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fashiong1rl
LIF Adolescent
Member since 3/14 689 total posts
Name:
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cystic fibrosis
my doctor just called to let me know that my bloodwork showed that i'm a carrier of cystic fibrosis. my husband now has to get bloodwork done.
has anyone had any experience with this?
i'm so upset. i just feel like every week one of these tests comes back with something new for us to worry about 
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Posted 7/1/14 4:12 PM  |
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OhBoyorGirl
LIF Adult
Member since 2/12 1789 total posts
Name:
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Re: cystic fibrosis
I found out I was a carrier for CF after the routine first trimester bloodwork. I know how nerve wracking waiting for your DH's test results is! Try to look at it this way- there's a 50% chance your DH won't be a carrier. And even if he is there is only a 25% chance that your baby will have CF.  Good luck!
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| Posted 7/1/14 4:34 PM |
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MrsT809
LIF Adult
Member since 9/09 12167 total posts
Name:
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Re: cystic fibrosis
Posted by OhBoyorGirl
I found out I was a carrier for CF after the routine first trimester bloodwork. I know how nerve wracking waiting for your DH's test results is! Try to look at it this way- there's a 50% chance your DH won't be a carrier. And even if he is there is only a 25% chance that your baby will have CF. Good luck!
The 25% chance of the baby getting it if both parents are a carrier I agree with. The chance of your DH being a carrier is much less than 50% though! It's more like 1 in 30 so more than likely everything will be fine.
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| Posted 7/1/14 4:38 PM |
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OhBoyorGirl
LIF Adult
Member since 2/12 1789 total posts
Name:
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Re: cystic fibrosis
Posted by MrsT809
Posted by OhBoyorGirl
I found out I was a carrier for CF after the routine first trimester bloodwork. I know how nerve wracking waiting for your DH's test results is! Try to look at it this way- there's a 50% chance your DH won't be a carrier. And even if he is there is only a 25% chance that your baby will have CF. Good luck!
The 25% chance of the baby getting it if both parents are a carrier I agree with. The chance of your DH being a carrier is much less than 50% though! It's more like 1 in 30 so more than likely everything will be fine.
Even better! 
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| Posted 7/1/14 4:40 PM |
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babyvibes
LIF Adult
Member since 7/13 1350 total posts
Name:
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Re: cystic fibrosis
Yes. I found out I was a carrier after my initial blood work. My DH was tested and his tests came back as NOT a carrier. When I went to the genetic counselor, they said even though DH didn't come up as a carrier, there is a possibility he COULD still be a carrier because there are so many different CF genes and the test they do at the lab doesn't test for every single one. There are more extensive tests he could've had done but we chose not to do them.
DD's newborn screening blood test came back completely normal for everything 
I know it's nerve-wracking but try not to stress it. Your DH probably isn't a carrier
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| Posted 7/1/14 5:00 PM |
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fashiong1rl
LIF Adolescent
Member since 3/14 689 total posts
Name:
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Re: cystic fibrosis
Posted by OhBoyorGirl
I found out I was a carrier for CF after the routine first trimester bloodwork. I know how nerve wracking waiting for your DH's test results is! Try to look at it this way- there's a 50% chance your DH won't be a carrier. And even if he is there is only a 25% chance that your baby will have CF. Good luck!
thank you!
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| Posted 7/1/14 5:13 PM |
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fashiong1rl
LIF Adolescent
Member since 3/14 689 total posts
Name:
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Re: cystic fibrosis
Posted by MrsT809
Posted by OhBoyorGirl
I found out I was a carrier for CF after the routine first trimester bloodwork. I know how nerve wracking waiting for your DH's test results is! Try to look at it this way- there's a 50% chance your DH won't be a carrier. And even if he is there is only a 25% chance that your baby will have CF. Good luck!
The 25% chance of the baby getting it if both parents are a carrier I agree with. The chance of your DH being a carrier is much less than 50% though! It's more like 1 in 30 so more than likely everything will be fine.
i hope so!
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| Posted 7/1/14 5:13 PM |
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fashiong1rl
LIF Adolescent
Member since 3/14 689 total posts
Name:
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Re: cystic fibrosis
Posted by babyvibes
Yes. I found out I was a carrier after my initial blood work. My DH was tested and his tests came back as NOT a carrier. When I went to the genetic counselor, they said even though DH didn't come up as a carrier, there is a possibility he COULD still be a carrier because there are so many different CF genes and the test they do at the lab doesn't test for every single one. There are more extensive tests he could've had done but we chose not to do them.
DD's newborn screening blood test came back completely normal for everything
I know it's nerve-wracking but try not to stress it. Your DH probably isn't a carrier
what kind of test does my husband have to take.. bloodwork? the office is saying it's saliva. i'm waiting to hear back from the doctor.
Message edited 7/1/2014 5:14:48 PM.
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| Posted 7/1/14 5:14 PM |
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OhBoyorGirl
LIF Adult
Member since 2/12 1789 total posts
Name:
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Re: cystic fibrosis
Posted by fashiong1rl
what kind of test does my husband have to take.. bloodwork? the office is saying it's saliva. i'm waiting to hear back from the doctor.
It was a blood test for my DH, and results took a week or so to come back. This was 2+ years ago (my first pregnancy), maybe there are other options like a cheek swab now, idk.
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| Posted 7/1/14 5:18 PM |
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fashiong1rl
LIF Adolescent
Member since 3/14 689 total posts
Name:
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Re: cystic fibrosis
Posted by OhBoyorGirl
Posted by fashiong1rl
what kind of test does my husband have to take.. bloodwork? the office is saying it's saliva. i'm waiting to hear back from the doctor.
It was a blood test for my DH, and results took a week or so to come back. This was 2+ years ago (my first pregnancy), maybe there are other options like a cheek swab now, idk.
yea, i would assume it's a blood test too b/c that's what i took to find out.. i'm going to see what the doctor says.
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| Posted 7/1/14 5:20 PM |
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OhMaybeBaby
LIF Infant
Member since 1/13 337 total posts
Name:
J
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Re: cystic fibrosis
I am also a carrier. Thankfully, my husband is not. My sister and her husband were both carriers however and it caused a lot of stress for them during her pregnancy.
By the grace of god the baby is totally fine and not even a carrier. Good luck, chances of you both being carriers is low.
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| Posted 7/1/14 5:44 PM |
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babyvibes
LIF Adult
Member since 7/13 1350 total posts
Name:
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Re: cystic fibrosis
Posted by fashiong1rl
Posted by babyvibes
Yes. I found out I was a carrier after my initial blood work. My DH was tested and his tests came back as NOT a carrier. When I went to the genetic counselor, they said even though DH didn't come up as a carrier, there is a possibility he COULD still be a carrier because there are so many different CF genes and the test they do at the lab doesn't test for every single one. There are more extensive tests he could've had done but we chose not to do them.
DD's newborn screening blood test came back completely normal for everything
I know it's nerve-wracking but try not to stress it. Your DH probably isn't a carrier
what kind of test does my husband have to take.. bloodwork? the office is saying it's saliva. i'm waiting to hear back from the doctor.
Yep, just simple blood work. Results took less than a week.
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| Posted 7/1/14 6:14 PM |
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BabyDayz
LIF Adolescent
Member since 1/11 719 total posts
Name:
Samantha
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cystic fibrosis
2 of my friends found out they were carriers, and their husbands were not. I think its more common than we realize. Youre prob fine!
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| Posted 7/2/14 12:21 PM |
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skinny
3 boys and a princess!
Member since 11/08 8178 total posts
Name:
Momma
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Re: cystic fibrosis
I'm a carrier. I was freaking out waiting for Dh's results to come back and thankfully, they were negative. I think it was just a simple blood test----if it was anything more than that, he'd still be crying over it.
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| Posted 7/2/14 1:10 PM |
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Samira0407
Love being a Mom
Member since 6/08 4030 total posts
Name:
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Re: cystic fibrosis
I hope everything comes back ok for DH testing. HUGS!
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| Posted 7/2/14 1:25 PM |
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Snoopy36
LIF Adolescent
Member since 12/13 665 total posts
Name:
Caille
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Re: cystic fibrosis
yup im a carrier as well, but thankfully my husband is not!
test was a blood test & results came back in a week
good luck!!!
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| Posted 7/3/14 8:34 AM |
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TooSoontoTell
LIF Adolescent
Member since 11/11 501 total posts
Name:
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Re: cystic fibrosis
Posted by babyvibes
Posted by fashiong1rl
Posted by babyvibes
Yes. I found out I was a carrier after my initial blood work. My DH was tested and his tests came back as NOT a carrier. When I went to the genetic counselor, they said even though DH didn't come up as a carrier, there is a possibility he COULD still be a carrier because there are so many different CF genes and the test they do at the lab doesn't test for every single one. There are more extensive tests he could've had done but we chose not to do them.
DD's newborn screening blood test came back completely normal for everything
I know it's nerve-wracking but try not to stress it. Your DH probably isn't a carrier
what kind of test does my husband have to take.. bloodwork? the office is saying it's saliva. i'm waiting to hear back from the doctor.
Yep, just simple blood work. Results took less than a week.
Many offices now do the cheek swab. My DH was tested with the cheek swab. So no bloodwork is correct.
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| Posted 7/4/14 3:25 PM |
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babyvibes
LIF Adult
Member since 7/13 1350 total posts
Name:
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Re: cystic fibrosis
Posted by TooSoontoTell
Posted by babyvibes
Posted by fashiong1rl
Posted by babyvibes
Yes. I found out I was a carrier after my initial blood work. My DH was tested and his tests came back as NOT a carrier. When I went to the genetic counselor, they said even though DH didn't come up as a carrier, there is a possibility he COULD still be a carrier because there are so many different CF genes and the test they do at the lab doesn't test for every single one. There are more extensive tests he could've had done but we chose not to do them.
DD's newborn screening blood test came back completely normal for everything
I know it's nerve-wracking but try not to stress it. Your DH probably isn't a carrier
what kind of test does my husband have to take.. bloodwork? the office is saying it's saliva. i'm waiting to hear back from the doctor.
Yep, just simple blood work. Results took less than a week.
Many offices now do the cheek swab. My DH was tested with the cheek swab. So no bloodwork is correct.
My husband is jealous lol. He HATES needles/getting blood drawn. He didn't even want to get tested but did it because I really wanted him to.
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| Posted 7/4/14 5:05 PM |
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