I don't know how many of you are friends with summer lynn photography on Facebook but last night she posted that her newphew was born with an uncureable disease called EB ... He was born with no skin on his arms or legs ... Calling on some LIfamily prayers to be sent their way .... He cannot have any tests done until his arms and legs are somewhat better
As to posting on here .... Once you post on Facebook it is public knowledge and it is only to ask for more prayers and well wishes not to ask for money or to bash someone .... So please just send good thoughts
I saw this The pictures of him made me start to cry (Damn pregnancy hormones) I am keeping him in my thoughts and prayers and hopefully they have some answers soon!!
As to posting on here .... Once you post on Facebook it is public knowledge and it is only to ask for more prayers and well wishes not to ask for money or to bash someone .... So please just send good thoughts
absolutely!!! It is heart breaking- I read it on her page last night as well. I am praying for this poor little baby as well as the entire family.
i saw all the posts last night and then of course had to google EB and found sooo many heroic (yet insanely sad) blogs. I spent 8pm-9pm in tears last night...
im 18weeks pregnant and all i could think about was giving birth to a baby with a rare condition like EB. Everything changes in an instant.
I had to put my phone and computer away. it was so upsetting.
The pictures of him made me start to cry (Damn pregnancy hormones) I am keeping him in my thoughts and prayers and hopefully they have some answers soon!! 
