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Would you get genetic testing for Parkinsons?

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Mushesgirl
Too blessed to be stressed

Member since 4/09

6691 total posts

Name:

Would you get genetic testing for Parkinsons?

The Michael J Fox foundation is looking for volunteers of Ashkenazi (eastern European) Jewish descent to study Parkinson's and a genetic mutation.

Would you participate? My uncle had Parkinson's and we are of eastern European Jewish ancestry. I'm on the fence about participating.

Posted 9/15/17 10:25 PM
 
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hmm
Sweet

Member since 1/14

8012 total posts

Name:

Would you get genetic testing for Parkinsons?

no, my mother dad had it. I really dont want to know. It would stress me.

Posted 9/15/17 10:27 PM
 

LuckyStar
LIF Adult

Member since 7/14

7274 total posts

Name:

Would you get genetic testing for Parkinsons?

Yes. That's how scientific advances are made.

Posted 9/15/17 10:42 PM
 

PhyllisNJoe
My Box Is Broken

Member since 6/11

9145 total posts

Name:
Phyllis

Re: Would you get genetic testing for Parkinsons?

I would

Posted 9/16/17 12:12 AM
 

NervousNell
Just another chapter in life..

Member since 11/09

54921 total posts

Name:
..being a mommy and being a wife!

Re: Would you get genetic testing for Parkinsons?

Is there anything you can do to prevent it if they find out that you have the gene?
If not, I am not sure I'd want to live my life waiting for that shoe to drop.
I'd probably rather not know unless of course there was something they could do to prevent it ahead of time

Posted 9/16/17 12:37 AM
 

SLPRunner
LIF Adult

Member since 12/13

1101 total posts

Name:

Would you get genetic testing for Parkinsons?

Hmmm. I'm usually all for that kind of stuff. But being in the medical field and knowing about Parkinson's I'm not sure if I would. I think I would participate to help research, but wouldn't want to know my fate.

Posted 9/16/17 8:30 AM
 

PearlJamChick
No one sings like you anymore.

Member since 7/10

9264 total posts

Name:
Petticoated Swashbuckler

Re: Would you get genetic testing for Parkinsons?

I would, without a doubt.

Posted 9/16/17 8:54 AM
 

BargainMama
LIF Adult

Member since 5/09

15660 total posts

Name:

Re: Would you get genetic testing for Parkinsons?

No...but I don't believe it's genetic. I think there is a heavy link between parkinsons and diet soda (aspartame), along with smoking.

Posted 9/16/17 1:43 PM
 

muffaboo
LIF Adult

Member since 12/10

3797 total posts

Name:

Re: Would you get genetic testing for Parkinsons?

I would.

Posted 9/16/17 5:50 PM
 

Mushesgirl
Too blessed to be stressed

Member since 4/09

6691 total posts

Name:

Re: Would you get genetic testing for Parkinsons?

Interesting mix of replies!!

I have a friend who's family has been inundated by ALS (Lou Gerig Dz). I wonder if her family is in any studies. I will ask her.

I'm leaning towards not participating at this point.

Posted 9/17/17 7:27 AM
 

Lauren82
LIF Adult

Member since 10/06

4580 total posts

Name:
L

Re: Would you get genetic testing for Parkinsons?

I would. I believe that only by continued research will we be able to improve treatment and hopefully cure diseases.

Posted 9/17/17 8:10 AM
 

MrsG823
Just call me Mommy.

Member since 1/11

5570 total posts

Name:
S

Would you get genetic testing for Parkinsons?

I would participate. Can you post the study info?

Posted 9/17/17 9:06 AM
 

jlm2008
LIF Adult

Member since 1/10

5092 total posts

Name:

Would you get genetic testing for Parkinsons?

Yes I would. I have a coworker who is dying from this now. And he didn't smoke or drink diet coke as a previous poster stated.

Posted 9/17/17 12:22 PM
 

DaisyGirl
LIF Adult

Member since 2/08

1650 total posts

Name:

Re: Would you get genetic testing for Parkinsons?

I would. I also have a family member (through marriage) who is dying from this. It is a terrible disease. As unsettling as it would be, I would want to know so I could get my things in order and have a plan for how to handle the progression.

ETA- He also never smoked or drank diet anything. He was one of the healthiest, most active people I ever knew before he got sick. His father also had it and died from it.

Message edited 9/17/2017 3:16:03 PM.

Posted 9/17/17 3:14 PM
 

Mushesgirl
Too blessed to be stressed

Member since 4/09

6691 total posts

Name:

Re: Would you get genetic testing for Parkinsons?

Posted by MrsG823

I would participate. Can you post the study info?



Sure here it is. Should've posted it before didn't think

study

Posted 9/17/17 4:50 PM
 
 

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