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mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
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New Jordan Update - *****???? Wed - Insurance Update
So, the Ped GI called today and spoke to DH (i wasn't home.)
So, one of his stool samples from yesterday tested positive for C-Diff, but one didn't. He prescribed 10 days of Flagyl and a probiotic. Of course I called back but didn't get a call back yet. I REALLY don't want him on 10 days of an antibiotic, three times a day, if we don't have to - now he has to get like medicines shot into his mouth something like 12 times a day!! I am not going to start it until the GI calls me back. We don't understand how one stool sample could test positive, and the other not, so we are going to say we want a fresh diaper tested. Also, so now I don't even know if he truly does have a milk allergy, or has this been C Diff the whole time? And why wasn't he tested for C Diff when we first saw the Ped GI three weeks ago???
Plus, the Elecare, which who knows if we even need now , is making him spit up everywhere!!!! Also, I don't know if this has to do with the Elecare, but last night and tonight he will not go to sleep - I can always put him down and he'll fall asleep - these past two nights - he's been screaming!!!!
Arghhhhhhhh!!!!! 
Update - Apria just called - insurance is giving issues - shocker Apria has to send all the letters of medical and nutritional necessity and we have to wait. I don't understand this bullcrap - they don't go on this formula unless the must. It's not an option.
Message edited 4/7/2010 10:09:49 AM.
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Posted 4/6/10 8:52 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
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Re: New Jordan Update - *****????
OMG - you poor thing! 
I can't imagine what a roller coaster this has been for you! 
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| Posted 4/6/10 8:55 PM |
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neenie
Member since 5/05 22351 total posts
Name:
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Re: New Jordan Update - *****????
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| Posted 4/6/10 8:57 PM |
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mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
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Re: New Jordan Update - *****????
I just don't even know what to do anymore for him
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| Posted 4/6/10 8:58 PM |
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lvdolphins
My Loves!
Member since 5/05 46292 total posts
Name:
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Re: New Jordan Update - *****????
I really wish I had advice, all I can offer are and  that the dr.s find an answer soon!
I am so sorry you are all going through this. 
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| Posted 4/6/10 9:06 PM |
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brownie
Baby #1 is here!
Member since 11/08 13903 total posts
Name:
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Re: New Jordan Update - *****????
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| Posted 4/6/10 9:07 PM |
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monkeybride
My Everything
Member since 5/05 20541 total posts
Name:
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Re: New Jordan Update - *****????
Honestly if he does have C Diff in my opinion it is not causing all of those other symptoms he is having. He really sounds like a reflux/milk allergy baby.
Hang in there. It's going to take some time for him to adjust to the Elecare. Believe me I know how awful it is. I dealt with it with both my kids and my son was 10 times worse than DD was. It does get better eventually.
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| Posted 4/6/10 9:10 PM |
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DRMom
Two in Blue
Member since 5/05 20223 total posts
Name:
Melissa
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Re: New Jordan Update - *****????
I'm so sorry you are going through this. I will say my son would not touch Elecare but gobbled up the nutramigen AA. I don;t know anything about c-diff...
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| Posted 4/6/10 9:11 PM |
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mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
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Re: New Jordan Update - *****????
I was just reading about C Diff and they said it's rampant in hospitals and baby nurseries in hospitals. He just sucked down his whole Elecare bottle in 12 minutes so I think he's having a problem with the nipples right now that are too fast.
Ugh - like I said, I am PIZZED - why wasn't he tested for C Diff at our first visit'? How can one sample be positive and one negative? I want some answers!!!!!
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| Posted 4/6/10 9:17 PM |
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mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
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Re: New Jordan Update - *****????
Posted by monkeybride
Honestly if he does have C Diff in my opinion it is not causing all of those other symptoms he is having. He really sounds like a reflux/milk allergy baby.
Hang in there. It's going to take some time for him to adjust to the Elecare. Believe me I know how awful it is. I dealt with it with both my kids and my son was 10 times worse than DD was. It does get better eventually.
To me, he doesn't seem to have C Diff symptoms - he does not have crazy diarrhea - yes, baby poop is loose anyway, but since he started the Alimentum, he only goes once every other day, no fever...
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| Posted 4/6/10 9:18 PM |
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Re: New Jordan Update - *****????
Geez, this sucks. I pray things start turning around.
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| Posted 4/6/10 9:38 PM |
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Charly
LOVE!
Member since 5/05 12578 total posts
Name:
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Re: New Jordan Update - *****????
I'm not around much, so I'm sorry I don't know your baby's story. I had c-diff after giving birth to my DD (yes it's most commonly contracted in a hospital.) For me it was the inability to control my bowels. TMI but it was like water all day, no matter what I ate or took. I basically stopped eating and no change. I was a mom of a newborn and let it go on for weeks. UNTIL I couldn't make it to the bathroom anymore. It was horrifying, embarassing, etc. I'm sure you get the point. I was prescribed Flagyl. It is incredibily harsh. It made my tummy hurt bad, but it worked. I really would not give the baby flagyl until you are sure it's c-dif. If he does, then it's necessary.
NOW my DD had a milk allergy and had similar bowel issues, water. No diaper could hold it in. I could see how they could seem similar. She would scream constantly, but wanted to eat and was only quiet while eating, then the screaming would start shortly after. She did much better on nutrimagen (alimentum made her throw up)
My DS had reflux. He couldn't eat. It hurt. He'd eat an ounce at a time all day long. No formula helped him, only prevacid.
What is your son going through?
Message edited 4/6/2010 9:40:50 PM.
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| Posted 4/6/10 9:38 PM |
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TaraHutch
True beauty
Member since 10/07 9888 total posts
Name:
Tara
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Re: New Jordan Update - *****????
ugh I'm so sorry you're going through this Wish I had advice or could help in some way!
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| Posted 4/6/10 9:39 PM |
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mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
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Re: New Jordan Update - *****????
Charly - they tested ME for C-Diff 3 weeks post-partum because I've had similar stomach issues as you describe - only now I'm almost 11 weeks PP They tested me for everything - all tests were negative. They gave me Flagyl anyway - the problems continue...
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| Posted 4/6/10 10:05 PM |
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LoveyQ
Stalkers, get a life.
Member since 11/07 12820 total posts
Name:
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Re: New Jordan Update - *****????
No advice, just hugs
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| Posted 4/6/10 10:24 PM |
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pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
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Re: New Jordan Update - *****????
I am sorry you guys are going through this
I hope it improves quickly
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| Posted 4/6/10 10:28 PM |
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mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
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Re: New Jordan Update - *****????
Just so depressed this morning I'm exhausted, I'm basically the only one doing anything, I'm just miserable.
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| Posted 4/7/10 8:48 AM |
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mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
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Re: New Jordan Update - *****???? Wed - Insurance Update
Bump for update
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| Posted 4/7/10 10:10 AM |
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Re: New Jordan Update - *****???? Wed - Insurance Update
I hate insurance companies. Just want to throw that out there. What a bunch of arseholes.
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| Posted 4/7/10 11:21 AM |
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hannahsmom
Yummy yummy cookie...
Member since 10/08 2005 total posts
Name:
Laura
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Re: New Jordan Update - *****???? Wed - Insurance Update
DS is on Elecare and has been for over 6 months now... he still spits up a lot. I hope to start weaning him off of it soon because I don't know how much more I can take.
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| Posted 4/7/10 11:33 AM |
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