Stuff like this always is hard to swallow because NO CHILD, especially a little newborn should go through anything like this. It's just not fair that such a disease exists.
Lots and lots of prayers and thoughts for the entire Easton family.
I don't know if your personal friends with Summer Lynn but I have a friend whose 5 year old daughter was also diagnosed with epidermolysis bullosa at birth. I'd be happy to put them in touch with each other if she wants to speak to another mom that has been through the same thing
I am not a personal friend but I am sure you can reach out if you want ... She has posted that she is swamped with emails I guess of prayers and good thoughts but any information can help t this point
The fundraiser page is up for precious baby Easton. The cover photo shows him right after birth with no bandages on, just a little warning for those who may be sensitive.
