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Serendipity
Summer!
Member since 4/07 7631 total posts
Name:
PrayingWishingHopingALOT
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Ladies who have thrombophilia please come in
I have thrombophilia. Was fortunately diagnosed prior to my first pregnancy. I had a healthy baby born in 2009. However I did develop some o the complications associated with thrombophilia in my first pregnancy. (sub chorionic bleed, preeclampsia at 36 weeks).
I have to switch my dr's now ( I saw both high risk and a separate OB) Bc of insurance.
I need to know what combination of dr those of you with thrombophilia see? What high risk and OB?
And to be more specific I need dr's that deliver in north shore or LIJ since I work for the system.
Does anyone have names??
First pregnancy I did everything at winthrop.
I am not pregnant YET but I'm concerned Bc last time i had everything squared away before I got pregnant. And now I have to switch everything.
I will need a c section again, I am 4 years older, weigh more than when I got pregnant the first time 
I was taken out of work last time as well at 16 weeks on modified bed rest.
So I am a nervous wreck already and I need to get things in order.
Thanks for listening and thanks for the advice!
Message edited 2/22/2013 7:19:56 AM.
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Posted 2/22/13 7:17 AM  |
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TyReseGreen
Lil Prince is here
Member since 8/11 6338 total posts
Name:
Theresa
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Ladies who have thrombophilia please come in
Did you ever contact Dr Victor Rosenberg at North Shore Maternal Fetal Medicine? You can do a pre-conception consult with any of the docs in his office(they are all MFM) and then have them refer you to an OB which will probably be one of the docs at North Shore Women's Health across the hall. Go to northshorelij.com for further info
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| Posted 2/22/13 7:27 AM |
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Serendipity
Summer!
Member since 4/07 7631 total posts
Name:
PrayingWishingHopingALOT
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Re: Ladies who have thrombophilia please come in
Posted by TyReseGreen
Did you ever contact Dr Victor Rosenberg at North Shore Maternal Fetal Medicine? You can do a pre-conception consult with any of the docs in his office(they are all MFM) and then have them refer you to an OB which will probably be one of the docs at North Shore Women's Health across the hall. Go to northshorelij.com for further info
It's funny I did and I spoke to a Loius over there and she must of called me back 4 times this week and there seemed to be so much confusion with making an consultation appt. she said she wouldn't be able to until April and would call me back in March. (she was trying to make it with Rosenberg).
Who are the OBs they use?
Message edited 2/22/2013 7:34:29 AM.
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| Posted 2/22/13 7:31 AM |
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TyReseGreen
Lil Prince is here
Member since 8/11 6338 total posts
Name:
Theresa
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Re: Ladies who have thrombophilia please come in
Posted by Serendipity
Posted by TyReseGreen
Did you ever contact Dr Victor Rosenberg at North Shore Maternal Fetal Medicine? You can do a pre-conception consult with any of the docs in his office(they are all MFM) and then have them refer you to an OB which will probably be one of the docs at North Shore Women's Health across the hall. Go to northshorelij.com for further info
It's funny I did and I spoke to a Loius over there and she must of called me back 4 times this week and there seemed to be so much confusion with making an consultation appt. she said she wouldn't be able to until April and would call me back in March. (she was trying to make it with Rosenberg).
Who are the OBs they use?
Dr Benjamin Goldman,
Dr Valerie Muoio
Dr Jeanne Rohan(currently on maternity leave)
Dr Teresa Lazar
Dr Audrey Murray
Dr Kuno
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| Posted 2/22/13 8:06 AM |
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Serendipity
Summer!
Member since 4/07 7631 total posts
Name:
PrayingWishingHopingALOT
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Re: Ladies who have thrombophilia please come in
Posted by TyReseGreen
Posted by Serendipity
Posted by TyReseGreen
Did you ever contact Dr Victor Rosenberg at North Shore Maternal Fetal Medicine? You can do a pre-conception consult with any of the docs in his office(they are all MFM) and then have them refer you to an OB which will probably be one of the docs at North Shore Women's Health across the hall. Go to northshorelij.com for further info
It's funny I did and I spoke to a Loius over there and she must of called me back 4 times this week and there seemed to be so much confusion with making an consultation appt. she said she wouldn't be able to until April and would call me back in March. (she was trying to make it with Rosenberg).
Who are the OBs they use?
Dr Benjamin Goldman,
Dr Valerie Muoio
Dr Jeanne Rohan(currently on maternity leave)
Dr Teresa Lazar
Dr Audrey Murray
Dr Kuno
Ok yes I am on the site. Not one of these dr's sound familar to me lol. Anyone use them? Experience?
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| Posted 2/22/13 9:00 AM |
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TyReseGreen
Lil Prince is here
Member since 8/11 6338 total posts
Name:
Theresa
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Re: Ladies who have thrombophilia please come in
Rohan delivered me in 2007, but that was when she was affiliated with Winthrop! She is very knowledgable. Dr Vohra who works with Rosenberg delivered DS in 2004. I called Dr Rohan to use her for this pregnancy but she is on leave so in the end I decided to go to Rohan's old practice that's affiliated with Winthrop but they are high risk as well.
If I were you I would just ask Dr Rosenbergs office to see which other practice they would recommend. I am quite sure they work with other doctors such as Dr Trongone.
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| Posted 2/22/13 9:16 AM |
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Serendipity
Summer!
Member since 4/07 7631 total posts
Name:
PrayingWishingHopingALOT
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Re: Ladies who have thrombophilia please come in
Posted by TyReseGreen
Rohan delivered me in 2007, but that was when she was affiliated with Winthrop! She is very knowledgable. Dr Vohra who works with Rosenberg delivered DS in 2004. I called Dr Rohan to use her for this pregnancy but she is on leave so in the end I decided to go to Rohan's old practice that's affiliated with Winthrop but they are high risk as well.
If I were you I would just ask Dr Rosenbergs office to see which other practice they would recommend. I am quite sure they work with other doctors such as Dr Trongone.
Yes he does. Also recommended Seidman and Aronovich.
Trongone can't get an appt until October!! unless pregnant.
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| Posted 2/22/13 9:58 AM |
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vintagegirl
LIF Infant
Member since 12/07 167 total posts
Name:
Laura
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Ladies who have thrombophilia please come in
Bump I need one to .. Looking at lij .. I had severe Pre eclampsia and HELPP during my last pregnancy .. Def need a consult
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| Posted 2/24/13 12:52 AM |
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vintagegirl
LIF Infant
Member since 12/07 167 total posts
Name:
Laura
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Re: Ladies who have thrombophilia please come in
Thanks for this posting.. I made an appointment for a pre consult with dr. rosenberg next week :)
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| Posted 3/4/13 10:36 PM |
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Serendipity
Summer!
Member since 4/07 7631 total posts
Name:
PrayingWishingHopingALOT
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Re: Ladies who have thrombophilia please come in
Posted by vintagegirl
Thanks for this posting.. I made an appointment for a pre consult with dr. rosenberg next week :)
Wow they gave you one that fast? See the girl I spoke to was so confused that day and she told me she will call me back in march to schedule. Did you go yet?
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| Posted 3/7/13 8:47 PM |
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MamaB17
Back for baby #3
Member since 5/09 4065 total posts
Name:
N
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Re: Ladies who have thrombophilia please come in
I see Dr. Kofinas for high risk in Garden City, he is amazing! He doesn't take insurance, your out of network benefits kick in & you pay your deductiable. For me that is $200. My ob is Miller but he doesn't deliver at LIJ. You can call Kofinas for a consult & speak to him about ob's that deliver at LIJ. I am 24wks & the staff have been so amazing there. My first dd was born in VA in 2010 at 31wks b/c I was undiagnosed.
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| Posted 3/8/13 8:54 AM |
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PennyCat
Just call me mommy :)
Member since 7/08 19084 total posts
Name:
Jib
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Re: Ladies who have thrombophilia please come in
Posted by MamaB17
I see Dr. Kofinas for high risk in Garden City, he is amazing! He doesn't take insurance, your out of network benefits kick in & you pay your deductiable. For me that is $200. My ob is Miller but he doesn't deliver at LIJ. You can call Kofinas for a consult & speak to him about ob's that deliver at LIJ. I am 24wks & the staff have been so amazing there. My first dd was born in VA in 2010 at 31wks b/c I was undiagnosed.
Dr.Kofinas is GREAT! He may have recs for drs he knows of in LIJ but he does not work with any of them. I asked 
I am very happy with my OB as well.
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| Posted 3/8/13 8:59 AM |
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Strawberry2468
It's summatime
Member since 3/09 4739 total posts
Name:
Christine
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Re: Ladies who have thrombophilia please come in
Posted by PennyCat
Posted by MamaB17
I see Dr. Kofinas for high risk in Garden City, he is amazing! He doesn't take insurance, your out of network benefits kick in & you pay your deductiable. For me that is $200. My ob is Miller but he doesn't deliver at LIJ. You can call Kofinas for a consult & speak to him about ob's that deliver at LIJ. I am 24wks & the staff have been so amazing there. My first dd was born in VA in 2010 at 31wks b/c I was undiagnosed.
Dr.Kofinas is GREAT! He may have recs for drs he knows of in LIJ but he does not work with any of them. I asked
I am very happy with my OB as well.
ITA! I LOVE Dr. Kofinas. If I have another, I dont care what I have to or who my ob is as long as Im with Dr. Kofinas.
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| Posted 3/8/13 9:18 AM |
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MamaB17
Back for baby #3
Member since 5/09 4065 total posts
Name:
N
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Re: Ladies who have thrombophilia please come in
Posted by Strawberry2468
Posted by PennyCat
Posted by MamaB17
I see Dr. Kofinas for high risk in Garden City, he is amazing! He doesn't take insurance, your out of network benefits kick in & you pay your deductiable. For me that is $200. My ob is Miller but he doesn't deliver at LIJ. You can call Kofinas for a consult & speak to him about ob's that deliver at LIJ. I am 24wks & the staff have been so amazing there. My first dd was born in VA in 2010 at 31wks b/c I was undiagnosed.
Dr.Kofinas is GREAT! He may have recs for drs he knows of in LIJ but he does not work with any of them. I asked
I am very happy with my OB as well.
ITA! I LOVE Dr. Kofinas. If I have another, I dont care what I have to or who my ob is as long as Im with Dr. Kofinas.
This is exactly how I felt.
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| Posted 3/8/13 4:22 PM |
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vintagegirl
LIF Infant
Member since 12/07 167 total posts
Name:
Laura
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Re: Ladies who have thrombophilia please come in
Posted by Serendipity
Posted by vintagegirl
Thanks for this posting.. I made an appointment for a pre consult with dr. rosenberg next week :)
Wow they gave you one that fast? See the girl I spoke to was so confused that day and she told me she will call me back in march to schedule. Did you go yet?
I just FM you.. we need to connect.. we are going through the same thing :) I want to compare notes if you don't mind
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| Posted 3/13/13 10:46 PM |
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