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Lillies
Grateful for my babies!
Member since 2/12 4571 total posts
Name:
<3
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****What would you do? (Don't quote)****
So many of you know my story.. I just need some advice even though me and DH pretty much know what we are going to do..
I have had bad endo my whole life with scarring and adhesions. Had surgery to remove but LT tube is still badly scarred and blocked. I also have low AMH due to the endo and have been told my egg quality may be compromised. I have been going to my RE's office since mid Jan and eventhough I believe my RE is brilliant, she doesn't quite treat my case as an individual. The few times that I have met with her, she has not looked though my chart, is unfamiliar with certain things and has to look them up as I talk and is always rushed. The office is a bit of a baby factory and they are giving me good treatment but I really feel my case goes a bit beyond the same protocol as everyone else. She wanted to cancel this cycle completely bc she did not think I was ovulating and "it was a waste" yet it turns out I did ovulate and did get pregnant (a chemical).. I think I really want a RE with individual care and someone who sees the glass half full instead of half empty, KWIM??? Like, the DR who did my IUI looked through my chart and said "Oh, you have a situation! It could either be an egg or a cyst but from all of the hormone levels and your pain, we are going to say it is an egg and aim to get you pregnant!!" while she looked at the same info and said-- we should cancel the cycle bc you have no chance. This REALLY bothers DH. He is upset that I am losing this pregnancy but more upset that my RE did not give it a chance or even look through my chart to give proper assessment.
What would you do? Obviously, it is still early and this is only my second failed IUI but am I being a bit oversensitive to the whole ordeal? Should I try out another cycle with them? I just feel the nurses are the saving graces of that office and I hardly have DR time and if I do, she is rushed and unfamiliar with my case. I know I got pregnant these last two cycles and I have no answers as to why they are not sticking! It's making me so upset.
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Posted 4/11/13 1:31 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
starr
little whale on the way
Member since 6/10 1288 total posts
Name:
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****What would you do? (Don't quote)****
ye I would look into another RE. maybe also search out a specialist for ur case? someone that is actually works not only to achieve preg but for all women with same issues?
I totally know what u mean abt "baby factory" vibe. I feel that abt my RE office, but the nurses are pretty amazing and my dr eventho I dont see him never lets me feel rushed. so I am fine with it. but then again both of us dont have any issues like u do. so not sure how I felt if I was dealing with what u are experiencing.
def follow up with whatever rec's u get on ur other post it doesnt hurt to consult other drs and see what perspective they have
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| Posted 4/11/13 2:12 PM |
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Lillies
Grateful for my babies!
Member since 2/12 4571 total posts
Name:
<3
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Re: ****What would you do? (Don't quote)****
Thank you 
I don't want to look like a big baby but I am seriously over this office.
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| Posted 4/11/13 2:17 PM |
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APT910
Let It Be
Member since 2/11 5021 total posts
Name:
Ashley
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Re: ****What would you do? (Don't quote)****
I think you should absolutely look into a new RE. You need to be completely comfortable and confident with your doctors, especially with all the stress that infertility brings.
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| Posted 4/11/13 2:23 PM |
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PhyllisNJoe
My Box Is Broken
Member since 6/11 9145 total posts
Name:
Phyllis
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Re: ****What would you do? (Don't quote)****
I'd say go to a new RE as well. You have be 100% comfortable and confident in your Dr. and your care. If you aren't, then move on.
I know what you mean about RSofNY. As much as I love Dr. Stelling & started to like Dr. Halfen, when I had to go to their bigger offices (Mineola & Stonybrook, it seemed "baby factory-ish" and they always went over the chart with each question to see what I was talking about. I mean, I was there 2x a week, you don't know 6 months later that I have endo and low AMH?
They did get me pregnant (ectopic) and they were very nonchalant about the loss and just using the same protocol again.
We are taking a break and if I need an RE again, I may change as well.
Good luck in your search and I hope you find a place you feel great with!
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| Posted 4/11/13 2:46 PM |
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Lala08
2 Princesses coming soon!
Member since 12/12 1539 total posts
Name:
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Re: ****What would you do? (Don't quote)****
 Definitely switch if you don't feel comfortable. I happen to like my office (Stony Brook) and that's why I continue to stay. I trust Halfen even though technically I was taken over by Stelling. If you can't see one of them for a consult then maybe look somewhere else. Look up San Roman. I think he is now with North Shore. If I ever leave here I am going to him again (he was my orig dr)
As far as your chemical, there is nothing they can do to help you keep it. It is either not implanting properly or there are chromosomal issues with it. But as I along with everyone else has said, if you have that many concerns then maybe it is time to look elsewhere. I also think that 2 failed IUI's is a little soon but on the other hand I would hate for you to feel like you are not getting the care you deserve.
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| Posted 4/11/13 3:34 PM |
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Lillies
Grateful for my babies!
Member since 2/12 4571 total posts
Name:
<3
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Re: ****What would you do? (Don't quote)****
Posted by Lala08
Definitely switch if you don't feel comfortable. I happen to like my office (Stony Brook) and that's why I continue to stay. I trust Halfen even though technically I was taken over by Stelling. If you can't see one of them for a consult then maybe look somewhere else. Look up San Roman. I think he is now with North Shore. If I ever leave here I am going to him again (he was my orig dr)
As far as your chemical, there is nothing they can do to help you keep it. It is either not implanting properly or there are chromosomal issues with it. But as I along with everyone else has said, if you have that many concerns then maybe it is time to look elsewhere. I also think that 2 failed IUI's is a little soon but on the other hand I would hate for you to feel like you are not getting the care you deserve.
I totally know they can't do anything with a chemical but DH is so upset that she gave up on a good cycle just bc she didn't look outside normal protocol. I'm glad that we decided to do the IUI anyway bc now she will know to look outside of the box sometimes!!!! I just got AF so I am scheduling my CD monitoring as usual but will start looking elsewhere. Stelling is wonderful! I wish he was in the mineola office more!
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| Posted 4/11/13 3:40 PM |
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IVFmiracle
Complete
Member since 12/12 4088 total posts
Name:
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Re: ****What would you do? (Don't quote)****
I think that you should go for a second opinion.
What happened with the beta this morning.
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| Posted 4/11/13 3:43 PM |
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mrsanonymous
LIF Adolescent
Member since 6/12 828 total posts
Name:
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Re: ****What would you do? (Don't quote)****
Coming to you as someone who has been through a VERY similar situation. The only difference is mine were failed fresh and frozen IVF cycles. I was at a 'baby factory' as well. I felt a loyalty to them because I really liked the nurses there but at the end of the day I have a unique case and I feel I needed a closer look by a doctor. I went for a second opinion at another 'baby factory' and was about to switch to them only because the doctor I consulted with said some of the things I was hoping to hear. But, there was a turn of events (insurance related) that led me to a one-on-one practice where I sit with and talk to the big guy himself (Dr. San Roman) EVERY SINGLE visit. He knows who I am the second he walks in the door, doesn't even need to review my chart (though he does just to be 100%). While I'm not pg yet....just started stimming...I can tell you changing to this doc has been good for my soul LoL. My stress and nerves are a lot lower this time and even if it doesn't work (God willing, it does) I feel like he is giving my case the attention it needs and it won't be a failure of lack of involvement but rather nature's course. I have to say, if the whole insurance thing didn't happen I would have likely stuck where I was and given it another chance but I am so glad I didn't. Everyone's story is different - the baby factories work for TONS of people and I would not put them down. I just don't think it was right for me and finding my right fit has been such a better experience. Moral of the story - go with your gut. You should be comfortable with every visit (maybe not physically...but mentally). GL!
Message edited 4/11/2013 3:47:22 PM.
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| Posted 4/11/13 3:43 PM |
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IveGotAFeeling
Always look on the bright side
Member since 1/12 2286 total posts
Name:
of life!
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Re: ****What would you do? (Don't quote)****
If you're not comfortable there, you should definitely go and get a 2nd opinion. I"m sorry you're going through this
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| Posted 4/11/13 4:47 PM |
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Lala08
2 Princesses coming soon!
Member since 12/12 1539 total posts
Name:
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Re: ****What would you do? (Don't quote)****
Posted by mrsanonymous
Coming to you as someone who has been through a VERY similar situation. The only difference is mine were failed fresh and frozen IVF cycles. I was at a 'baby factory' as well. I felt a loyalty to them because I really liked the nurses there but at the end of the day I have a unique case and I feel I needed a closer look by a doctor. I went for a second opinion at another 'baby factory' and was about to switch to them only because the doctor I consulted with said some of the things I was hoping to hear. But, there was a turn of events (insurance related) that led me to a one-on-one practice where I sit with and talk to the big guy himself (Dr. San Roman) EVERY SINGLE visit. He knows who I am the second he walks in the door, doesn't even need to review my chart (though he does just to be 100%). While I'm not pg yet....just started stimming...I can tell you changing to this doc has been good for my soul LoL. My stress and nerves are a lot lower this time and even if it doesn't work (God willing, it does) I feel like he is giving my case the attention it needs and it won't be a failure of lack of involvement but rather nature's course. I have to say, if the whole insurance thing didn't happen I would have likely stuck where I was and given it another chance but I am so glad I didn't. Everyone's story is different - the baby factories work for TONS of people and I would not put them down. I just don't think it was right for me and finding my right fit has been such a better experience. Moral of the story - go with your gut. You should be comfortable with every visit (maybe not physically...but mentally). GL!
Love San Roman. He was the reason I came to RSNY. I was devastated when he left. Is he only in hauppauge? I always wondered if he would take my ins.
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| Posted 4/11/13 5:22 PM |
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PennyCat
Just call me mommy :)
Member since 7/08 19084 total posts
Name:
Jib
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Re: ****What would you do? (Don't quote)****
Go to a different office, preferably one that will run routine betas at the end of EACH cycle  
Seriously though, if you're not happy NOW, don't waste anymore time.
eta: sorry, I just went through and read your post in entirety, and crap I really am sorry about the chemical this cycle  Like I said earlier, I absolutely think you should switch REs, not just to one that will run betas routinely like I said - but also one who will give you personalized attention, get to know you as a PERSON and your case, and honestly at this point someone who will also run a RPL (recurrent pregnancy loss) panel.
You need to take the bull by the horns here and it seems like that office just wasn't being proactive enough.
Message edited 4/11/2013 6:40:25 PM.
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| Posted 4/11/13 6:36 PM |
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TyReseGreen
Lil Prince is here
Member since 8/11 6338 total posts
Name:
Theresa
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****What would you do? (Don't quote)****
I suggest on your next cycle to take a steroid such as Prednisone. I think with me my body was attacking my embryos reason why they probably didn't stick until my last cycle when I was on prednisone so my body wouldn't attack and I am 15 weeks preggo now.
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| Posted 4/11/13 6:57 PM |
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Lillies
Grateful for my babies!
Member since 2/12 4571 total posts
Name:
<3
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Re: ****What would you do? (Don't quote)****
Posted by TyReseGreen
I suggest on your next cycle to take a steroid such as Prednisone. I think with me my body was attacking my embryos reason why they probably didn't stick until my last cycle when I was on prednisone so my body wouldn't attack and I am 15 weeks preggo now.
What was your diagnosis that causes this??? Now I am nervous!
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| Posted 4/11/13 7:16 PM |
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mrsanonymous
LIF Adolescent
Member since 6/12 828 total posts
Name:
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Re: ****What would you do? (Don't quote)****
Posted by Lala08
Posted by mrsanonymous
Coming to you as someone who has been through a VERY similar situation. The only difference is mine were failed fresh and frozen IVF cycles. I was at a 'baby factory' as well. I felt a loyalty to them because I really liked the nurses there but at the end of the day I have a unique case and I feel I needed a closer look by a doctor. I went for a second opinion at another 'baby factory' and was about to switch to them only because the doctor I consulted with said some of the things I was hoping to hear. But, there was a turn of events (insurance related) that led me to a one-on-one practice where I sit with and talk to the big guy himself (Dr. San Roman) EVERY SINGLE visit. He knows who I am the second he walks in the door, doesn't even need to review my chart (though he does just to be 100%). While I'm not pg yet....just started stimming...I can tell you changing to this doc has been good for my soul LoL. My stress and nerves are a lot lower this time and even if it doesn't work (God willing, it does) I feel like he is giving my case the attention it needs and it won't be a failure of lack of involvement but rather nature's course. I have to say, if the whole insurance thing didn't happen I would have likely stuck where I was and given it another chance but I am so glad I didn't. Everyone's story is different - the baby factories work for TONS of people and I would not put them down. I just don't think it was right for me and finding my right fit has been such a better experience. Moral of the story - go with your gut. You should be comfortable with every visit (maybe not physically...but mentally). GL!
Love San Roman. He was the reason I came to RSNY. I was devastated when he left. Is he only in hauppauge? I always wondered if he would take my ins.
He is in Hauppauge six days a week. I've had both morning and evening appts with him there. Though I do think he goes to Manhasset during the day for procedures sometimes Inot 100% sure on that but I think I remember him saying that once) but he only takes regular appts (new patients, monitoring etc) in Hpg. Give the office a call its worth chking into if you really liked him, his whole team of nurses (Dawn, Emily etc) are there with him. GL!
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| Posted 4/11/13 7:57 PM |
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PennyCat
Just call me mommy :)
Member since 7/08 19084 total posts
Name:
Jib
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Re: ****What would you do? (Don't quote)****
Posted by Lillies
Posted by TyReseGreen
I suggest on your next cycle to take a steroid such as Prednisone. I think with me my body was attacking my embryos reason why they probably didn't stick until my last cycle when I was on prednisone so my body wouldn't attack and I am 15 weeks preggo now.
What was your diagnosis that causes this??? Now I am nervous!
There are lots of things that are done for this issue but before worrying about it, you should get an RPL panel complete with NK cells to figure out if this is your issue. At almost 21weeks, I have been off prednisone somewhere in the first tri but still getting intralipid infusions. It's too quick to assume this is your problem, as there are many reasons for multiple losses. I'd get the info first before jumping to conclusions. Dr.Braverman or Dr.T at SIRM would both be good choice - Or, you could go to Dr.Kofinas and get his workup.
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| Posted 4/11/13 8:42 PM |
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PitterPatter11
Baby Boy is Here!
Member since 5/11 7632 total posts
Name:
Momma <3
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Re: ****What would you do? (Don't quote)****
A second opinion never hurts...
Good Luck!
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| Posted 4/11/13 9:11 PM |
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pp1107
LIF Adolescent
Member since 1/08 831 total posts
Name:
P
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Re: ****What would you do? (Don't quote)****
You do not look like a big baby at all!!!! If you do not feel comforatble you should switch. I have switched doctors multiple times. It is always good to get other opinions. There are multiple things to look at when picking a RE. Location and montoring hours (unfortunately because we have to go so often, especially if you are working), ivf stats (especially for your age group and diagnosis), protocols, insurance, pricing (especially if you have no coverage), and who you feel most comfortable with. I went to several different doctors for consults and then made my decision.
Good luck!!!!
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| Posted 4/11/13 10:20 PM |
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hope123
LIF Adult
Member since 2/08 1097 total posts
Name:
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****What would you do? (Don't quote)****
Sorry about the chemical. I would switch. Your current RE not only lacks compassion but doesn't look like a good RE. Best of luck with everything!!
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| Posted 4/12/13 1:30 AM |
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