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wowcoulditbe
wow, pic is already 1 yr old!!
Member since 1/06 6689 total posts
Name:
D
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Re: Today's doctor update
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Posted 5/28/06 9:42 AM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
dooodles
When you wish upon a star
Member since 5/05 11997 total posts
Name:
Because 2 people fell in love
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Re: Today's doctor update
Posted by DebG
5/28/06 Update
I have no idea why I didn't update this yesterday, my apologies.
So we met with another neuro surgeon yesterday to get a second opinon. Second opinons always make me nervous because I feel like if its completly different then the first that it will throw me in a complete tail spin. However, I do know that they are certainly needed! Especially in the face of what I am dealing with. Driving up to the facility I could already tell that I was not going to be as impressed as I was in the previous place and I wasn't.
However, I was told many of the same things by this doctor that I was told by the other one.
1. A few key tests are needed but MUST wait until after  is born
2. The tumor is "probably" non cancerous
3. Its in one of the worst spots it could possibly be in
4. It will require brain surgery to remove
5. I need to find the highest trained skull surgeon I can
Thats all for now! We met with the perinatolist next and then after that we are going to start meeting with some skull surgeons.
Deb,
Thanks for updating us I am thankful they basically agreed with everything from your first diagnoisis meaning much less confusion as what to do and when to do it and you and Darren can focus on the surgeons. You truly amaze me Deb - what a lucky little boy Joey is to have such a strong Mommy.
Are you being monitored weekly to see if the tumor is still growing?
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| Posted 5/28/06 9:51 AM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Today's doctor update
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| Posted 5/28/06 9:57 AM |
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Re: Today's doctor update
Deb, thank you for the update. I hope you are in good spirits and I am thinking about you!!!
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| Posted 5/28/06 10:00 AM |
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Kate
*****
Member since 5/05 7557 total posts
Name:
Kate
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Re: Today's doctor update
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| Posted 5/28/06 10:00 AM |
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boosh1002
We like hanging together!
Member since 5/05 5475 total posts
Name:
Mommy to twins
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Re: Today's doctor update
Deb as always we are here for you!!!
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| Posted 5/28/06 10:12 AM |
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juju
Welcome to the World!
Member since 5/05 6747 total posts
Name:
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Re: Today's doctor update
Deb,
I am a true believer in prayer and know that you have a group of wonderful girls here praying for you!
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| Posted 5/28/06 10:14 AM |
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neenie
Member since 5/05 22351 total posts
Name:
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Re: Today's doctor update
Posted by DebG
5/28/06 Update
I have no idea why I didn't update this yesterday, my apologies.
So we met with another neuro surgeon yesterday to get a second opinon. Second opinons always make me nervous because I feel like if its completly different then the first that it will throw me in a complete tail spin. However, I do know that they are certainly needed! Especially in the face of what I am dealing with. Driving up to the facility I could already tell that I was not going to be as impressed as I was in the previous place and I wasn't.
However, I was told many of the same things by this doctor that I was told by the other one.
1. A few key tests are needed but MUST wait until after is born
2. The tumor is "probably" non cancerous
3. Its in one of the worst spots it could possibly be in
4. It will require brain surgery to remove
5. I need to find the highest trained skull surgeon I can
Thats all for now! We met with the perinatolist next and then after that we are going to start meeting with some skull surgeons.
deb, you never cease to amaze me with your strength! 
I'm not sure if you are just looking at skull surgeons in FL, but i know of 2 in NY (Dr. Milhorat and Dr. Bolognese... both are at North Shore) that are considered to be 2of the best in the Country.... patients come from all over the country to see them.
please let me know if there's anything that i can do to help!
Continuing to keep you, darren, and joey in our prayers!
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| Posted 5/28/06 10:27 AM |
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HarleyGirlFLA
Come on in
Member since 5/05 9674 total posts
Name:
Mel
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Re: Today's doctor update
Thanks for the update Deb. How are you feeling? How's Darren doing?
Lots of happy hugs and prayers for you, DH and mini studmuffin
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| Posted 5/28/06 10:29 AM |
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skygirl
Our prayers were answered:)
Member since 6/05 4919 total posts
Name:
Erica
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Re: Today's doctor update
Hi Deb,
I have not been on here for ages and just read about what you are going through.
I just wanted ot offer you some hugs
It sounds like you are doing eveything you can to juggle all thats around you. Stay strong and stay positive!!!!!!!
Also, if you are looking for a Dr. take a look @ these from NY Magazine- they have Dr's in NY, FL, NJ & CT:
New York Magazine + Best Doctors
New York Dr. + Castle Connolly ( includes all States)
Message edited 5/28/2006 11:10:47 AM.
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| Posted 5/28/06 11:08 AM |
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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: Today's doctor update
Moe- You are sooo very sweet! Your post made me giggle because you have sooo much more to keep you occupied right now. How is that adorable little animal doing?
Donna- I can't get monitored to see if it is still growning because I would have to get CT scans and they don't want to do anymore radiation while I am still preggo. I'm gonna toot my own horn and say that I am amazed (and really VERY surprised) at how I am holding up so far. I think when surgery is a bit closer I might be a little more freaked out.
Neen- I am most certainly NOT just looking into Florida, I will go whereever ends up being hte best people for me. Thank you so much for the names, I will most certainly add them to my list of poeple to check into.
Everyone else (not to not single anyone else out) thank you for your continued support, your hugs, your prayers, your good thoughts and your FM's we really appreciate them.
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| Posted 5/28/06 12:07 PM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: Today's doctor update
DEB- You are amazing. Ya know I knew from the start unfortunatly that there was something major going on with you because you are so strong, you never complain or whine, and thats why I was always asking you how you were, you never talk much about yourself when you are feeling bad, so as soon as you did start to say you were in such pain, I personally knew it was something big cause you simply dont complain ...I feel so sad that someone like you who handles everything so well and with such grace has to deal with this awful confusing time and diagnosis. My heart goes out to you.
If you need any help researching Dr's in NY, you know I have a lot of access to Dr's background info at work....just let me know.
Thanks for the update...we all are here for you and want to do whatever we can to help.
love ya!
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| Posted 5/28/06 12:46 PM |
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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: Today's doctor update
6/5/2006
Today we meet with the perinatologist to find out exactly when Joey can come out! Iam sooo excited to finaly start working on a timeline for all of this to get moving.
The appointment is at 1:15 and honestly it can't get here soon enough!
on a funny note. I am askingmy family to send me pictures for a slide show I am putting together to bring to the hospital...I got this one today!
Look how friggin young muffin man and I look!
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| Posted 6/5/06 10:26 AM |
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BaroqueMama
Chase is one!
Member since 5/05 27530 total posts
Name:
me
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Re: Today's doctor update
Good luck today, Deb!
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| Posted 6/5/06 10:27 AM |
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Luvlylady
Earned My Bragging Rights!
Member since 5/05 6141 total posts
Name:
Alexandria
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Re: Today's doctor update
All The Luck in the World Today Deb
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| Posted 6/5/06 10:29 AM |
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baghag
:P
Member since 5/05 10278 total posts
Name:
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Re: Today's doctor update
Keeping you in my prayers, Deb.
You guys look great in that pic!
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| Posted 6/5/06 10:32 AM |
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Elbee
Zanzibar
Member since 5/05 10767 total posts
Name:
Me
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Re: Today's doctor update
You, Darren and Baby are on my mind
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| Posted 6/5/06 10:32 AM |
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mrsmck
Be a big girl!
Member since 5/05 4898 total posts
Name:
Donna
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Re: Today's doctor update
Good luck at your appointment this afternoon. Sending lots of and your way!!!
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| Posted 6/5/06 10:34 AM |
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pmpkn087
Life is good...
Member since 9/05 18504 total posts
Name:
Stephanie
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Re: Today's doctor update
Good luck at the Dr. today.
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| Posted 6/5/06 10:36 AM |
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june262004
But I love the Snow!
Member since 5/05 15379 total posts
Name:
Kristin
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Re: Today's doctor update
Deb keeping you in my prayers
Thats a great pic. You and studmuffing look so good....
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| Posted 6/5/06 10:36 AM |
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Re: Today's doctor update
I love that pic, you both look great!
Hope you have a good appointment this afternoon!
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| Posted 6/5/06 10:44 AM |
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FeliciaDP
♥
Member since 5/05 18599 total posts
Name:
Mommy
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Re: Today's doctor update
Wishing you a great appointment later today! I cannot wait to hear when we all get to 'meet' Joey and you will finally be a Mommy 
What an awesome pic of you and the Muffin 
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| Posted 6/5/06 10:49 AM |
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Diva
I am what I am
Member since 12/05 2825 total posts
Name:
Jennifer
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Re: Today's doctor update
Still keeping you in my thoughts and prayers. Thanks for continuing to update us.
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| Posted 6/5/06 10:51 AM |
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Marcie
Complete Happiness :)
Member since 5/05 27789 total posts
Name:
LOVE being a Mommy!
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Re: Today's doctor update
Good Luck at your appt!!!!
Thinking about you always!!
How long ago was that picture??? I love it!!
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| Posted 6/5/06 10:53 AM |
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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: Today's doctor update
Posted by Marcie
Good Luck at your appt!!!!
Thinking about you always!!
How long ago was that picture??? I love it!!
 10 friggin years ago! Can you believe that!
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| Posted 6/5/06 10:54 AM |
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