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AliB
LIF Infant
Member since 3/11 332 total posts
Name:
alison
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Back from sono... Not such good news
I am 17 weeks with twins and had an early anatomy scan today. It started out great and we found out we are having boy/girl twins. Girl looks great but they say boy's femur and humerus are measuring almost two weeks behind, he has abnormal blood flow compared to other baby, and something with his bowel. Immediately them mention chromosomal issues, downs, all that. I am being sent for an amino in the morning. We are completely devastated. This was IVF and we have already been through so much. I just don't understand. Has anyone heard of this and turned out ok? Thanks so much. My heart feels broken right now.
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Posted 1/29/14 9:32 PM  |
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pharmcat2000
Mom of 2 + 1
Member since 10/05 7395 total posts
Name:
Catherine
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Re: Back from sono... Not such good news
Didn't have anything like this, but I'll keep you in my prayers. I hope all turns out ok. The amnio is not so bad.
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| Posted 1/29/14 10:43 PM |
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NewMrs7312
LIF Adult
Member since 12/12 977 total posts
Name:
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Re: Back from sono... Not such good news
Sending prayers to you!!! 
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| Posted 1/29/14 11:21 PM |
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prunepie
LIF Adult
Member since 7/06 4357 total posts
Name:
jennifer
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Re: Back from sono... Not such good news
sending all my prayers and good wishes!
was this a perinatologist you saw?
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| Posted 1/30/14 12:06 AM |
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AliB
LIF Infant
Member since 3/11 332 total posts
Name:
alison
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Re: Back from sono... Not such good news
Posted by prunepie
sending all my prayers and good wishes!
was this a perinatologist you saw?
It was just a doctor at the hospital. Today we meet with a henetica counselor and have amnio
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| Posted 1/30/14 6:47 AM |
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ShhhTTCin11
3 under 3?!
Member since 5/11 2229 total posts
Name:
Coleen
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Back from sono... Not such good news
Good luck. No experience, but sending prayers your way
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| Posted 1/30/14 7:13 AM |
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MrsSpring
I'm a lucky mama
Member since 1/10 7585 total posts
Name:
L
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Re: Back from sono... Not such good news
sending prayers!!
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| Posted 1/30/14 8:07 AM |
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DiamondGirl
You are my I love you
Member since 7/09 18802 total posts
Name:
DiamondMama
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Re: Back from sono... Not such good news
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| Posted 1/30/14 8:26 AM |
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05mommy09
Family of 5!
Member since 5/05 15364 total posts
Name:
<3 Mommy <3
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Back from sono... Not such good news
No experience BUT... I have been on these boards long enough to see that OFTEN times these results are faulty!
Also, I could swear that with twins its harder to "see" things and get proper measurements because there is less space (less room to clearly see/measure)
Lots of prayers, hang tight....Good luck today!
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| Posted 1/30/14 8:34 AM |
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JDubs
different, not less
Member since 7/09 13160 total posts
Name:
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Re: Back from sono... Not such good news
Crashing but I just wanted to send you thoughts and prayers that your little boy is ok
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| Posted 1/30/14 8:53 AM |
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Alyssa79
LIF Infant
Member since 10/13 352 total posts
Name:
Triple A
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Re: Back from sono... Not such good news
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| Posted 1/30/14 9:06 AM |
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jams92
Member since 1/12 6105 total posts
Name:
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Re: Back from sono... Not such good news
sending you prayers
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| Posted 1/30/14 9:08 AM |
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MrsMerlot
Unconditional Love
Member since 4/06 6005 total posts
Name:
Chrissy
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Re: Back from sono... Not such good news
I'm expecting b/g twins (week 29) via IVF and it was always difficult to see our baby boy's left-side of his heart b/c he was in a breech position.
They sent me to a pediatric cardiologist, where they still had difficulty, but saw a bright spot on his heart and it was a soft-marker for downs. Asked me if I had an amnio (said no b/c I was 33 y/o), or had any other type of testing. Besides the NT and the blood draw, everything came back normal.
I started freaking out, and when I spoke to my OB she stated that the cardiologist over-stepped and should not have had that conversation with me. I was there for a standard scanning, and that's all he should have done.
Went for further testing, and it turns out that the bright spot he saw was a error and again due to the position of the baby boy.
I know it's not the same, and not what you're looking for, but keep the faith (we're all praying for you here) - and see what happens and discuss this with your OB and genetic counselor.
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| Posted 1/30/14 9:20 AM |
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JBaby
LIF Adolescent
Member since 9/10 762 total posts
Name:
Julia
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Re: Back from sono... Not such good news
Are you seeing a Perinatologist or just a regular OB? I would consider getting a second opinion before scheduling an amnio since a lot of these sonos are off...
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| Posted 1/30/14 9:52 AM |
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jax1
Love my baby girl!!!
Member since 3/09 3405 total posts
Name:
Jackie
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Re: Back from sono... Not such good news
I know a lot of times these things come back as nothing. I pray that is the case for you.
My ultrascreen came back with a higher chance of Down syndrome. I opted for the Materni21 test instead of the amnio and it was negative.
There are some other heart and kidney issues we are monitoring now. So not in the same situation, but I know how you feel.
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| Posted 1/30/14 10:37 AM |
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ElizaRags35
My 2 Girls
Member since 2/09 20494 total posts
Name:
Me
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Re: Back from sono... Not such good news
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| Posted 1/30/14 10:54 AM |
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starr
little whale on the way
Member since 6/10 1288 total posts
Name:
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Back from sono... Not such good news
praying for u
don't freak out right away. wait for a full work up a lot of times its nothing
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| Posted 1/30/14 10:58 AM |
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Lola64
She is my heart!
Member since 1/11 1110 total posts
Name:
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Re: Back from sono... Not such good news
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| Posted 1/30/14 10:59 AM |
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BabyDayz
LIF Adolescent
Member since 1/11 719 total posts
Name:
Samantha
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Back from sono... Not such good news
Yeah there are soooo many cases on this board where there are faulty readings and results, try to get through today and get all results back first... you never know :)
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| Posted 1/30/14 12:17 PM |
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AKD
LIF Adult
Member since 1/12 2637 total posts
Name:
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Re: Back from sono... Not such good news
Sending tons of your way that everything turns out okay.
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| Posted 1/30/14 12:30 PM |
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Twobuggies14
LIF Infant
Member since 9/13 100 total posts
Name:
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Re: Back from sono... Not such good news
I hope everything turns out okay, praying for you and babies!
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| Posted 1/30/14 12:33 PM |
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noworlater
LIF Adult
Member since 2/11 1528 total posts
Name:
Now!
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Re: Back from sono... Not such good news
I had abnormal blood flow with first baby, everything they said it might also mean, it didn't. They induced me at 35 weeks as they monitored closely and saw at that time that his growth sufficiently decreased and he was born healthy 3 .13 lbs they called it inter uterine growth restricted. he is two years now and caught up. I hope its nothing more than this for you
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| Posted 1/30/14 2:20 PM |
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MrsRH
LIF Zygote
Member since 8/13 27 total posts
Name:
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Back from sono... Not such good news
Praying for you!
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| Posted 1/30/14 2:58 PM |
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babyvibes
LIF Adult
Member since 7/13 1350 total posts
Name:
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Re: Back from sono... Not such good news
Good luck!!
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| Posted 1/30/14 9:46 PM |
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AliB
LIF Infant
Member since 3/11 332 total posts
Name:
alison
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Back from sono... Not such good news
Thank you all for your kind words and prayers. They did amnio yesterday on both babies. Today we will get some preliminary results for Down's, trisonomy 13 and 18. I feel like this is just a nightmare.
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| Posted 1/31/14 9:06 AM |
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