 7/06 12020 total posts
Name:
MJ
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Re: Freddy update
i'm so sorry to hear..i know this must be just a terrible time for your family as you dont' know what to do. definitely talk to the doctors and see what is the best options for him....i know your entire family has nothing but his best interest at heart
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| Posted 11/19/07 3:06 PM |
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HoneyBadger
YourWorstNightmare.
Member since 10/06 15979 total posts
Name:
BahBahBlackJeep
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Re: Freddy update
I'm sorry...
Who knows? Maybe getting him placed somewhere will be the best thing for him.
I would have thought being home, would have been good, but maybe it's not for him. 
Again, I'm so sorry...
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| Posted 11/19/07 3:06 PM |
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Shelly
She's 7!!!
Member since 8/05 14624 total posts
Name:
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Re: Freddy update
I have no advice either but and 
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| Posted 11/19/07 3:08 PM |
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MsSissy
xoxoxo
Member since 3/07 39159 total posts
Name:
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Re: Freddy update
Oh no, I'm sorry it isn't working out for him
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| Posted 11/19/07 3:08 PM |
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Blu-ize
Plan B is Now Plan A
Member since 7/05 32475 total posts
Name:
Susan
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Re: Freddy update
he says he doesn't want to be there with mom and dad and wants to be in an institution..he doesn't really know what he is saying.
I guess he just wants to rot.
I've never seen mom and dad so down.
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| Posted 11/19/07 3:08 PM |
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lvdolphins
My Loves!
Member since 5/05 46292 total posts
Name:
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Re: Freddy update
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| Posted 11/19/07 3:32 PM |
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MrsPornStar
Partners in crime
Member since 10/05 14656 total posts
Name:
Mama
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Re: Freddy update
I think that maybe a residential facility may be a good thing for him. He can interact with others who may be dealing with similar disabilities. He'll also have more people there to care for him and help him learn to care for himself.
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| Posted 11/19/07 3:36 PM |
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HoneyBadger
YourWorstNightmare.
Member since 10/06 15979 total posts
Name:
BahBahBlackJeep
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Re: Freddy update
Posted by MrsPornStar
I think that maybe a residential facility may be a good thing for him. He can interact with others who may be dealing with similar disabilities. He'll also have more people there to care for him and help him learn to care for himself.
I couldn't agree more!!
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| Posted 11/19/07 3:42 PM |
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SweetestOfPeas
J'taime Paris!
Member since 3/06 32345 total posts
Name:
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Re: Freddy update
oh Susan I am so sorry this isn't getting any easier for you and your family  I really hope he can come to terms with this and soon!
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| Posted 11/19/07 3:50 PM |
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SweetestOfPeas
J'taime Paris!
Member since 3/06 32345 total posts
Name:
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Re: Freddy update
Posted by Blu-ize
I've never seen mom and dad so down.
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| Posted 11/19/07 3:51 PM |
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mka06
LIF Adult
Member since 8/06 1079 total posts
Name:
Melis
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Re: Freddy update
i am so sorry you are going through this. i'm sure this is just heartbreaking for you and your parents, esp given how much you've put into the situation trying to help.
good luck. keep your chin up. you seem to have done an amazing job with this situation so far and i'm sure you and your family will make the best decision possible!
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| Posted 11/19/07 4:27 PM |
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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Re: Freddy update
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| Posted 11/19/07 4:28 PM |
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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Re: Freddy update
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| Posted 11/19/07 4:28 PM |
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Blu-ize
Plan B is Now Plan A
Member since 7/05 32475 total posts
Name:
Susan
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Re: Freddy update
Posted by MrsPornStar
I think that maybe a residential facility may be a good thing for him. He can interact with others who may be dealing with similar disabilities. He'll also have more people there to care for him and help him learn to care for himself.
I'm ok with that. After seeing what my parents have gone through in a short time I can tell this is not working.
I just don't know about this stuff. I guess it will be a private pay plus medicaid. We will have to get him on medicaid.
That stinks.
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| Posted 11/19/07 4:30 PM |
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Kara
Now Zagat Rated!
Member since 3/07 13217 total posts
Name:
They call me "Tater Salad"
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Re: Freddy update
I'm sorry. This must just be so difficult for you and for your parents. I can't imagine how upset you all must be.
At the same time, I have to agree with this:
Posted by Jennie0898
Posted by MrsPornStar
I think that maybe a residential facility may be a good thing for him. He can interact with others who may be dealing with similar disabilities. He'll also have more people there to care for him and help him learn to care for himself.
I couldn't agree more!!
Maybe being in a place with more care and with other people going through similar disabilities will be good for him - at least short term, but maybe longer. It may help him adjust a bit better, and hopefully the people there would be able to teach him how to be more independent. He at least would have others around him who can relate to what he's going through. Maybe that will help???
Again, I'm sorry that what something that was supposed to be so exciting and happy (Freddy finally coming home!) has turned into more stress and more heartache.
I'm SURE you, your family, and his docs / support staff will be able to figure out what will be best for him.
to you and your parents!
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| Posted 11/19/07 4:34 PM |
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Blu-ize
Plan B is Now Plan A
Member since 7/05 32475 total posts
Name:
Susan
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Re: Freddy update
he's so young...aren't most of these places for older adults?
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| Posted 11/19/07 4:36 PM |
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Kara
Now Zagat Rated!
Member since 3/07 13217 total posts
Name:
They call me "Tater Salad"
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Re: Freddy update
Posted by Blu-ize
he's so young...aren't most of these places for older adults?
I'm not sure, but I have a feeling they have all different types of facilities. There are people of all ages with similar problems. Maybe it won't come to this, but, if it does, it may turn out to be a good thing.
Good luck!
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| Posted 11/19/07 4:38 PM |
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Blu-ize
Plan B is Now Plan A
Member since 7/05 32475 total posts
Name:
Susan
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Re: Freddy update
all I know is I feel like it's too soon to give up. I feel terrible for my parents.
Fred doesn't realize the gravity of the situation. he doesn't understand he has these big deficits.
I can't run over there all the time and shower him and deal with it.
Mom and dad are there but it's too much for them to deal with.
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| Posted 11/19/07 4:41 PM |
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Kara
Now Zagat Rated!
Member since 3/07 13217 total posts
Name:
They call me "Tater Salad"
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Re: Freddy update
Let's brainstorm some options then... I'm sure people will have ideas. You tell us if they are practical or not.
Mine are:
Are there other people who can take "shifts" or at least times where they give your parents a break and can keep Freddy company regularly? At least once or twice a week? Maybe if Freddy gets to interact with more people regularly, he'll feel less like he's living with parents and more independent?
Can he go to out patient therapy instead of having people come to the house? I think you mentioned this before, and I may have missed an update on that.
Is a home aid practical on a regular basis, or is that too expensive?
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| Posted 11/19/07 4:49 PM |
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Blu-ize
Plan B is Now Plan A
Member since 7/05 32475 total posts
Name:
Susan
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Re: Freddy update
the home aid isn't practical because he barely gets out of bed for the therapists..
there is no one else to go and take a shift from my parents excpet me. They don't want me to and they end up hanging around anyway because they want to spend time with me too..
Yes, he can go to outpatient therapy, but getting him out of the house is a challenge. He digs his heels in and refuses to do anything.
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| Posted 11/19/07 5:04 PM |
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