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Celiacs in children

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Strawberry2468
It's summatime

Member since 3/09

4739 total posts

Name:
Christine

Celiacs in children

I'm not sure if this is what DD has but I'm just researching. She is almost 2 and has pretty much always had loose poops, even as a baby. We switched her to lactose sensitive formula and it was a little better. She is on lactaid milk now and nothing changes with cheese or milk. I'm wondering if its not milk that's the issue, but something else.

She doesn't complain of pain and gains weight, but just has loose poops all the time. Can the only symptom of celiacs be poops? She has been getting terrible diaper rashes every week that take a week to clear up because of it. We are going to try potty training soon b/c of it. I'm wondering if I should just take her to a gastro, but don't want to jump the gun if its totally normal.

The ped is never concerned b/c she gains and even said not to bother changing formula back when I asked about it when she was 4 mo.

Posted 9/2/14 9:22 AM
 
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Denise
LIF Adolescent

Member since 12/09

572 total posts

Name:
Denise

Celiacs in children

Maybe before you go to a gastro you could try eliminating gluten and dairy for a month....see if anything clears up. Then slowly reintroduce one at a time and see if there is a reaction. Skin rashes could be a sign of gluten sensitivity, and loose stools are as well.

Posted 9/2/14 9:33 AM
 

Strawberry2468
It's summatime

Member since 3/09

4739 total posts

Name:
Christine

Re: Celiacs in children

I thought of that too. I have to figure out what to feed her and how to keep her away from her twins food. How long would I even eliminate? She doesn't have any skin irritation.

Posted 9/2/14 9:35 AM
 

LiveForMoments
LIF Adult

Member since 10/10

2418 total posts

Name:

Re: Celiacs in children

If she's not in pain and is gaining weight then it's most likely not celiac, but could very well be gluten intolerance/sensitivity. True celiac disease has other much more severe symptoms.

I went through this with my almost 3 year old, and if I didn't push the issue, and switch peds, it would have just been ignored.
As an infant she was diagnosed with milk protein intolerance so I eliminated dairy until she turned 1, and then reintroduced it and she was ok. Between ages 1-2 I noticed she would get so bloated and gassy and had several loose poops every day. The ped kept telling me it was nothing, so I took it upon myself to eliminate gluten and see a new doctor, who immediately sent her to the GI. They do not diagnose under the age of 3 though, but DD did have the genetic markers for celiac and her level of antibodies was above normal - which indicates the intolerance.

Based on my experience, I would suggest you just eliminate gluten and see what happens, if it works, follow up with the doctor. Feel free to FM me with any questions.

Posted 9/2/14 10:57 AM
 

Strawberry2468
It's summatime

Member since 3/09

4739 total posts

Name:
Christine

Re: Celiacs in children

Posted by LiveForMoments

If she's not in pain and is gaining weight then it's most likely not celiac, but could very well be gluten intolerance/sensitivity. True celiac disease has other much more severe symptoms.

I went through this with my almost 3 year old, and if I didn't push the issue, and switch peds, it would have just been ignored.
As an infant she was diagnosed with milk protein intolerance so I eliminated dairy until she turned 1, and then reintroduced it and she was ok. Between ages 1-2 I noticed she would get so bloated and gassy and had several loose poops every day. The ped kept telling me it was nothing, so I took it upon myself to eliminate gluten and see a new doctor, who immediately sent her to the GI. They do not diagnose under the age of 3 though, but DD did have the genetic markers for celiac and her level of antibodies was above normal - which indicates the intolerance.

Based on my experience, I would suggest you just eliminate gluten and see what happens, if it works, follow up with the doctor. Feel free to FM me with any questions.



Thanks! How long did you eliminate for? Would a week be enough to tell?

Posted 9/2/14 12:13 PM
 

JME78
LIF Adult

Member since 11/09

3672 total posts

Name:

Re: Celiacs in children

I would take her to the Dr before starting her on an elimination diet - you are supposed to keep eating gluten when you are getting tested for Celiac.

Posted 9/2/14 12:17 PM
 

Strawberry2468
It's summatime

Member since 3/09

4739 total posts

Name:
Christine

Re: Celiacs in children

Posted by JME78

I would take her to the Dr before starting her on an elimination diet - you are supposed to keep eating gluten when you are getting tested for Celiac.



Will they even test her bc she is only 22 mo?

Posted 9/2/14 12:28 PM
 

LiveForMoments
LIF Adult

Member since 10/10

2418 total posts

Name:

Re: Celiacs in children

Posted by Strawberry2468

Posted by JME78

I would take her to the Dr before starting her on an elimination diet - you are supposed to keep eating gluten when you are getting tested for Celiac.



Will they even test her bc she is only 22 mo?




They may or they may not. The results are inaccurate at that age,and the only way to really confirm is with a scope of the intestine - which I refused. The can tell if the have the genetic markers for celiac, but the results from the antibodies are not really accurate in children that young. And you don't actually have to be eating gluten to get tested, this is per the GI from my personal experience. As long as it hasn't been months off it it should be fine. Honestly, most doctors won't take it seriously at that age bc the tests are inaccurate, that is why I suggest elimination diet first, it gives you some ground to stand on. That's what worked for us.
I think they told me it could take up to a month to see changes with an elimination diet, but we saw a difference within a week or 2 with the loose poop and eczema.

Posted 9/2/14 2:22 PM
 
 

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