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LaurenExp
Waiting patiently for baby sis
Member since 8/06 11613 total posts
Name:
L-Diddy EDD 11/11/11 :)
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LIeratHeart
How was our BETA yesterday?
Thinking and praying for you 
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Posted 10/30/07 1:27 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
boosh1002
We like hanging together!
Member since 5/05 5475 total posts
Name:
Mommy to twins
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Re: LIeratHeart
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| Posted 10/30/07 1:58 PM |
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jellybean78
:)
Member since 8/06 13103 total posts
Name:
Mommy
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Re: LIeratHeart
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| Posted 10/30/07 2:12 PM |
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LIeratHeart
LIF Infant
Member since 12/06 132 total posts
Name:
Cheri
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Re: LIeratHeart
You guys have no idea how much seeing that post meant to me. I thank you from the bottom of my heart.
Yesterday was probably the worst day of my life. The call came around 5 that the test said the beta went down to 10. So this meant chemical #6 and a total of 7 lost. I asked the DR where we go from here. She said we did almost all the testing and we can do kareotyping on DH and I, but even if there was something wrong there was no way to fix it. Well I lost it!!!! I am probably the most mild-mannered person and I was throwing things! I got so angry at myself over that. But to hear that there is no way to fix this I don't know how to react. I don't know whether to look in to adoption or keep going down this road until I get an answer- I just know that this is absolutely unbearable and I wouldn't wish it on my worst enemy.
I wish I was home on Long Island but down here in FL on the west coast I don't know where to begin or who to ask. I don't know which road to choose...I just feel so cheated. I scheduled a meeting with someone to "talk to" on Thursday because I am having a really hard time.
I thank you all again and will continue to do a lot of hoping and wishing for us all!
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| Posted 10/30/07 7:27 PM |
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CAT215
The Merlster
Member since 10/06 2540 total posts
Name:
Cathie
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Re: LIeratHeart
I'm so sorry 
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| Posted 10/30/07 8:03 PM |
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firsttimer
Member since 5/07 1532 total posts
Name:
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Re: LIeratHeart
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| Posted 10/30/07 9:03 PM |
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Carolyn
.....
Member since 5/07 5351 total posts
Name:
Twin mommy
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Re: LIeratHeart
Oh no, I am so sorry. Wishing you all the best...
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| Posted 10/30/07 9:15 PM |
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-Laurie-
Hi!
Member since 5/05 2536 total posts
Name:
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Re: LIeratHeart
Posted by LIeratHeart
You guys have no idea how much seeing that post meant to me. I thank you from the bottom of my heart.
Yesterday was probably the worst day of my life. The call came around 5 that the test said the beta went down to 10. So this meant chemical #6 and a total of 7 lost. I asked the DR where we go from here. She said we did almost all the testing and we can do kareotyping on DH and I, but even if there was something wrong there was no way to fix it. Well I lost it!!!! I am probably the most mild-mannered person and I was throwing things! I got so angry at myself over that. But to hear that there is no way to fix this I don't know how to react. I don't know whether to look in to adoption or keep going down this road until I get an answer- I just know that this is absolutely unbearable and I wouldn't wish it on my worst enemy.
I wish I was home on Long Island but down here in FL on the west coast I don't know where to begin or who to ask. I don't know which road to choose...I just feel so cheated. I scheduled a meeting with someone to "talk to" on Thursday because I am having a really hard time.
I thank you all again and will continue to do a lot of hoping and wishing for us all!
I am very sorry. I was in your shoes this exact time last year. My last miscarriage should have been 1 Memorial Day weekend. I have atleast 4 in 2006 and have a very caring and great RE down here in Florida.
Where on the West Coast are you? I'm on the Gulfcoast of the panhandle but I believe he also has an office in Talahasse as well as possibly Tampa.
If you look online for Dr. Barry Ripps in Pensacola you should try contacting his office and even if you can't travel to him maybe he can recommend someone. I know how you feel since he is the only one on in the panhandle from Alabama thru Tallahasse when there are so many on LI.
I took a few months off that October went on the pill got off the pill after the holidays and started testing he watched my cycle like a hawk and recommend a few changes by time he got my results back he cleared me to try again and we got pregnant that cycle and I am currently 36 weeks pregnant with my little girl..
Good Luck and I am sorry.
I know how you feel it sucks to see pregnant and know it probably won't last.
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| Posted 10/30/07 9:48 PM |
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rose825
Best Friends
Member since 6/05 10228 total posts
Name:
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Re: LIeratHeart
I definately would not take that as your final answer. There must be someone you can see for a second opinion. Laurie is a great example.
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| Posted 10/30/07 10:16 PM |
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Gertyrae
Peace out Homies!
Member since 5/05 20046 total posts
Name:
Gerty ®
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Re: LIeratHeart
You poor thing...I can't imagine how you must have felt. This whole thing is so friggin frustrating.
The only thing I can say is, like Laurie and Pauline suggested - find someone else to talk to. If they say the same thing, then you know where you stand - but if they come up with something different then you may have other options.
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| Posted 10/30/07 10:27 PM |
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DRMom
Two in Blue
Member since 5/05 20223 total posts
Name:
Melissa
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Re: LIeratHeart
Please do not believe this. You are not seeing the right Dr's. There is something else going on. Definitely get the karytyping buit also again....please look into the links I sent you. You know in your heart there is something wrong here.
You should also try to do a phone consult with one of these Dr's
Dr. Sher
Dr. Kwak-Kim
Also joine the Yahoo group immunology support. In the files there is a list of Dr's who deal with recurrent moscarriage
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| Posted 10/30/07 11:19 PM |
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LaurenExp
Waiting patiently for baby sis
Member since 8/06 11613 total posts
Name:
L-Diddy EDD 11/11/11 :)
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Re: LIeratHeart
Posted by LIeratHeart
You guys have no idea how much seeing that post meant to me. I thank you from the bottom of my heart.
Yesterday was probably the worst day of my life. The call came around 5 that the test said the beta went down to 10. So this meant chemical #6 and a total of 7 lost. I asked the DR where we go from here. She said we did almost all the testing and we can do kareotyping on DH and I, but even if there was something wrong there was no way to fix it. Well I lost it!!!! I am probably the most mild-mannered person and I was throwing things! I got so angry at myself over that. But to hear that there is no way to fix this I don't know how to react. I don't know whether to look in to adoption or keep going down this road until I get an answer- I just know that this is absolutely unbearable and I wouldn't wish it on my worst enemy.
I wish I was home on Long Island but down here in FL on the west coast I don't know where to begin or who to ask. I don't know which road to choose...I just feel so cheated. I scheduled a meeting with someone to "talk to" on Thursday because I am having a really hard time.
I thank you all again and will continue to do a lot of hoping and wishing for us all!
I'm very confused as to why they think they can't do anything more. I definitely agree with the other posters that you should get a second opinion done.
I have an unfortunate story for you, but its one you should know...
I was 24 weeks pregnant with my son when they discovered a heart defect. Because this particular heart defect usually comes along with other chromosomal abnormalities, they did an amnio on me. They discovered a chromosomal anamoly. They then took blood from DH and I and found that I have a balanced translocation. This means a small piece of two of my chromosomes break off and "switch" places. The reason why they say its "balanced" is because no genetic matter was lost when it occurs, making me a "normal" person. But because of this switching, there is a far greater chance of me miscarrying and having chemical pregnancies. My son ended up having a balanced translocation like I have, but unfortunately he passed away from his heart defect.
Because of this balanced translocation, I've been going through 2 years of infertility since. It's weird that I got pregnant in 5 months trying for my son, but now this is what I'm left with. Not only do patients who have a balanced translocations have a greater chance of miscarriage just because of the sheer nature of the chromosomes switching places, but we also have a greater instance of other genetic anomolies which can occur.
In the past 8 months I have had a miscarriage and 2 chemical pregnancies. Two pregnancies occured from IUI and one from IVF.
Now here's where I have better news...
When you have a balanced translocation, or any other chromosomal abnormality, you can have a procedure done with IVF called PGD. They can test your embryos before they implant them for any genetic abnormalities.
Did you get far enough along with any of the pregnancies that they could run genetic testing on the embryo?
Please don't give up...try getting a second, third, even fourth opinion if you have to.
If you have any questions, don't hesitate to FM me
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| Posted 10/31/07 7:49 AM |
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LIeratHeart
LIF Infant
Member since 12/06 132 total posts
Name:
Cheri
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Re: LIeratHeart
Thanks again for everyone's posts. You guys are great and it STINKS that all of us have to go through this.
I am calling today to request a copy of what procedures were done and the results. I am going to take control- but am not going to completely rule out adoption at this point. It's hard because so many things are in my mind- I just know I want to be a mommy.
My pregnancy in July went far enough to Karaotype and there was a inverted chromosome number 9. He said one of us probably had it but said it may never happen again when in our next child. It's all so confusing and I wish I was better with the medical jargon.
So again, thank you, thank you, thank you. I think I have had more guidance and support from you guys than anyone else.
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| Posted 10/31/07 8:02 AM |
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shaye3
LIF Adolescent
Member since 2/07 696 total posts
Name:
Laura
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Re: LIeratHeart
First of all I just wanted to send you some more hugs and say how very sorry I am for your losses. You have been through so much and your strength and determination are very admirable..
I agree with what othes have said about seeing a doctor who will look at this specifically. I had 3 miscarriages in 9 months and the doctors just kept saying it is bad luck..just keep trying..it seems when it comes to miscarriages most doctors are at a loss for what to do.
I am now working with a reproductive immunologist in chicago..dr kwak who melissa mentioned as well. She will work with you long distance.
if you have any questions please don't hesittate to ask. Whatever you do I wish you the best of luck.
Again big hugs and i truly belive whether through the old fashion way or through adoption we will be mommys some day..don't lose faith!!!!
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| Posted 10/31/07 8:47 AM |
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Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
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Re: LIeratHeart
Im so sorry
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| Posted 10/31/07 9:13 AM |
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DRMom
Two in Blue
Member since 5/05 20223 total posts
Name:
Melissa
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Re: LIeratHeart
Posted by LIeratHeart
Thanks again for everyone's posts. You guys are great and it STINKS that all of us have to go through this.
I am calling today to request a copy of what procedures were done and the results. I am going to take control- but am not going to completely rule out adoption at this point. It's hard because so many things are in my mind- I just know I want to be a mommy.
My pregnancy in July went far enough to Karaotype and there was a inverted chromosome number 9. He said one of us probably had it but said it may never happen again when in our next child. It's all so confusing and I wish I was better with the medical jargon.
So again, thank you, thank you, thank you. I think I have had more guidance and support from you guys than anyone else.
This really makes me  Why woudl your dr not give you karytyping after you had a m/c with a chromosomal issue. You definitely need to see someone new. The possibilities are: genetic issue which there is a solution for as Lauren said. Or immune/infection which there are also treatments for. Don't give up yet. I flew to Chicago to see Dr Kwak and we made a weekend out of it. She was covered under my insurance so I paid just a $30 co pay to her. I paiud for the travel but it is tax deductible. I am so sorry for you. I know the feeling.
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| Posted 10/31/07 9:35 AM |
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boosh1002
We like hanging together!
Member since 5/05 5475 total posts
Name:
Mommy to twins
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Re: LIeratHeart
I am so sorry!!
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| Posted 10/31/07 11:22 AM |
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LIeratHeart
LIF Infant
Member since 12/06 132 total posts
Name:
Cheri
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Re: LIeratHeart
The more I read the more I realize my doctor just might not be as good as he claims to be. I am so getting my charts tomorrow. I will continue to do research and get recommendations on different RE and Reproductive Immunologists. I don't think there are a lot in Ft Myers because everyone keeps recommending the guy I already use! Frustrating!
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| Posted 10/31/07 4:51 PM |
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Sneezy
Thankful for my miracle!
Member since 5/05 1939 total posts
Name:
Jen
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Re: LIeratHeart
Just wanted you to know that I am thinking about you. I have experienced pregnancy loss and can't begin to imagine how you feel after losing this many. Listen to the more experienced girls on the board; they are fantastic and some of the most caring people on the planet.
God bless.
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| Posted 10/31/07 9:46 PM |
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