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Baby Easton

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Pages: [1] 2

SandL
LIF Adolescent

Member since 4/12

541 total posts

Name:
L

Baby Easton

So there was a posting today on how the page was being removed in a day or so. Not even 5 hours later, and the support baby Easton Friedel page is gone. They didn't state a reason. Anyone know why the page was removed?

Posted 4/18/13 9:44 PM
 
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MrsC614
My little angel is here <3

Member since 7/09

2851 total posts

Name:
Gina

Baby Easton

That is strange,.........wonder why?

Posted 4/18/13 9:45 PM
 

myboysmyheart
LIF Adult

Member since 1/12

2743 total posts

Name:
K

Baby Easton

Wow, that makes me sad. I looked forward to hearing how he is. I fell in live with him as if he were my own blood. I pray he will get well every day.

Message edited 4/18/2013 10:01:24 PM.

Posted 4/18/13 9:46 PM
 

ChilisWife
God Bless America

Member since 5/05

3570 total posts

Name:
A.K.

Re: Baby Easton

I just tried to access the page before I saw this post, and yes it's gone. No idea why, I didn't see the post about it being removed. Very strange.

Posted 4/18/13 9:55 PM
 

babyvontheway
LIF Adolescent

Member since 6/12

568 total posts

Name:
Jen

Re: Baby Easton

They said for family reasons... I understand but it's sad because they brought so many people into their lives. People donated money and prayers, then they just drop everyone who have been thinking about this little boy since he was born.

Posted 4/18/13 9:57 PM
 

want2beamom
Love my boys soooo much!!!

Member since 8/06

10164 total posts

Name:
True love doesn't end with happily ever after...

Re: Baby Easton

Posted by myboysmyheart

Wow, that makes me sad. I looked forward to hearing how he is. I fell in live with him as if he was my own blood. I pray he will get well every day.



me too...I tried the page before, and thought there was a glitch. I didnt see the post about them shutting down the page. I hope everything is ok with the familyChat Icon

Posted 4/18/13 9:58 PM
 

ChilisWife
God Bless America

Member since 5/05

3570 total posts

Name:
A.K.

Re: Baby Easton

Posted by babyvontheway

They said for family reasons... I understand but it's sad because they brought so many people into their lives. People donated money and prayers, then they just drop everyone who have been thinking about this little boy since he was born.



I totally agree. I'm just speculating, but maybe it was just too much for them to handle. I remember some of the posts talking about how other family members had serious health problems too. Or maybe it was too much stress to deal with some of the negative comments that people would post.

Posted 4/18/13 10:05 PM
 

Ayne11
Yep

Member since 1/09

18021 total posts

Name:

Re: Baby Easton

They removed the page not 20 minutes after making their farewell post.

Posted 4/18/13 10:13 PM
 

AngnShaun
Sisters

Member since 1/10

21015 total posts

Name:
Ang

Baby Easton

What about the butterfly page? Maybe they will have an update on him?

Posted 4/18/13 10:14 PM
 

cds58019
The loves of my life :)

Member since 6/08

4276 total posts

Name:
Candice

Re: Baby Easton

It sounds like there's issues going on between family members. Danielle, Easton's mom, posted that there will be another page setup soon. And his dad said that it was not him and his wife that took it down but other family members.

Even if they did take it down for privacy reasons or whatever, I think they have every right to. Just because you donate to someone/something doesn't mean they now "owe it to you to keep you updated."

Posted 4/18/13 10:28 PM
 

MissJones
I need a nap!

Member since 5/05

22132 total posts

Name:

Baby Easton

I hope we see more updates soon. This baby has b brought so many people together.

Posted 4/19/13 6:09 AM
 

luvmotherhood
california dreamin'

Member since 2/13

1443 total posts

Name:
love my family!

Baby Easton

I didn't see the farewell post either. Wow I wonder what happened.

Posted 4/19/13 8:59 AM
 

Opl123
LIF Infant

Member since 4/13

76 total posts

Name:

Re: Baby Easton

That's really sad.... I loved seeing the updates and was very concerned for that little boy.

What kind of negative posts would people put?

I don't understand how anyone could say anything negative about that boy.

Posted 4/19/13 9:17 AM
 

lynnd126
LIF Adult

Member since 3/11

2630 total posts

Name:

Baby Easton

I donated and followed for a very long time until I hid it from my feed. I continued to manually check his page now and then and more often recently with his condition having worsened in the last month or two. I hid it because every single post ended up in drama. I'll be totally frank too, the amount of asking was also excessive. I truly believe that it was just family members with hands tied that were trying to do whatever they could to feel somehow empowered to help, but honestly, just numbers wise, it seemed like every single day for months on end there was a post asking for $. I would not be surprised if that had something to do with it coming down. There were also tons of azzholes that said things like the whole thing was a hoax.

Message edited 4/19/2013 9:32:58 AM.

Posted 4/19/13 9:31 AM
 

BargainMama
LIF Adult

Member since 5/09

15657 total posts

Name:

Baby Easton

I saw negative posts on the page when it first started. People on the internet always have something negative to say, no matter what the issue at hand is.

It sounds like extended family was in charge of the page, not Easton's parents, so maybe it's just as well. Sometimes when you mix money and certain people, it causes resentment, etc.

Posted 4/19/13 9:36 AM
 

DeniseMarie
<3

Member since 8/07

10682 total posts

Name:

Re: Baby Easton

Posted by ChilisWife

Posted by babyvontheway

They said for family reasons... I understand but it's sad because they brought so many people into their lives. People donated money and prayers, then they just drop everyone who have been thinking about this little boy since he was born.



I totally agree. I'm just speculating, but maybe it was just too much for them to handle. I remember some of the posts talking about how other family members had serious health problems too. Or maybe it was too much stress to deal with some of the negative comments that people would post.



this is what I think too.

Also they may have wanted some privacy. I always get the sense that they were constantly being asked for updates and constantly felt this pressure to have to update the public. That should be the last of their concerns while dealing with everything going on in their family.

Message edited 4/19/2013 9:47:05 AM.

Posted 4/19/13 9:44 AM
 

MorningCuppaCoffee
Tired!

Member since 12/07

16353 total posts

Name:
Allison

Re: Baby Easton

Posted by cds58019



Even if they did take it down for privacy reasons or whatever, I think they have every right to. Just because you donate to someone/something doesn't mean they now "owe it to you to keep you updated."




I agree. I've seen people who have been in similar situations create a website (not FB) and it's not updated regularly. I often wonder about the child, but would never go there to pry.

I don't want to imagine what this family is going through.

I think they deserve their privacy, even if at one point they wanted the entire world to know about their situation.

If they want to, I am sure they will speak when they are ready.

Posted 4/19/13 9:48 AM
 

sometimesmommy
Always in my heart.....

Member since 11/06

6686 total posts

Name:

Baby Easton

I totally understand their want for privacy. They are a superhuman family in my eyes.

I only hope that if a page reappears that people continue to be as generous as they were before. EB kids care is $$$ and some people feel betrayed not able to be updated since they were so vested in Easton and his condition.

Message edited 4/19/2013 10:04:40 AM.

Posted 4/19/13 10:04 AM
 

jlk51496
Mom of 3 - YIKES! =)

Member since 10/09

6758 total posts

Name:
Katie

Re: Baby Easton

This makes me sad..I was so obsessed with getting updates of this poor boy! I thought of him and his super parents and big brothers often! I understand their need for privacy..I hope we get updated somehow soon!

I hate how often they had to deal with negative comments and rude harsh people...I wish those people would grow up!

I wish them all the best for this poor baby and his family..and hope they get through this difficult time!

Posted 4/19/13 11:17 AM
 

AngnShaun
Sisters

Member since 1/10

21015 total posts

Name:
Ang

Re: Baby Easton

THe Butterfly Fund just posted a status about Easton

Easton's family..every single one of them, care and love for him DEEPLY. Easton is actually doing better, even though he is still serious, he continues to inspire us and amaze us every single day. Everyone can speculate WHY the support page went down, but please, the family just asks for your patience.

Posted 4/19/13 12:00 PM
 

KwaaksNest
Love my boys!

Member since 6/10

2825 total posts

Name:
Samantha

Baby Easton

aww thats sad...i follow this story very closely and close family friends of ours granddaughter died from the same disease so it hit very close to home. I hope all is well

Posted 4/19/13 5:35 PM
 

Goobster
:)

Member since 5/07

27557 total posts

Name:
:)

Re: Baby Easton

I am going to guess and say that there must have been some disagreement that comes down to money. That's just a guess on my part, and may be wrong of me, but I just get that feeling.

Posted 4/19/13 5:45 PM
 

pnc909
LIF Infant

Member since 11/07

185 total posts

Name:
Me

Baby Easton

It seems like Easton has a new page https://www.facebook.com/pages/Support-Baby-Easton-Friedel/238682382923436?ref=stream. I hope it works I am posting from phone

Posted 4/19/13 8:18 PM
 

want2beamom
Love my boys soooo much!!!

Member since 8/06

10164 total posts

Name:
True love doesn't end with happily ever after...

Re: Baby Easton

Posted by pnc909

It seems like Easton has a new page https://www.facebook.com/pages/Support-Baby-Easton-Friedel/238682382923436?ref=stream. I hope it works I am posting from phone



thank you so much! The picture with his big, beautiful eyes made me cry Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 4/19/13 8:25 PM
 

pnc909
LIF Infant

Member since 11/07

185 total posts

Name:
Me

Baby Easton

I know. So amazing!

Posted 4/19/13 8:28 PM
 
Pages: [1] 2
 

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