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FlowerWife
Positive Vibrations...
Member since 1/08 8423 total posts
Name:
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Those with Elevated NK Cells
Dr. B called today. He said my immune workup came back with elevated NK (natural killer) cells. Its not really a shock, since its connected to PCOS and the blood clotting issue that I have (one may cause the other, or vice versa).
Anyway, those of you that have this, I have several questions.
1. Was it treated with IVIG intralipids? If so how often? If not what other treatment did you receive?
2. If so what insurance do you have and was it covered?
3. If it wasn’t covered how much did it cost and where did you get it and who administered it?
4. Did you get pregnant and carry to term (or close) as a result of the treatment? if you are being treated for it, is it due to prior m/c or chemicals?
5. Any notable side effects?
Thanks.
Although im not super surprised by this its yet another thing messed up with my body  . But on a happier note at least it’s another treatable cause of my recurrent chemicals/ m/c. I go in to see Dr. B on Saturday so hopefully I can get started on my next cycle soon!!!
Message edited 6/21/2010 5:04:24 PM.
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Posted 6/21/10 4:44 PM  |
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BA2008
Need to find some hope!
Member since 2/08 2485 total posts
Name:
Beth -Ann
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Re: Those with Elevated NK Cells
I guess it all depends on what it actually is? There's elevated overall NK cells, t-cells and others that just confuse me. He usually will start you on intralipid infusion. Its not painful. Some insurance covers it and others don't. Probably start out once a month, you'll get tested after transfer to see how the numbers are. And go from there.
Forgot to add that my insurance covered it. I used Advanced Care (I have Oxford Metro Freedom, basic IF coverage). I am sure without insurance it is around $500 (meds and nurse). But, you can get the meds yourself (with a script of course) and use a nurser to do the IV infusion. Ask Dr. B's office for recommendation. Might be $300.
Good luck.
Message edited 6/21/2010 4:53:46 PM.
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| Posted 6/21/10 4:49 PM |
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FlowerWife
Positive Vibrations...
Member since 1/08 8423 total posts
Name:
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Re: Those with Elevated NK Cells
Posted by BA2008
Probably start out once a month, you'll get tested after transfer to see how the numbers are. And for from there.
Good luck.
thats pretty much exactly what he said.
he just said elevated NK cells and that everything else in that part of the immune workup came back fine.
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| Posted 6/21/10 4:53 PM |
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FlowerWife
Positive Vibrations...
Member since 1/08 8423 total posts
Name:
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Re: Those with Elevated NK Cells
Posted by BA2008
I am sure without insurance it is around $500 (meds and nurse). But, you can get the meds yourself (with a script of course) and use a nurser to do the IV infusion. Ask Dr. B's office for recommendation. Might be $300.
Good luck.
yes they told me around $350 for the nurse to come and do the infusion.
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| Posted 6/21/10 5:05 PM |
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KMCGK
Gotta have faith
Member since 7/09 2176 total posts
Name:
Keep the Faith
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Re: Those with Elevated NK Cells
FM!
I have an Intralipid nurse if you need 
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| Posted 6/21/10 5:43 PM |
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DRMom
Two in Blue
Member since 5/05 20223 total posts
Name:
Melissa
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Re: Those with Elevated NK Cells
Posted by FlowerWife
Dr. B called today. He said my immune workup came back with elevated NK (natural killer) cells. Its not really a shock, since its connected to PCOS and the blood clotting issue that I have (one may cause the other, or vice versa).
Anyway, those of you that have this, I have several questions.
1. Was it treated with IVIG intralipids? If so how often? If not what other treatment did you receive?
2. If so what insurance do you have and was it covered?
3. If it wasn’t covered how much did it cost and where did you get it and who administered it?
4. Did you get pregnant and carry to term (or close) as a result of the treatment? if you are being treated for it, is it due to prior m/c or chemicals?
5. Any notable side effects?
Thanks.
Although im not super surprised by this its yet another thing messed up with my body . But on a happier note at least it’s another treatable cause of my recurrent chemicals/ m/c. I go in to see Dr. B on Saturday so hopefully I can get started on my next cycle soon!!!
1. I did not do IVIG-I took prednisone, vitamin e, lovenox, baby asprin, metanx.
2. My insurance would not pay for it(BCBS) Thats why I didn't do it.
3. NA
4. I did IVF(i had one proven ectopic and 4 losses)
5. NA
Good luck. I took the prednisone to combat the NK's and high ANA. I had a perfect pregnancy but I did get preeclampsia at 33 weeks and delivered at 35.5 weeks. The clotting disorders can increase your risk of preeclampsia though...
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| Posted 6/21/10 7:59 PM |
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lilbean
LIF Adolescent
Member since 1/10 634 total posts
Name:
michelle
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Re: Those with Elevated NK Cells
Posted by DRMom
Posted by FlowerWife
Dr. B called today. He said my immune workup came back with elevated NK (natural killer) cells. Its not really a shock, since its connected to PCOS and the blood clotting issue that I have (one may cause the other, or vice versa).
Anyway, those of you that have this, I have several questions.
1. Was it treated with IVIG intralipids? If so how often? If not what other treatment did you receive?
2. If so what insurance do you have and was it covered?
3. If it wasn’t covered how much did it cost and where did you get it and who administered it?
4. Did you get pregnant and carry to term (or close) as a result of the treatment? if you are being treated for it, is it due to prior m/c or chemicals?
5. Any notable side effects?
Thanks.
Although im not super surprised by this its yet another thing messed up with my body . But on a happier note at least it’s another treatable cause of my recurrent chemicals/ m/c. I go in to see Dr. B on Saturday so hopefully I can get started on my next cycle soon!!!
1. I did not do IVIG-I took prednisone, vitamin e, lovenox, baby asprin, metanx.
2. My insurance would not pay for it(BCBS) Thats why I didn't do it.
3. NA
4. I did IVF(i had one proven ectopic and 4 losses)
5. NA
Good luck. I took the prednisone to combat the NK's and high ANA. I had a perfect pregnancy but I did get preeclampsia at 33 weeks and delivered at 35.5 weeks. The clotting disorders can increase your risk of preeclampsia though...
Are there any risks in the prednisone? Do they work the same, can you choose or does it depend..im confused....
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| Posted 6/21/10 9:54 PM |
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FlowerWife
Positive Vibrations...
Member since 1/08 8423 total posts
Name:
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Re: Those with Elevated NK Cells
i will be doing prednisone as well and i think lovenox, when i start my next cycle.. oh yeah thats in addition to the standard femara/follistim ovulation induction protocol 
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| Posted 6/21/10 9:56 PM |
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lilbean
LIF Adolescent
Member since 1/10 634 total posts
Name:
michelle
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Re: Those with Elevated NK Cells
Posted by FlowerWife
i will be doing prednisone as well and i think lovenox, when i start my next cycle.. oh yeah thats in addition to the standard femara/follistim ovulation induction protocol
i started with o induction...when will he start with the other meds..once im pregnant?
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| Posted 6/21/10 9:59 PM |
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FlowerWife
Positive Vibrations...
Member since 1/08 8423 total posts
Name:
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Re: Those with Elevated NK Cells
Posted by lilbean
Posted by FlowerWife
i will be doing prednisone as well and i think lovenox, when i start my next cycle.. oh yeah thats in addition to the standard femara/follistim ovulation induction protocol
i started with o induction...when will he start with the other meds..once im pregnant?
do you have other known clotting or immune issues or recurrent m/c? thats what these drugs are for.
if you only need O induction you wont need these other meds unless you have other issues that are uncovered down the road. hopefully you don't/won't!!!
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| Posted 6/21/10 10:18 PM |
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lilbean
LIF Adolescent
Member since 1/10 634 total posts
Name:
michelle
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Re: Those with Elevated NK Cells
Posted by FlowerWife
Posted by lilbean
Posted by FlowerWife
i will be doing prednisone as well and i think lovenox, when i start my next cycle.. oh yeah thats in addition to the standard femara/follistim ovulation induction protocol
i started with o induction...when will he start with the other meds..once im pregnant?
do you have other known clotting or immune issues or recurrent m/c? thats what these drugs are for.
if you only need O induction you wont need these other meds unless you have other issues that are uncovered down the road. hopefully you don't/won't!!!
No clotting but i have had a few MC...
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| Posted 6/21/10 10:21 PM |
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FlowerWife
Positive Vibrations...
Member since 1/08 8423 total posts
Name:
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Re: Those with Elevated NK Cells
Posted by lilbean
No clotting but i have had a few MC...
for me dr. b ran the thrombophilia (blood clotting) panel after my first chemical. he ran the immune panel after the second chemical. he said we didnt HAVE to do the immune one now but if there was an issue there that lead to another chemical or m/c, then we would def need to run it. so we didnt wait and we did it, which is what came back with the elevated NK cells.
if i remember correctly you see dr. b as well. i would def talk to him about this stuff. also note that not all insurance covers the testing - i had to pay $180 on the thrombophilia workup (everything but 1 test was covered), and a max of $450 on the immune workup (still waiting to see what the ins. company says on that one).
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| Posted 6/22/10 7:46 AM |
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lilbean
LIF Adolescent
Member since 1/10 634 total posts
Name:
michelle
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Re: Those with Elevated NK Cells
Posted by FlowerWife
Posted by lilbean
No clotting but i have had a few MC...
for me dr. b ran the thrombophilia (blood clotting) panel after my first chemical. he ran the immune panel after the second chemical. he said we didnt HAVE to do the immune one now but if there was an issue there that lead to another chemical or m/c, then we would def need to run it. so we didnt wait and we did it, which is what came back with the elevated NK cells.
if i remember correctly you see dr. b as well. i would def talk to him about this stuff. also note that not all insurance covers the testing - i had to pay $180 on the thrombophilia workup (everything but 1 test was covered), and a max of $450 on the immune workup (still waiting to see what the ins. company says on that one).
Yes-I did all that testing, I also have the elevated k cells...
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| Posted 6/22/10 8:35 AM |
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FlowerWife
Positive Vibrations...
Member since 1/08 8423 total posts
Name:
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Re: Those with Elevated NK Cells
Posted by lilbean
Yes-I did all that testing, I also have the elevated k cells...
ohh.. not sure when you would start if you didn't start at the beginning of your cycle. maybe you should ask him?
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| Posted 6/22/10 1:33 PM |
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curiousO
he is here.. thank you God
Member since 10/07 2344 total posts
Name:
Me
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Re: Those with Elevated NK Cells
no experience, just hugs for you
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| Posted 6/22/10 1:51 PM |
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lilbean
LIF Adolescent
Member since 1/10 634 total posts
Name:
michelle
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Re: Those with Elevated NK Cells
he said once i get preggo, beta at 10 dp iui
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| Posted 6/22/10 7:54 PM |
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