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Results from ultra screen

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jax1
Love my baby girl!!!

Member since 3/09

3405 total posts

Name:
Jackie

Results from ultra screen

Dr told me that there was a 1 in 78 chance of our baby having downs syndrome. She wants me to go to a genetic counselor and get the maternit21 test. I will not get a cvs or amino. I know sooo many people get false screenings so I'm praying for that. I couldn't stop crying at first, but I'm just going to be positive for now. The waiting will be the worst part.

Anyone go through this? I wasn't even gonna get the test because of all the false positives.

Posted 11/15/13 6:53 PM
 
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jax1023
LIF Adult

Member since 3/07

1165 total posts

Name:
Jackie

Results from ultra screen

This is the reason I refused these tests.

The only advice I have is to think of the positive. It's basically saying if you had 78 babies, 77 would be just fine. It's still a really small chance that something is wrong.

Posted 11/15/13 7:00 PM
 

StaceyWill
It's a girl!!!

Member since 6/10

21539 total posts

Name:
Stacey

Results from ultra screen

My DD had a 1:60-something chance of having Downs. She was not born with it. I really hate some of those tests, because they scare the crap out of you.

Posted 11/15/13 7:29 PM
 

MrsG823
Just call me Mommy.

Member since 1/11

5570 total posts

Name:
S

Results from ultra screen

There is a 1% chance of your baby being born with Down's syndrome THEREFORE there is a 99% chance that your baby will NOT have Down's syndrome. Meet with a genetic counselor-I found it very reassuring. My genetic counselor advised against getting the ultra screen and the MaterniT21 test since both are screening tests.

Posted 11/15/13 8:45 PM
 

Pinkisles
<3

Member since 11/13

2868 total posts

Name:

Results from ultra screen

My test came back with a chance of downs (I was not given a percentage). I had to take the materniT21 test at my obgyn. He called two days later and said he was unable to collect enough blood. I had to go to Winthrop perinatal unit to get the test again. A week later of waiting, and it was told there wasn't enough fetal DNA in the blood. I was so upset and angry.

They wanted me to go back to Winthrop to get the test again. I was stuck 10 times by 3 different nurses and they could not get more than a few drops of blood from me. One nurse kept pressuring me to get an amino (which I did not want, and the dr told me he didn't want to do!). She kept saying it over and over and then asked me if I was planning to terminate my pregnancy. I was so furious that she had the audacity to ask me that!

The dr asked me to return the next day and I told him I refused to see that nurse from the previous day. I was in tears all night because of her. He assured me I wouldn't have to, met meant he parking lot and brought me up to the oncology unit where two more nurses tried and one FINALLY got enough blood to fill two vials to perform the Verifi test. A week later the test came back with no genetic abnormalities.

It was very stressful and trying but I was glad that my little guy was fine. I pray you have an easier experience than me and pray for good results!

Message edited 11/16/2013 9:47:54 PM.

Posted 11/16/13 9:47 PM
 

jax1
Love my baby girl!!!

Member since 3/09

3405 total posts

Name:
Jackie

Re: Results from ultra screen

Posted by Pinkisles

My test came back with a chance of downs (I was not given a percentage). I had to take the materniT21 test at my obgyn. He called two days later and said he was unable to collect enough blood. I had to go to Winthrop perinatal unit to get the test again. A week later of waiting, and it was told there wasn't enough fetal DNA in the blood. I was so upset and angry.

They wanted me to go back to Winthrop to get the test again. I was stuck 10 times by 3 different nurses and they could not get more than a few drops of blood from me. One nurse kept pressuring me to get an amino (which I did not want, and the dr told me he didn't want to do!). She kept saying it over and over and then asked me if I was planning to terminate my pregnancy. I was so furious that she had the audacity to ask me that!

The dr asked me to return the next day and I told him I refused to see that nurse from the previous day. I was in tears all night because of her. He assured me I wouldn't have to, met meant he parking lot and brought me up to the oncology unit where two more nurses tried and one FINALLY got enough blood to fill two vials to perform the Verifi test. A week later the test came back with no genetic abnormalities.

It was very stressful and trying but I was glad that my little guy was fine. I pray you have an easier experience than me and pray for good results!



wow what a horrible experience. I can't believe that nurse. Im so sorry you had to go through that. Thank you for sharing. Glad all was well with your baby!!

Posted 11/17/13 1:52 PM
 

MrsP6311
LIF Toddler

Member since 6/11

494 total posts

Name:

Re: Results from ultra screen

My nt scan and bloodwork put our risk at 1/11!!!!

I ended up having a cvs and the maternit21 test. All came back negative. It was an extremely difficult time in my pregnancy
But I now look at my 16 day old DD and just smile and am very very thankful she's ok

Posted 11/17/13 2:22 PM
 

islandersgirl74
Love Being A Mommy!

Member since 6/06

5804 total posts

Name:
Michelle

Re: Results from ultra screen

I also got the MaterniT21 at Winthrop Perinatal. They also found markers from our test for Downs Syndrome even though we never got percentages. The test itself for me anyway was painless. A quick blood test. It took 10 days to get the results and that was the hardest part. I didn't sleep that whole time and it was my only thought 24/7. It was a difficult time because only my husband and I and a friend from work knew. The test did come back negative.

Posted 11/17/13 3:09 PM
 

alli3131
Peanut is here!!!!!!

Member since 5/09

18388 total posts

Name:
Allison

Results from ultra screen

I know plenty if people who get results like that with the NT. I hate the test. However I would not get the MaterniT 21 because that will also only give you odds.

I had an amnio so if you do have any ques feel free.

Posted 11/17/13 4:40 PM
 

jax1
Love my baby girl!!!

Member since 3/09

3405 total posts

Name:
Jackie

Re: Results from ultra screen

Thanks, ladies. All of your stories make me feel better. I wish I never got this test. It seems like there are soooo many women who had false results from the screening. It's ridiculous. The waiting is torture. I tried making an appointment with the genetic counselor Friday so I could get the Maternit21 test, but no answer. Im hoping to make an appt tomorrow for this week and then the dreaded waiting.

Thanks for sharing your stories.

Posted 11/17/13 8:02 PM
 

myboysmyheart
LIF Adult

Member since 1/12

2743 total posts

Name:
K

Results from ultra screen

We went through the same thing with ds2. I was a wreck. The genetic counseling didn't help. I opted not to do further testing. My ds was born healthy. Don't stress!

Posted 11/17/13 8:23 PM
 

Summergirl
LIF Infant

Member since 3/12

262 total posts

Name:

Results from ultra screen

I also had a terrible time with the NT.The blood test showed a 1 in 68 chance of Down's Syndrome.We saw a genetic counselor ,too. We opted out of an amnio or cvs . Actually, come to think of it , it was almost 2 years ago that we were told this. I remember because I found out after Thanksgiving but before Christmas and it almost ruined the holidays for me, I was so stressed. The week of Christmas the results of the 20 week blood tests came back with 1 in 240 odds so I was finally able to relax. My DD does not have Down's Syndrome. I spoke to so many people with similar horror stories of false positives when I went through this. Good luck and many prayers .

Posted 11/17/13 10:34 PM
 

NewMrs7312
LIF Adult

Member since 12/12

977 total posts

Name:

Re: Results from ultra screen

No experience but just sending you hugs and positive thoughts!!! Chat Icon Chat Icon

Posted 11/17/13 11:23 PM
 

Pinkisles
<3

Member since 11/13

2868 total posts

Name:

Re: Results from ultra screen

Posted by jax1

Thanks, ladies. All of your stories make me feel better. I wish I never got this test. It seems like there are soooo many women who had false results from the screening. It's ridiculous. The waiting is torture. I tried making an appointment with the genetic counselor Friday so I could get the Maternit21 test, but no answer. Im hoping to make an appt tomorrow for this week and then the dreaded waiting.

Thanks for sharing your stories.


Ask for the Verifi test if you can. It's just as accurate, and only requires one vial of blood and you get the results in 5-7 days rather than 7-10 days.

Posted 11/18/13 8:54 AM
 
 

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