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Does anyone feel "stuck" geographically because of services?
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Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
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Re: Does anyone feel "stuck" geographically because of services?
Posted by KarenK122
Posted by myminions
Now I would like to ask the million dollar question.:
Why is OPWDD a big secret? No one seems to inform you of it ...the school districts don't , pediatrician doesn't. I found out about it by talking to another mom who stumbled across it when she was talking to her gynecologist and revealed she had a son with ADHD.
I don't think it is. If you belong to any special needs facebook group it is mentioned all the time. Your SEPTA should be doing presentations on it (we just did one on Monday) and your school social worker should also be talking to eligible parents about it.
I found out through other mothers of kids with special needs. My school does SEPTA meetings about it all the time, only our scocial worker is not the one in charge. We have a transition Coordinator who is in charge. I did it all the paperwork myself.
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Posted 11/30/18 9:21 AM  |
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lightblue
LIF Adult
Member since 1/17 2249 total posts
Name:
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Re: Does anyone feel "stuck" geographically because of services?
Posted by Diane
Posted by lightblue
Posted by Diane
Posted by lightblue
Posted by LSP2005
My friends whose children have autism signed them up to have potential residential housing when they were about 3 years old and told that they should qualify at 25. If you think you want that as an option, I would look into those housing options now for the future now. I would also speak with an attorney about establishing a special needs trust so that their finances are taken care of and you can get them into the residential housing.
Thank you. Strangely enough we were denied medicaid when I first applied (he was 4 at the time) and I am going to try again when I have to apply for permanent OPWDD eligibility when he is 7 going on 8 (he just turned 6 this past August). I think I need medicaid first to even be on any list. I would be surprised if he gets denied again because he is considered severe on the Autism spectrum, non verbal, and also diagnosed with intellectual disability.
I did see a lawyer and set up a special needs trust that takes effect when we both pass. We also purchased a whole-life policy that will fund the SN trust when we both pass. It will be up to my typical daughter to manage that trust.
I am thinking he is going to need residential care when he is older because it would be unfair to my daughter to expect her to take care of him once we can no longer do so.
Did you already apply for OPWDD? You do NOT need Medicaid to be on any list. After I got the servies, I applied for the Medicaid for my son (the medicaid waiver program) they call it.
Yes right now he has provisional eligibility and approval for Family Support Services only. I use it for a Sunday respite program and voucher reimbursement for up to 1k a year on swim lessons. I worked with a non-medicaid service coordinator back in January 2017 to apply for medicaid but was denied.
what was reason for being denied? You can appeal it.
The letter said we should look to our district for services. My guess is because of his age. Someone I know who had the same denial letter that appealed was denied again (had son a year older than mine, same functioning level). I think they are making it very difficult to get approved.
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| Posted 11/30/18 1:15 PM |
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lightblue
LIF Adult
Member since 1/17 2249 total posts
Name:
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Re: Does anyone feel "stuck" geographically because of services?
Posted by Diane
Posted by KarenK122
Posted by myminions
Now I would like to ask the million dollar question.:
Why is OPWDD a big secret? No one seems to inform you of it ...the school districts don't , pediatrician doesn't. I found out about it by talking to another mom who stumbled across it when she was talking to her gynecologist and revealed she had a son with ADHD.
I don't think it is. If you belong to any special needs facebook group it is mentioned all the time. Your SEPTA should be doing presentations on it (we just did one on Monday) and your school social worker should also be talking to eligible parents about it.
I found out through other mothers of kids with special needs. My school does SEPTA meetings about it all the time, only our scocial worker is not the one in charge. We have a transition Coordinator who is in charge. I did it all the paperwork myself.
I found out through FB Special Need Parents groups about OPWDD
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| Posted 11/30/18 1:16 PM |
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jamnmore
LIF Adult
Member since 6/16 989 total posts
Name:
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Re: Does anyone feel "stuck" geographically because of services?
Posted by lightblue
Posted by Diane
Posted by KarenK122
Posted by myminions
Now I would like to ask the million dollar question.:
Why is OPWDD a big secret? No one seems to inform you of it ...the school districts don't , pediatrician doesn't. I found out about it by talking to another mom who stumbled across it when she was talking to her gynecologist and revealed she had a son with ADHD.
I don't think it is. If you belong to any special needs facebook group it is mentioned all the time. Your SEPTA should be doing presentations on it (we just did one on Monday) and your school social worker should also be talking to eligible parents about it.
I found out through other mothers of kids with special needs. My school does SEPTA meetings about it all the time, only our scocial worker is not the one in charge. We have a transition Coordinator who is in charge. I did it all the paperwork myself.
I found out through FB Special Need Parents groups about OPWDD
I found out about it this way as well. We applied and were denied. Refiled with the help of our Dev Ped and were approved for provisional. Now applying for permanent. But even now, it is all so confusing.
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| Posted 12/3/18 8:11 AM |
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| Pages: 1 [2] |
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