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ElizaRags35
My 2 Girls
Member since 2/09 20494 total posts
Name:
Me
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Please hug your babies FINAL UPDATE!!!
I know it might seem crazy that I'm posting this tonight but I can't sleep at all and I'm trying to keep myself occupied so please no judgment.
I'm at stonybrook with my 5.5 month old daughter Lila. She's had a fever and awful cough since Saturday. We took her to the doctor on Sunday where she was diagnosed with bronchiolitis and sent home. We were told to give her albuterol and pulmocort via nebulizer and follow up in a week.
This afternoon, I noticed her breathing was pretty rapid. I gave her her treatment and it was still the same. I called and made her an appointment to see her pediatrician. We went, they gave her another treatment and after, there wasn't any change so her dr told me to take her to the hospital- that she might need back to back treatments and be observed, possibly be admitted. I stopped home quick to get DH, handed my 23m old to my mom who met me there, and we headed to stonybrook.
What happened next happened so fast. We went to triage, they took her oxygen levels, and they brought her into a room. Immediately the room was flooded with doctors and nurses. They put an oxygen mask over her face, but her levels remained low. They bagged her. The levels remained low. Then they went to intubate. Something happened then and they suddenly started calling a code and doing cpr. Her heart had stopped. She wasn't breathing. We watched as they kept working on her and working on her, pushing epi(?). They were finally able to resuscitate her and get her intubated. I don't know for sure how long she was without oxygen. It felt like forever.
They put her on a ventilator and we were transferred to the PICU where we waited for a couple of hours. They put in a central line in her neck. The doctor said we won't know if there will be any effects on her organs from her being without oxygen. As of right now, she's critical but stable. She is sedated with a bunch of wires and tubes coming out of her. On a positive note, her levels look good right now. She's responding to pain and moving a bit. The attending doctor said he is cautiously optimistic. I overheard the nurse tell the resident that his most critical patient became his most stable.
We have a bit of a long road ahead of us. We now know that she has RSV and the flu. Why her ped didn't check for the flu? No idea.
The doctors and staff and Sb have been amazing. Constantly updating us as much as they can, especially now that we're in the room with her. A child life worker who is also involved with the Ronald McDonald house here was with us from the time we were in that room in the ER until everything was done up in PICU, staying well after her shift was over to be with us until we got settled in Lilas room.
So please, hug your babies tonight. You never know what tomorrow can bring. We are so lucky we have survived tonight. You know it's bad when the ER doctors who saved your baby's life come up to check on her status when their shift is over.
And if you can spare some good vibes, juju, prayers- whatever you're into- please do.
Thanks.
Message edited 4/16/2016 3:50:27 PM.
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Posted 2/17/16 3:53 AM  |
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Teach723
Have faith. Believe. Dream.
Member since 8/10 2356 total posts
Name:
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Re: Please hug your babies
Omg! Sending so many prayers your way that your little girl continues to get better and everything is ok. I can't even imagine what you just went through. There are no words 
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| Posted 2/17/16 4:03 AM |
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3girls1dog
LIF Adult
Member since 10/09 929 total posts
Name:
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Re: Please hug your babies
Keeping you in my thoughts and prayers.
Message edited 2/17/2016 5:30:28 AM.
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| Posted 2/17/16 5:30 AM |
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PitterPatter11
Baby Boy is Here!
Member since 5/11 7612 total posts
Name:
Momma <3
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Re: Please hug your babies
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| Posted 2/17/16 6:08 AM |
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MommyTeffi
Yummy!!!
Member since 2/06 1827 total posts
Name:
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Re: Please hug your babies
Wow! Prayers for baby Lila! Fingers crossed for good news and an easy recovery!
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| Posted 2/17/16 6:22 AM |
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Katareen
5,000 Posts!
Member since 4/10 7179 total posts
Name:
Katherine
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Please hug your babies
Sending prayers--thank god you went to the doctor when you did!
Please post if you need anything.
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| Posted 2/17/16 6:25 AM |
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Lara&Aidansmommy
For mom i miss u ETC ILOVEU
Member since 3/07 13921 total posts
Name:
ETC I LOVE YOU
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Re: Please hug your babies
A million prayers coming your lil babies way!!!
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| Posted 2/17/16 7:04 AM |
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luvmykids8
LIF Adult
Member since 9/15 2050 total posts
Name:
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Please hug your babies
OMG I got chills! Many many many prayers for your DD!!!
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| Posted 2/17/16 7:07 AM |
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ANewDayHasCome
Love multiplies, not divides
Member since 11/12 14481 total posts
Name:
Me
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Re: Please hug your babies
Omg how scary. Thinking of you and hope Lila has a speedy recovery.
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| Posted 2/17/16 7:12 AM |
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Hoping4baby
LIF Infant
Member since 12/10 361 total posts
Name:
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Please hug your babies
Oh my goodness, how incredibly scary! Thank the heavens you trusted your mommy instincts and took her back to the Dr. Wishing your daughter a complete and quick recovery. I can't imagine what you've been going through. Hang in there!
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| Posted 2/17/16 7:23 AM |
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Re: Please hug your babies
Thinking of you!! Praying for a quick recovery.
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| Posted 2/17/16 7:35 AM |
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Please hug your babies
Omg!! Prayers for you and your sweet little angel!! I hope she has a speedy recovery!!
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| Posted 2/17/16 7:37 AM |
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Sparrow
LIF Adult
Member since 11/10 6826 total posts
Name:
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Re: Please hug your babies
Omg, I'm so sorry to hear all of this! Saying many and sending you good thoughts.
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| Posted 2/17/16 7:37 AM |
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ChristinaM128
LIF Adult
Member since 8/12 4043 total posts
Name:
Christina
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Re: Please hug your babies
You and your little girl are in my prayers.
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| Posted 2/17/16 7:43 AM |
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DaisyGirl
LIF Adult
Member since 2/08 1650 total posts
Name:
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Re: Please hug your babies
OMG so many prayers for your baby girl. I can't imagine how scary that must have been for you. Thank goodness you trusted your gut and took her back to the dr when you did. I am so glad stony brook has been amazing and taking such good care of all of you.
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| Posted 2/17/16 7:55 AM |
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StaceyWill
It's a girl!!!
Member since 6/10 21536 total posts
Name:
Stacey
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Please hug your babies
OMG, I have tears coming down my face. I am so sorry this is happening.
Millions & millions of prayers to your little girl. And millions & millions to you guys.
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| Posted 2/17/16 7:57 AM |
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LoLaBlue
PARTY OF 5
Member since 6/10 6900 total posts
Name:
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Re: Please hug your babies
My prayers are with you and your family
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| Posted 2/17/16 8:01 AM |
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ali120206
2 Boys
Member since 7/06 17789 total posts
Name:
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Re: Please hug your babies
Thinking of you.
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| Posted 2/17/16 8:05 AM |
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phoenix913
LIF Adult
Member since 5/05 3034 total posts
Name:
V
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Re: Please hug your babies
So scary! Prayers and hugs to your family!
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| Posted 2/17/16 8:07 AM |
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Hofstra26
Love to Bake!
Member since 7/06 27915 total posts
Name:
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Re: Please hug your babies
Oh my god!!!! How scary for you!!!! I'm so, so sorry to hear how sick your LO is, I hope that she continues to improve and has a speedy recovery. Many thoughts and for you and your family.
ETA - To add to your post, if you ever notice rapid breathing get your kids to the ped or ER fast!! My DS wasn't as sick as this but he ended up with pneumonia when he was 1 and he just kept getting worse and worse and then one morning I noticed his breathing was REALLY rapid, he could barely get a good breath in. I took him back to the ped again and they sent me right over to the ER, his oxygen levels were SO low (in the 70's) that he had to be on oxygen and IV meds for the pneumonia. ALWAYS trust your instincts when it comes to your kids!!! 
Message edited 2/17/2016 8:12:52 AM.
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| Posted 2/17/16 8:07 AM |
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BsMomma2014
Fly high little one
Member since 6/10 2662 total posts
Name:
nicole
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Please hug your babies
Sending many prayers for baby Lila and you
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| Posted 2/17/16 8:12 AM |
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allIwant
Love my crazy life!
Member since 1/10 9170 total posts
Name:
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Re: Please hug your babies
oh wow! Lots of prayers!!
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| Posted 2/17/16 8:28 AM |
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hidingin1516
LIF Adult
Member since 9/15 1009 total posts
Name:
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Please hug your babies
omg, prayers to all of you. So scary.
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| Posted 2/17/16 8:29 AM |
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MrsB612
LIF Adolescent
Member since 12/12 784 total posts
Name:
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Please hug your babies
How awful! Glad she is stable now, wishing her a speedy recovery!
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| Posted 2/17/16 8:38 AM |
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want2beamom
Love my boys soooo much!!!
Member since 8/06 10164 total posts
Name:
True love doesn't end with happily ever after...
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Re: Please hug your babies
Millions of prayers for your precious baby girl.
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| Posted 2/17/16 8:53 AM |
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