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ONEmoreBABY
LIF Infant
Member since 10/11 330 total posts
Name:
erica
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Kind of freaking over my sequential screen
My results for open neural tube defect/ ventral wall defect really weren't good. I repeated the blood test & have to wait a week for results. The nurse told me this test isn't accurate so they repeat it when result aren't good but my results were bad, 1 in 9 risk. That seems like such bad odds.  I couldn't sleep last night over this & began googling. If you could spare it, I would love those famous LIF prayers.
Message edited 8/12/2016 4:11:07 PM.
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Posted 8/12/16 4:09 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
PrettyPeonies
GAW my baby boy <3
Member since 8/10 3874 total posts
Name:
Pino
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Re: Kind of freaking over my sequential screen
 
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| Posted 8/12/16 6:52 PM |
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Maybe-Baybe
My Sunshine
Member since 7/12 3415 total posts
Name:
My only Sunshine
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Re: Kind of freaking over my sequential screen
Hoping the results come back with more positive news
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| Posted 8/12/16 7:42 PM |
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RainyDay
LIF Adult
Member since 6/15 3986 total posts
Name:
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Re: Kind of freaking over my sequential screen
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| Posted 8/12/16 9:18 PM |
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Chai77
Brighter days ahead
Member since 4/07 7364 total posts
Name:
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Re: Kind of freaking over my sequential screen
Oh no, I'm so sorry. I know how scary this is. With my second DS, I was told we were at high risk of spina bifida/open neural tube defects based on the AFP test. It was repeated and I actually got worse results. I was spoken to by multiple doctors about termination. It was so awful.
Well, my DS was born perfectly healthy, after all that. That test is notoriously incorrect, I have learned throughout my experience. Please try to relax and remember the test is not perfect. It was wrong in my case. FM me if you need to talk.
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| Posted 8/12/16 9:53 PM |
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TooSoontoTell
LIF Adolescent
Member since 11/11 501 total posts
Name:
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Re: Kind of freaking over my sequential screen
I also had high results come back. Repeat test was normal. Baby was fine! This test can definitely be wrong.
Message edited 8/12/2016 10:25:19 PM.
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| Posted 8/12/16 10:25 PM |
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alli3131
Peanut is here!!!!!!
Member since 5/09 18388 total posts
Name:
Allison
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Kind of freaking over my sequential screen
I never took that test because it's so inaccurate. My sis had a 1 in 4. Try not to freak. There are way too many bad false results I don't know why they even do it anymore.
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| Posted 8/13/16 10:18 AM |
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ONEmoreBABY
LIF Infant
Member since 10/11 330 total posts
Name:
erica
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Re: Kind of freaking over my sequential screen
Thank you ladies. I have a gut feeling my dating was off since my cycles are usually wacky we'll see. Report comes in this week but I am trying to stay positive. I guess more in depth sonos will be more accurate that this test report.
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| Posted 8/15/16 8:45 AM |
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Chai77
Brighter days ahead
Member since 4/07 7364 total posts
Name:
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Re: Kind of freaking over my sequential screen
I know that if your dates are off, than that will effect the results. I agree that the in-depth sonogram of the spine etc is a good direction to go in now. We had that done, and the MFM said he was 95-96% sure my LO did not have any defects. That was as reassuring as it could be, and thankfully, he ended up being right.
I'll be thinking of you and keep us updated.
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| Posted 8/15/16 9:54 AM |
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muffaboo
LIF Adult
Member since 12/10 3797 total posts
Name:
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Re: Kind of freaking over my sequential screen
Posted by Chai77
Oh no, I'm so sorry. I know how scary this is. With my second DS, I was told we were at high risk of spina bifida/open neural tube defects based on the AFP test. It was repeated and I actually got worse results. I was spoken to by multiple doctors about termination. It was so awful.
Well, my DS was born perfectly healthy, after all that. That test is notoriously incorrect, I have learned throughout my experience. Please try to relax and remember the test is not perfect. It was wrong in my case. FM me if you need to talk.
Same! They had me go to a geneticist and everything. My midwife kept saying my sonos looked ok and she didn't think anything was wrong. Thank God, DD was born perfectly healthy!
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| Posted 8/15/16 4:17 PM |
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NervousNell
Just another chapter in life..
Member since 11/09 54919 total posts
Name:
..being a mommy and being a wife!
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Re: Kind of freaking over my sequential screen
Posted by alli3131
I never took that test because it's so inaccurate. My sis had a 1 in 4. Try not to freak. There are way too many bad false results I don't know why they even do it anymore.
This.
I declined this as well as a bunch of others that were notoriously inaccurate.
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| Posted 8/15/16 4:43 PM |
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