| Posted By |
Message |
| Pages: [1] 2 3 |
leighla
Support Cancer Research
Member since 5/05 16353 total posts
Name:
Lauren
|
So it's hospice time...
We're being contacted later today by an in-home hospice care group associated with sloan kettering.
Anyone with experience want to prepare me for what this is going to be like?
Do they stay in my house?
Are they around all the time?
Do I feed them?
Ten million questions and I'm not even sure what they are.
|
Posted 7/31/09 11:20 AM  |
| |
|
MrsRbk
<3 <3 <3 <3
Member since 1/06 19197 total posts
Name:
Michelle
|
Re: So it's hospice time...
Oh lauren... I don't even know what to say.... 
|
| Posted 7/31/09 11:22 AM |
| |
|
MrsYank
She's here :)
Member since 4/07 3238 total posts
Name:
Mrs. Yank
|
Re: So it's hospice time...
Posted by leighla
We're being contacted later today by an in-home hospice care group associated with sloan kettering.
Anyone with experience want to prepare me for what this is going to be like?
Do they stay in my house?
Are they around all the time?
Do I feed them?
Ten million questions and I'm not even sure what they are.
I'm so sorry you are going through this.  I had to arrange to have in-home hospice for my Dad and it was the hardest thing I had to do in my life.
We had Nassau County Hospice and they were incredibly nice and compassionate. The nurse would come twice a day I think, and there was also a Social Worker available to counsel (so many emotions- anger, despair) I'm not sure if pain management is part of your story but that was something I had to administer when the nurse wasn't there. I don't think you have to feed them, you have enough going on and that is the last thing they would expect.
Again, I'm so sorry to hear you are going through this. Feel free to FM me with any questions. 
|
| Posted 7/31/09 11:42 AM |
| |
|
rose825
Best Friends
Member since 6/05 10228 total posts
Name:
|
Re: So it's hospice time...
Lauren, I just saw this and I am so sorry to hear this is needed.
I am sure the hospice agency will walk you through all of it and it will be nice to have their support. But I am very sorry that you even have to think about this.
You are constantly in my thoughts and prayers, please let me know if there is anything I can do. I will always make myself available for you
|
| Posted 7/31/09 12:12 PM |
| |
|
Donna
1 year already!!
Member since 5/05 3360 total posts
Name:
Donna
|
Re: So it's hospice time...
Posted by leighla
We're being contacted later today by an in-home hospice care group associated with sloan kettering.
Anyone with experience want to prepare me for what this is going to be like?
Do they stay in my house?
Are they around all the time?
Do I feed them?
Ten million questions and I'm not even sure what they are.
Lauren, Im so sorry
we had nurses come 2x a day and my grandmother had a necklace alert (like lifealert) that she could press at any time and a nurse would be dispatched if necessary
we had meds in the house and all of us were taught how to adminster the morphine
you really didn't even know the nurses were around, they were very nice and I don't think they even thought about us feeding them
everyone we spoke to was very kind and helpful, they will guide you through this...
again many prayers to you, Scott and Logan
Message edited 7/31/2009 12:28:29 PM.
|
| Posted 7/31/09 12:13 PM |
| |
|
KGools
Happy
Member since 9/06 9532 total posts
Name:
Kim
|
Re: So it's hospice time...
No advice, I just wanted to send hugs and prayers.
|
| Posted 7/31/09 12:19 PM |
| |
|
MrsSteflily
I love chocolate
Member since 4/06 2047 total posts
Name:
Stef
|
Re: So it's hospice time...
No advice. But I wanted to give
|
| Posted 7/31/09 12:21 PM |
| |
|
Blu-ize
Plan B is Now Plan A
Member since 7/05 32475 total posts
Name:
Susan
|
Re: So it's hospice time...
I also just wanted to give you hugs.
|
| Posted 7/31/09 12:35 PM |
| |
|
JenMarie
One day at a time
Member since 11/07 7397 total posts
Name:
Jennifer
|
Re: So it's hospice time...
No advice, but I wanted to send you lots of
|
| Posted 7/31/09 12:40 PM |
| |
|
|
|
Re: So it's hospice time...
|
| Posted 7/31/09 12:41 PM |
| |
|
mrsmck
Be a big girl!
Member since 5/05 4898 total posts
Name:
Donna
|
Re: So it's hospice time...
Lauren, I'm just reading this now and can't tell you how heartbroken I am.
I have no experience w/hospice, but I want to give you continued love and prayers!
|
| Posted 7/31/09 12:45 PM |
| |
|
pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
|
Re: So it's hospice time...
I am sorry that I have no experience with hospice care but I am SO sorry you are going through this, it is just terrible
|
| Posted 7/31/09 1:10 PM |
| |
|
photoshopbabe
wow....
Member since 5/07 2197 total posts
Name:
linda
|
Re: So it's hospice time...
I FM'd you my exp with it... I am so so so sorry for you 
|
| Posted 7/31/09 1:11 PM |
| |
|
Gertyrae
Peace out Homies!
Member since 5/05 20046 total posts
Name:
Gerty ®
|
Re: So it's hospice time...
My mother had it for a while last year...they came once a day for her. I think it's what you need. You don't have to feed them, you could if you want.
I don't know what to say...my heart breaks for you...I don't know how you carry on....
|
| Posted 7/31/09 1:19 PM |
| |
|
MeNBobs
*****
Member since 4/07 3765 total posts
Name:
|
Re:
I'm so sorry. My thoughts and prayers continue to be with you and your family.
Message edited 8/13/2011 10:16:17 AM.
|
| Posted 7/31/09 1:27 PM |
| |
|
dpli
Daylight savings :)
Member since 5/05 13973 total posts
Name:
D
|
Re: So it's hospice time...
They're there to take care of your DH, not be a burden to you. Let them help you as much as possible and don't worry about their needs, they've been through this before - you haven't.
|
| Posted 7/31/09 2:13 PM |
| |
|
MommyTeffi
Yummy!!!
Member since 2/06 1827 total posts
Name:
|
Re: So it's hospice time...
My sincere prayers for your family. I can't even imagine how difficult this is for you.
I have experience dealing with Beth Israel for hospice care. My MIL was in house but was later transfered to the hospital due to a complication. A social worker should contact you to go over the process.
|
| Posted 7/31/09 2:16 PM |
| |
|
FranB
LIF Adolescent
Member since 9/06 686 total posts
Name:
Fran
|
Re: So it's hospice time...
We had hospice for my father but it was a long time ago. They came 2x a day or more if we called. They didnt stay full time or eat meals at the house. They taught my mom how to give morphine and other medications. They were great for her, I think she needed the help more than he did..
I am so sorry that its time for this
|
| Posted 7/31/09 2:19 PM |
| |
|
karacg
Babygirl is 4!
Member since 5/05 17076 total posts
Name:
Kara®
|
Re: So it's hospice time...
Lauren I am so sorry .....
|
| Posted 7/31/09 2:34 PM |
| |
|
Superkat
More a stranger than a friend
Member since 5/06 9730 total posts
Name:
K
|
Re: So it's hospice time...
We had hospice care for my FIL. You don't need to worry about taking care of them, they are there to take care of your husband.
The company we worked with was very informative and answered our questions before we could even ask. We went through Sloan Kettering's program as well.
|
| Posted 7/31/09 2:39 PM |
| |
|
jellybean78
:)
Member since 8/06 13103 total posts
Name:
Mommy
|
Re: So it's hospice time...
No advice...just hugs...I'm so sorry you even have to think about this
|
| Posted 7/31/09 3:17 PM |
| |
|
kahlua716
3 Girls for Me!
Member since 8/07 12475 total posts
Name:
Keri
|
Re: So it's hospice time...
|
| Posted 7/31/09 3:24 PM |
| |
|
waterspout4
My loves
Member since 5/06 19150 total posts
Name:
Kelly
|
Re: So it's hospice time...
|
| Posted 7/31/09 4:37 PM |
| |
|
nicrae
He's here!
Member since 12/06 9289 total posts
Name:
Mommy
|
Re: So it's hospice time...
|
| Posted 7/31/09 4:45 PM |
| |
|
Phyl
R.I.P. Sweet Mia ♥
Member since 5/06 28918 total posts
Name:
The Mystical Azzhorse! ™
|
Re: So it's hospice time...
|
| Posted 7/31/09 4:47 PM |
| |
|
| Pages: [1] 2 3 |
