| Posted By |
Message |
CkGm
They get so big, so fast :(
Member since 5/05 13848 total posts
Name:
Christine
|
Just found out sad news
One of my close friends who lives in Florida found out her 15 week pregnancy has a 1 in 5 chance of being downs. She is so positive though- she keeps saying if this is what God wanted for her so be it.
|
Posted 8/11/06 9:37 PM  |
| |
|
Long Island Weddings
Long Island's Largest Bridal Resource |
pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
|
Re: Just found out sad news
She has a great attitude, I will keep her and her family in my thoughts  
|
| Posted 8/11/06 9:39 PM |
| |
|
nrthshgrl
It goes fast. Pay attention.
Member since 7/05 57538 total posts
Name:
|
Re: Just found out sad news
Initial tests (AFP, I assume?) have very high false positives for Downs. I know many people that were told Downs & the amnio confirmed no Downs. Your friend has a terrific attitude.
Here's something that I found online that gives some insight - it was written by the mother of a child with Down's.
Welcome To Holland
by
Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
|
| Posted 8/11/06 9:46 PM |
| |
|
CkGm
They get so big, so fast :(
Member since 5/05 13848 total posts
Name:
Christine
|
Re: Just found out sad news
Thanks girls- That is a wonderful essay- I have seen it before but an excellent reminder.
|
| Posted 8/11/06 9:47 PM |
| |
|
Michelle1123
Baby #5 on the way!
Member since 9/05 7919 total posts
Name:
|
Re: Just found out sad news
Thats sad, but the odds are in her favor and she seems like either way she is gonna be a great mom to that child!
|
| Posted 8/11/06 9:53 PM |
| |
|
Eireann
Two ladies and a gentleman!
Member since 5/05 12165 total posts
Name:
|
Re: Just found out sad news
Also wanted to add that I took the Integrated test (combines AFP with Quad screen blood test and Nuchal translucency). This test is meant to be 97% accurate. Anyhow, you can imagine my utter shock and despair when I got the call that my results were 1 in 5 for Down's. I had never heard such a serious "score." I arrived 4 days (of torture) later at the hospital for my amnio only to be told that my results were caused by--long story short--a typo! My real results--1 in 50,000!!
Please tell your friend to triple check all of the numbers on her test results. Best of luck to her!!!!!!!
|
| Posted 8/11/06 10:08 PM |
| |
|
Janice
Sweet Jessie Quinn
Member since 5/05 27567 total posts
Name:
Janice
|
Re: Just found out sad news
I hope all works out for her. She sounds like a great person.
|
| Posted 8/11/06 10:35 PM |
| |
|
mrsdstowe
LIF Adolescent
Member since 3/06 699 total posts
Name:
Latrice
|
Re: Just found out sad news
Posted by nrthshgrl
Initial tests (AFP, I assume?) have very high false positives for Downs. I know many people that were told Downs & the amnio confirmed no Downs. Your friend has a terrific attitude.
Here's something that I found online that gives some insight - it was written by the mother of a child with Down's.
Welcome To Holland
by
Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
That was beautiful. It reminds you of the true simple blessings of life.
|
| Posted 8/11/06 11:26 PM |
| |
|
SuzyQ
Mama to 3!?!?!?
Member since 7/06 8069 total posts
Name:
Susan
|
Re: Just found out sad news
I hope her baby is one of the 4 out of 5 that don't have it. It sounds like she has the right attitude though. That's great that she can see it that way.
|
| Posted 8/11/06 11:32 PM |
| |
|
Phyl
R.I.P. Sweet Mia ♥
Member since 5/06 28918 total posts
Name:
The Mystical Azzhorse! ™
|
Re: Just found out sad news
Here's some and for your friend
|
| Posted 8/12/06 1:31 AM |
| |
|
Stacey1403
Where it all began....
Member since 5/05 24065 total posts
Name:
|
Re: Just found out sad news
|
| Posted 8/12/06 7:47 AM |
| |
|
lvdolphins
My Loves!
Member since 5/05 46292 total posts
Name:
|
Re: Just found out sad news
ETA: She has a great attitude. I just had this test done this past Tues. and am a nervous wreck waiting for results.
Message edited 8/12/2006 8:15:20 AM.
|
| Posted 8/12/06 8:14 AM |
| |
|
wowcoulditbe
wow, pic is already 1 yr old!!
Member since 1/06 6689 total posts
Name:
D
|
Re: Just found out sad news
she is so strong and wonderful - hoping for the best
|
| Posted 8/12/06 8:40 AM |
| |
|
Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
|
Re: Just found out sad news
|
| Posted 8/12/06 8:50 AM |
| |
|
angelbear217
Mommy of 2
Member since 5/05 4313 total posts
Name:
Lisa
|
Re: Just found out sad news
and for your friend. She sounds like she will be the perfect mom for her baby!
|
| Posted 8/12/06 12:22 PM |
| |
|
CkGm
They get so big, so fast :(
Member since 5/05 13848 total posts
Name:
Christine
|
Re: Just found out sad news
You guys are the greatest- I am going to share your support with her.
BTW: if anyone can handle a down's child, it would be this person. She is the positive, upbeat woman I know. She is really special. I will keep you posted.
|
| Posted 8/12/06 2:27 PM |
| |
|
bklyngirl
COULD THIS BE MY YEAR??
Member since 6/05 15758 total posts
Name:
Gail
|
Re: Just found out sad news
she'll have a lot of love to give to the baby
|
| Posted 8/12/06 2:48 PM |
| |
|
GenLCSW
Baby # 3 is here!!!
Member since 7/05 21138 total posts
Name:
Genna
|
Re: Just found out sad news
|
| Posted 8/12/06 3:58 PM |
| |
|
pmpkn087
Life is good...
Member since 9/05 18504 total posts
Name:
Stephanie
|
Re: Just found out sad news
|
| Posted 8/12/06 10:40 PM |
| |
|
